The Dystonia Medical Research Foundation (DMRF) and Dystonia Medical Research Foundation Canada (DMRFC) hosted a webinar, “Dystonia and the COVID-19 Virus – Your Questions Answered,” on Wednesday, April 1, 2020. Movement disorder specialists Mark Hallett, MD of the National Institute of Neurological Disorders & Stroke and Robert Chen, MB BCh, MB BChir of the University […]
Mindfulness meditation is a technique that can provide support during times of elevated stress. A daily practice can reduce tension and pain and provide moments of peace. Mindfulness meditation is not a substitute for medical treatment. It is a process to support overall wellness for individuals living with and without chronic conditions. DMRF Vice President […]
The Dystonia Medical Research Foundation (DMRF) will receive $1,000 from HSN, as part of the HSN Cares annual $1,000 A Day Giveaway campaign. HSN Cares selected DMRF from hundreds of entries. Julie Greene of Minnesota nominated DMRF to receive a $1000 donation during HSN’s Customer Appreciation Month. The organization is committed to finding a cure […]
“DMRF initiated, supported, stimulated, and catalyzed essential scientific and medical efforts that created the modern dystonia field.” -Jan Teller, MA, PhD Chief Scientific Advisor Nearly 45 years ago, the DMRF began the ambitious mission to find a dystonia cure. Since that time, the Foundation has provided funding to 270+ investigators and has grown the field […]
This article originally appeared in the Dystonia Dialogue. The DMRF leads a global research effort, grounded in the belief that the best service the Foundation can provide the dystonia community is to work every day toward improved therapies and a cure. Jan Teller, MA, PhD, DMRF’s Chief Scientific Advisor since 2006, recently commented on a […]
Stress is notorious for making dystonia symptoms worse. The following gentle reminders may help ease stress before it becomes overwhelming, especially during these unprecedented times due to the COVID-19 pandemic. Acknowledge loss and change. Daily life may feel very different today than it did a month, or even a week ago. You may be unable […]
Feeling connected to other people affected by dystonia can benefit your physical and emotional health. DMRF connects you to people who understand life with dystonia: Support Groups – DMRF offers peer support groups in communities across the USA. Although regular support group meetings are postponed due to the COVID-19 pandemic, many groups are connecting through […]
This article originally appeared in the Dystonia Dialogue. “Even when we treat symptoms in dystonia, people are still sometimes left with bothersome symptoms, and they’re also dealing with more than just the physical symptoms that we can see,” explained Danny Bega, MD, neurologist and movement disorders specialist at Northwestern Medicine in Chicago. “A lot of patients with […]
Good sleep is among the top self-care activities that can boost your coping and physical wellness. Individuals with dystonia frequently experience insomnia and problems with sleep. Insomnia may occur prior to developing dystonia, or as a result of dystonia. Some sources suggest more than 60% of individuals with dystonia have fatigue or day time sleepiness. […]
Dystonia is a neurological disorder that affects the physical body, but the impact goes far deeper. Individuals diagnosed with dystonia commonly experience symptoms that affect more than how the body moves. Living well with dystonia often requires addressing more than the physical movement symptoms. Non-motor symptoms are a significant burden, and can be as disabling—or […]
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