Arkansas July Fundraiser in Support of DMRF

William’s dystonia journey did not become obvious until he was four years old, when he started having trouble walking. It appeared some days as a limp and at other times as a more pronounced change that resembled cerebral palsy. William was diagnosed with KMT2B type dystonia, which is a progressive form of this disorder. For the next 2 1/2 years, William had PT, OT, speech, bracing, and botulinum toxin shots to help slow the progression and pain. Throughout it all, he has always had the most amazing smile and attitude.

By the time William had deep brain stimulation (DBS) surgery, he was getting around via walker, rolling chair, or being carried. Post-DBS, William no longer requires a walker or to be carried everywhere. He has been able to stop receiving botulinum toxin injections and medicines because he is pain free. William’s family is grateful for the scientific research and the discovery the form of dystonia that William has, and they continue to support the work of the DMRF through their fundraising activities.

This summer’s fundraiser in honor of William is being put on by Gearhead Outfitters, the Jonesboro, AR business that sells all types of outdoor clothing, shoes, accessories, and equipment with locations all over Arkansas, Oklahoma, Missouri, Kansas, and Colorado. The Gearhead Runners Club will be running the course of Jonesboro Country Club three Mondays during the month of July while raising money for the DMRF and two other charities. The DMRF thanks the Jonesboro Country Club and Gearhead Runners Club for their support of William and all those with dystonia.