Action Alert: Ensure Dystonia is Eligible for Federal Research Dollars

The DMRF is a member of and provides staff support for the Dystonia Advocacy Network (DAN), a collaborative effort of four dystonia Patient Advocacy Groups. The DAN is asking members of the dystonia community to contact the office of their Senator serving on the Defense Appropriations Subcommittee and thank them for the inclusion of “dystonia” as a condition eligible for study through the Department of Defense Peer-Reviewed Medical Research Program during the Fiscal Year (FY) 2025 appropriations process and ask that they work with their colleagues to ensure that it is included in the final list.

Action is needed no later than Dec. 13 and ask that they support the inclusion of “dystonia” in the Department of Defense’s Peer-Reviewed Medical Research Program. The DAN Action Alert provides instructions on who to contact and a letter template you can complete with your personal dystonia story.