CANCELLED: Dystonia Advocacy Day 2020

When:
March 24, 2020 @ 12:00 pm – March 25, 2020 @ 6:00 pm
2020-03-24T12:00:00-04:00
2020-03-25T18:00:00-04:00
Cost:
Free
Contact:
Dystonia Medical Research Foundation
312-755-0198

The Dystonia Advocacy Network’s (DAN) Advocacy Day that was planned for March 24-25 in Washington, DC has been cancelled because of the current situation with the COVID-19 (Coronavirus) outbreak.

The health, safety, and well-being of our advocates and all members of the dystonia community are extremely important to us. The decision to cancel was not easily made, but the situation with the virus is changing quickly and there is no way to predict how or if it would affect the areas where our advocates would be traveling from.

However, the dystonia community will not the Coronavirus threat keep us down! Help us get the word out to Members of Congress. Increase their awareness of dystonia and how they can help us. Please join us in this effort and participate in our virtual advocacy day planned for March 25, the same day our advocates had planned to gather on Capitol Hill! It will be easy, something you can do from the comfort of your home or office, and it will not be very time-consuming.

We will provide you with the information you need to do any, or all, of the action steps listed below:

  • Email your two Senators and your Member of the House of Representatives to share your experience with dystonia and to ask them to help us (information on the ask to be provided)
  • Call the offices of your two Senators and your Member of the House of Representatives to share your experience with dystonia and ask them to help us (information on the ask to be provided)
  • Schedule a meeting in the local offices of your Senators and Member of the House of Representatives to share with them your dystonia experience and ask them to help us (information on the ask to be provided)
  • Then join us for a Zoom, on-line meeting to debrief on your experiences throughout the day. Let’s come together virtually to talk about who was receptive and what next steps might need to be taken.

Please plan to join us for a instructional webinar on Thursday, March 19th webinar at 4:00 pm ET.  The webinar will provide information on how to identify your Members of Congress, how to make an appointment in your elected officials’ local district offices; or what to say in your calls/emails to their offices.  Click here to register for the webinar.

Come join the dedicated volunteers who advocate for the dystonia community and have your voice be heard on important issues like funding for research, creating research funding opportunities through the Department of Defense Peer Review Medical Research Program and the preserving the pre-existing condition protections.  We need your energy and efforts!