Dystonia Frequently Asked Questions. Dystonia Foundation, promotes Dystonia Awareness, Dystonia Medical Research to find a cure for Dystonia, and Dystonia Treatments.
Dystonia is a brain disorder. There are several types. Dystonia causes uncontrollable body movements and postures. The brain sends chaotic signals to the muscles, telling the muscles to contract, even if the person does not want them to.
This Thanksgiving morning, my son David is going to run his first 5k race in my hometown of Massapequa Park, NY. To make this event special, he decided that he would run for a cause. David has a very special relationship with his grandpa (My dad), who has been suffering for the last few years […]
From the moment I was diagnosed in the mid 1970’s, my parents worked tirelessly to combat dystonia. At the time, patients and their families had no place to turn. My prognosis was a bleak future. Fortunately, lack of hope didn’t reside within my parents’ vocabulary. If there was no way forward, then they would construct […]
This article appeared in the Dystonia Dialogue. “In my family, we were all aware that my father had a problem with his hands,” explained Carole Rawson, “and my parents’ generation was one in which, if there was something bad going on, you didn’t talk about it. He was very closed-lipped about it.” Carole’s father went […]
Cheri Tannenbaum, daughter of DMRF Founders Sam & Fran Belzberg, has published a memoir, Woman of Few Words: My Creative Journey With Dystonia. Cheri is sharing her philosophy on how to be a functioning, fulfilled individual despite daunting challenges. DMRF is grateful to Cheri for sharing her profound story to increase awareness of dystonia and […]
The Dystonia Medical Research Foundation (DMRF) has supported and stimulated dystonia research for 40+ years.
DMRF-funded research has led to a better overall understanding of dystonia as well as breakthroughs in genetics and therapeutics. The funding investigators obtain from the DMRF often serves as seed money that ultimately positions them to earn more robust funding from agencies such as the National Institutes of Health and Department of Defense.
The Dystonia Study Group organizes and conducts clinical trials to test treatments for dystonia.
The DMRF family sends our deepest sympathies to the family and friends of pianist extraordinaire Leon Fleisher who passed away on August 2 at the age of 92. Mr. Fleisher inspired countless audiences with his spectacular talent. He served as mentor for many musically gifted young artists and helped them tremendously with their careers. Mr. […]