Promote Dystonia Awareness

Help Get the Word Out

September is Dystonia Awareness Month.

You can promote dystonia awareness by joining Dystonia Moves Me, the DMRF’s annual awareness campaign. Dystonia Moves Me empowers volunteers to promote dystonia awareness locally and in social media.

Stay informed about activities and highlights from the Dystonia Moves Me campaign by connecting on the website, Facebook, Twitter, and Instagram.

Let us know how you are promoting dystonia awareness by sharing your photos/videos:

Everyone who informs DMRF of their awareness activities will be included in a random drawing for a $100 gift card. Deadline to enter is October 7, 2019.

There are several ways to take action for dystonia awareness.

Ways to take action for dystonia awareness:

Read up on dystonia so you are prepared to educate family and friends.

Download a free double-sided fact sheet of dystonia talking points to help start the conversation.

All donations raised for DMRF through Facebook’s fundraiser tools in 2019 will be matched dollar for dollar.

Go to to get started.

Be sure to notify DMRF of your fundraiser to have your donations matched! Send an invitation or private message to Dystonia Medical Research Foundation .

Keep wallet-sized information cards and stickers on hand to promote dystonia among the people you see on a daily basis.

Click here to order

Follow DMRF on social and share news and facts about dystonia. Find us on Facebook , Instagram (@dystoniamrf) and Twitter (@dmrf).

Contact a local newspaper, TV news program, or blogger and ask them to do a story about dystonia.

Click here to download a media kit and press release template to customize with your unique story.

When you land an interview with a reporter, use this talking points sheet as a guide of dystonia facts to keep you focused.

The Dystonia Advocacy Network provides tips on reaching out to your US Senators and Representatives to share your story and advocate for dystonia.

Sign up for action alerts to be notified when the dystonia community needs to contact Congress on specific legislation or policy.

Video Contest

"How I Explain Dystonia"

Share how you explain what dystonia is, and how it affects you, to other people.

Dystonia Community

How You Can Help