Maintaining Social Connection

social connection

Feeling connected to other people affected by dystonia can benefit your physical and emotional health.

DMRF connects you to people who understand life with dystonia:

Support Groups – DMRF offers peer support groups in communities across the USA. Although regular support group meetings are postponed due to the COVID-19 pandemic, many groups are connecting through Facebook and other technology platforms. Search local support groups here.

Online Forums – Online groups are available for specific types of dystonias, parents, loved ones, young adults, and individuals who have had deep brain stimulation. Find links for online forums here.

Individual Support – DMRF is available by phone, email, web, and social media to those seeking information and support.

Benefits of Peer Support:

  • New friendships
  • Advice for daily living
  • Reduced stress
  • Greater acceptance of life with dystonia

Support resources also provide opportunities to volunteer for dystonia awareness, legislative advocacy, and fundraising.


The Dystonia Medical Research Foundation is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families.