The 3rd Annual Indy Hunt for a Cure for Dystonia took place September 29. The event was a scavenger hunt to promote awareness and raise funds for dystonia research. Participants competed for points by answering trivia questions, completing tasks, and collecting items throughout Garfield Park in Indianapolis. The event was organized by Sunshine Fox and Sarah Ernstberger, who co-lead the Central Indiana Dystonia Support Group and are dedicated dystonia advocates. DMRF Board Member John Downey was in attendance and provided remarks.
Dystonia causes excessive, uncontrollable muscle spasms. The muscle spasms twist the body and limbs into involuntary movements and awkward postures. Estimates suggest that 70% of patients are misdiagnosed prior to a dystonia diagnosis.
For information about dystonia, treatments, support resources, and locating medical specialists, the Dystonia Medical Research Foundation (DMRF) can be reached at www.dystonia-foundation.org and 800-377-DYST (3978)