Promote Dystonia Awareness

Help Get the Word Out

You can promote dystonia awareness by joining Dystonia Moves Me, the DMRF’s annual awareness campaign. Dystonia Moves Me empowers volunteers to promote dystonia awareness locally and in social media. September is Dystonia Awareness Month, but promoting awareness is crucial year round.

There are several ways to take action for dystonia awareness.

Ways to take action for dystonia awareness:

Join us for a nationwide virtual Dystonia Zoo Day to unite DMRF supporters across the country and their friends and families, raise awareness of dystonia, and raise funds to support the DMRF. Hosting the event virtually ensures the safety of our supporters and  provides the opportunity for greater cross-country reach and more opportunities for participation than existed through local zoo events.

Click here for more information.

Read up on dystonia so you are prepared to educate family and friends.

Download a free double-sided fact sheet of dystonia talking points to help start the conversation.

All donations raised for DMRF through Facebook’s fundraiser tools in 2019 will be matched dollar for dollar.

Go to to get started.

Be sure to notify DMRF of your fundraiser to have your donations matched! Send an invitation or private message to Dystonia Medical Research Foundation .

Keep wallet-sized information cards and stickers on hand to promote dystonia among the people you see on a daily basis.

Click here to order

Follow DMRF on social and share news and facts about dystonia. Find us on Facebook , Instagram (@dystoniamrf) and Twitter (@dmrf).

Contact a local newspaper, TV news program, or blogger and ask them to do a story about dystonia.

Click here to download a media kit and press release template to customize with your unique story.

When you land an interview with a reporter, use this talking points sheet as a guide of dystonia facts to keep you focused.

The Dystonia Advocacy Network provides tips on reaching out to your US Senators and Representatives to share your story and advocate for dystonia.

Sign up for action alerts to be notified when the dystonia community needs to contact Congress on specific legislation or policy.

Dystonia Community

How You Can Help