2019 NYC Marathon

Dystonia is a movement disorder.

Thank you for helping our Marathon Team Go the Dystance4Dystonia!  Since 2013, Team DMRF at the TCS New York City Marathon has raised over $170,000.

For many individuals with dystonia, it can feel like a marathon just to get through the day due to the pain and challenge of living with a chronic disorder.  For the past several years, dedicated teams of DMRF supporters ran in the world famous New York City Marathon, literally running for those who can't.

The 2019 TCS NYC Marathon was held on Sunday, November 3, 2019. However, it is not too late to support individual runners - or make a general donation to support the entire team!

Support our 2019 Team and check back soon for details on 2020!

You can help our 2019 Marathon Team Go the Dystance4Dystonia by making a general team donation below or by making a donation directly to one of our 2019 Team Members:

Stephanie Sorgie
Team Donation

Interested in running for those who can't? If you would like to join a future marathon team, please send an email to dystonia@dystonia-foundation.org or call 800-377-3978. By lending your support, spirit and legs to this cause, you will help the DMRF make strides toward better therapies and a cure. You can run for all the members of our community who wish they could.

Dystonia Community

How You Can Help
Support Groups

There are many benefits to joining a support group. Find the dystonia support group nearest you and enjoy the rewards.

Get Involved

Getting involved is empowering and provides an opportunity for you to contribute to the DMRF's unrelenting quest for a cure and commitment to serving the needs of affected people and families.


The Dystonia Medical Research Foundation (DMRF) has served the dystonia community since 1976. Join us in our global effort to find a cure.