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Dopa-responsive dystonia (DRD) is an umbrella term used to describe specific dystonia disorders that respond to a medication called levodopa, which is a synthetic form of a brain chemical called dopamine. This group includes inherited forms that are characterized by progressive difficulty walking. Its symptoms may be similar to those of early onset generalized dystonia.
The DMRF believes the best service it can provide the dystonia community is to work every day toward improved therapies and a cure. The DMRF aspires to serve as a leader in dystonia research, putting in as much time, effort, and resources as needed to get the results that make a difference in people’s lives.
Promote dystonia awareness. Dystonia Moves Me is DMRF’s annual awareness campaign. Dystonia Moves Me empowers volunteers to promote dystonia awareness locally and in social media. There are several ways to take action for dystonia awareness, any time of the year.
This article originally appeared in the Dystonia Dialogue. “During my fellowship training at Duke, the faces of dystonia patients with painful postures and tremors stayed with me,” said Noreen Bukhari-Parlakturk, MD, PhD, a movement disorder neurologist and clinical investigator at Duke Neurological Disorders Clinic. “Their stories of resilience and optimism—despite daily hardship and social misunderstanding—inspired […]
Find out more about Clinical Fellow Training Programs. There is a shortage of physicians qualified to treat dystonia and an urgent need for training additional movement disorder experts through clinical fellowships.
The Medical & Scientific Advisory Council is made up of dystonia clinicians and scientists who are among the most knowledgeable in the world and whose work is shaping neurology, neuroscience, neurosurgery, and related fields.
Current Dystonia Research Projects. The DMRF is dedicated to stimulating the field of dystonia research and supporting the collaborations and projects necessary for a Dystonia cure.
Dystonia Awareness Month is underway, and volunteers across the country are hosting events to bring visibility to the disorder and raise funds for urgently needed medical research toward a cure. The Pittsburgh Pirates welcomed members of the Western, Pennsylvania Dystonia Support Group for Dystonia Awareness Day at PNC Park, as a lead up to the […]