Pet Palooza – Suki
We need to join others to spread awareness & want to help with fundraising doing so.
Throughout February support Suki and the other pets registered for DMRF’s Dystonia Pet Palooza by making a donation today.
Donation Goal
Donors
Alma Flores
Anonymous
Marilynne Herbert
Please Contribute:
Pet Palooza – Suki
Dystonia Zoo Days are HERE!
Join DMRF supporters across the country to raise awareness of dystonia, connect the community and raise important funds to support dystonia research so that no one has to face dystonia alone.
Zoo events are organized by families who are impacted by all forms of dystonia with a mission to educate the public about this brain disorder that causes extreme muscle spasms so intense they produce involuntary movements and postures of the body and limbs.
Register and Start Your Team.
Join us and together we can make a difference!
Visit URL: https://dystonia-foundation.org/get-involved/events/
#dystonia #DMRF #dystoniaawareness #dystoniamovesme #letszoothis #dystoniazooday
Happy Mother’s Day from the Dystonia Medical Research Foundation!
DMRF makes it easy to celebrate all the mothers in your life with our instant e-cards. When you select "Send an Ecard" and make a donation to the DMRF (at any level), your chosen recipient (mom, daughter, grandmother, sister, aunt, or friend) will receive a special e-card with a personalized, heartfelt message from you.
Visit URL: https://dystonia-foundation.org/donate-other-ways/donate-online/
We are committed to providing those living with dystonia with accurate information to help successfully manage their disorder while supporting research to increase our understanding of this disorder. Connect with us to learn more and share your knowledge with others or donate today to help power the next research discovery.
Read about the research awards that are advancing the understanding of dystonia. https://dystonia-foundation.org/2023-grants/
#dystonia #DMRF #dystoniaawareness #dystoniamovesme #dystoniaresearch #curedystonia #lifewithdystonia
Living well with dystonia requires multiple layers of support from people with varying degrees of dystonia knowledge. Doctors are clearly critical in this process but so too are family and friends.
Read the article “What Friends and Family Should Know About Dystonia” in the spring issue of the Dystonia Dialogue.
🔗Visit URL: https://dystonia-foundation.org/wp-content/uploads/2023/03/DMRF_DDSpring23_FNL.pdf
🔗See link in bio to connect with the DMRF.
#dystonia #DMRF #dystoniaawareness #dystoniamovesme #chronicpain #dystoniaresearch #neurology #curedystonia #charity #wellness #lifewithdystonia
What sports celebrity autograph would you most like to own? Here’s a sneak preview of some of the items available for bid in the DMRF Bid it Up for Dystonia auction. Spread the word, preview opens on April 11, and then bidding starts on April 18. The auction closes April 21.
Visit: URL http://bid4dystoniamrf.givesmart.com/
#DMRFmember #dystonia #DMRF #dystoniaawareness #dystoniamovesme #chronicpain #dystoniaresearch #movement #curedystonia #onlineauction
What is Spasmodic Dysphonia?
Spasmodic dysphonia (also known as laryngeal dystonia) is a movement disorder that causes involuntary contractions of the vocal cord muscles, usually in adults. These may be patterned “breaks” or interruptions in speech or may give a breathy quality to the voice.
To learn more about dystonia, what causes it, and the symptoms:
Visit URL: https://dystonia-foundation.org/product/spasmodic-dysphonia-brochure/
See link in bio to connect with the DMRF.
#dystonia #spasmodicdysphonia #DMRF #dystoniaawareness #speechpathology #otolaryngologist #dystoniamovesme #chronicpain #dystoniaresearch #neurology #curedystonia #charity #letszoothis #dystoniazooday
Have you heard? DMRF is hosting our first nationwide online auction!
We have some incredible one-of-a-kind opportunities including fabulous trips (with airfare, good for three years, no blackouts), autographed memorabilia from iconic sports figures, unique experiences with DMRF celebrities, tech gadgets for kids of all ages, and more.
Join Us! The site opens for a preview on April 11, and then bidding starts on April 18. The auction closes April 21.
#DMRFmember #dystonia #DMRF #dystoniaawareness #dystoniamovesme #chronicpain #dystoniaresearch #movement #curedystonia #onlineauction
Check your mailbox! Spring Dystonia Dialogue newsletter is out.
In this issue, DMRF presents research on alleviating maneuvers for cervical dystonia, insights on common oral medications, shared experiences from others living with dystonia.
Are you a subscriber? Only DMRF members receive three print issues of the Dystonia Dialogue each year. Visit our website to become a member www.dystonia-foundation.org/membership
See link in bio to connect with the DMRF.
#membership #DMRFmember #dystonia #DMRF #dystoniaawareness #dystoniamovesme #chronicpain #dystoniaresearch #neurology #movement #curedystonia
Happy National Doctor’s Day!
To all the doctors who care for dystonia patients across the dystonia community we say “Thank YOU!”. We celebrate you for your compassion, kindness, expertise, and exceptional care. 🫶
Finding a doctor with special training in movement disorders can make a big difference, visit our website for more information www.dystonia-foundation.org/living-dystonia/find-a-doctor/
See link in bio to connect with the DMRF.
#dystonia #DMRF #dystoniaawareness #dystoniamovesme #chronicpain #dystoniaresearch #neurology #movement #curedystonia
“The DMRF is proud to highlight the achievements of Daria Dragicevic, who has served for the past two years as a consumer reviewer for the Department of Defense’s Congressionally Directed Medical Research Programs’ (CDMRP) Peer Reviewed Medical Research Program (PRMRP). Daria also serves on the DMRF Dystonia Dialogue’s Editorial Board, sharing her keen insight with the dystonia community. Thank you for your advocacy, Daria!
If you’d like to read more, please visit: https://cdmrp.health.mil/cwg/stories/2023/Daria_Dragicevic_profile”
Have you heard? DMRF is hosting our first nationwide online auction in April. What hot items would you like to see available for bids?
Congrats and thanks to all of the participants in 2023 Dystonia Pet Palooza. Our 10th anniversary saw old and new friends and 70+ pets coming together to raise nearly $23,000 (and counting)! It`s not too late to support one of our pets, or to order a hat, blanket or other fun item to help raise awareness of dystonia and celebrate the important role pets play in our lives. Life is better with pets!
https://dystonia-foundation.org/pet-palooza
#dystoniapetpalooza #dogs4dystonia #dmrf #dystonia
We`re getting barking close! You can help Murphy and his pet friends reach our $25,000 Dystonia Pet Palooza fundraising goal. Visit: https://dystonia-foundation.org/pet-palooza
Planning to Watch the Big Game? Be a Dystonia MVP when you join our current SB Squares FUNdraiser. It’s not too late to sign up. Squares are available at different prize levels. For more information, visit: https://dystonia-foundation.org/sb-squares/
Life is better with pets. Register today for DMRF`s Dystonia Pet Palooza. Learn more: https://conta.cc/3kOHFsO
#dystoniapetpalooza, #dogs4dystonia, @dystoniamrf, #dmrf
Support the DMRF while enjoying the BIG Game on February 12. It is easy to participate, and there are MULTIPLE chances to win $$. Squares are available at different prize levels from $10 to $250. https://dystonia-foundation.org/sb-squares/
We are pleased to share the American Brain Coalition`s new podcast, Advocacy Champions: Voices for the Brain. The first episode is out now and features the DMRF! DMRF Awareness Ambassador Billy McLaughlin and Executive Director Janet Hieshetter join ABC Executive Director Katie Sale to discuss the importance of dystonia awareness and advocacy. Visit the link below to listen!
https://sites.libsyn.com/420986/site
By popular demand, DMRF is bringing back our "SB Squares for Dystonia" FUNdraiser just in time for football`s biggest game of the year. Anyone can enter for chances to win prizes throughout the “Big Game” on February 12. Squares are available at different prize levels. For more information, visit: https://dystonia-foundation.org/sb-squares/
Mike Delise and Jason Dunn started $5Cure4Dystonia in 2017 to bring visibility to dystonia and the urgent need for improved treatments and a cure. This program has raised more than $100,000 to support dystonia research. Tune in tonight at 7:00 PM ET/6:00 PM CT to listen as Mike shares their story with best-selling author, journalist, and radio and television broadcaster Mitch Albom on the Mitch Albom Show on WJR-AM in Detroit. Congratulations to Mike and Jason on this latest effort to educate the world about dystonia.
https://www.wjr.com/mitchalbom/
Congress has released their final appropriations bills ahead of voting later this week. Dystonia is once again included as a condition eligible for study through the Department of Defense`s Peer-Reviewed Medical Research Program for Fiscal Year 2023. This would not have happened without all of the hard work of our tireless advocates! Thank you!
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