Dystonia Zoo Day Season Has Begun!

On Thursday, August 18, DMRF officially launched a series of Dystonia Zoo Day events with a Virtual Kick-Off Celebration. DMRF President Mark Rudolph and Executive Director Janet Hieshetter provided a preview of in-person and virtual Dystonia Zoo Day events scheduled for August through October and introduced viewers to in-person Dystonia Zoo Day hosts and DMRF […]

DMRF Co-Funds Dystonia Coalition Pilot Project Awards

The DMRF is proud to partially support two Dystonia Coalition Pilot Project Awards. The goal of the Pilot Projects Program is to foster the most promising clinical and translational studies on dystonia. Moodscreen for Cervical Dystonia: A Diagnostic Accuracy Study of Depression and Anxiety Davide Martino, MD, PhD, University of Calgary Depression and anxiety frequently […]

9th Annual Rockin’ for a Cure Raises $147K for Dystonia Research

The 9th Annual “Rockin’ for a Cure” organized by Robin and Marc Miller of New York on July 14 raised $147,000 for urgently-needed dystonia research. The event supported the Cure Dystonia Now Fund of the Dystonia Medical Research Foundation (DMRF). Sponsors included Allergan, an AbbVie Company; Reliance First Capital; and Command Direct. Over the past […]

Everybody’s Zoo-ing It: Dystonia Zoo Days Start August 18

Logo that reads "Dystonia Zoo Day 2022" with illustrations of animals.

The DMRF is pleased to return to in-person events in select cities to re-unite the dystonia community, promote awareness, and support the mission to find a cure. We’re especially excited to announce this year’s Dystonia Zoo Day season, with both in-person events and virtual opportunities to participate. A Virtual Kick-Off Celebration on August 18, 2022 will mark […]

New Dystonia Strong Awareness Merchandise

Celebrate the strength and resilience of the dystonia community while increasing awareness with DMRF’s new line of “Dystonia Strong” merchandise. Available items include a Dystonia Strong baseball style shirt, yard flag, notecards, magnet, and banner. September may be Dystonia Awareness Month, but promoting awareness is essential all year. Shop now.

Upcoming Dystonia Events – Join Us!

Five adults and two children, one in a stroller, posing for a photo. A young brunette woman in the front row is sitting in a wheelchair. All are wearing matching Dystonia Zoo Day t-shirts.

The Dystonia Medical Research Foundation (DMRF) is pleased to begin returning to in-person events in select cities to re-unite the dystonia community, promote awareness, and support the mission to find a cure. We’re especially excited to announce this year’s Dystonia Zoo Day season, with both in-person events and virtual opportunities to participate regardless of geography. […]

DMRF’s Pamela Sloate Bronx Dystonia Zoo Day Named for Late Dystonia Advocate

Three people facing camera and smiling.

Dystonia Medical Research Foundation (DMRF) Board Member Pamela Sloate died from cancer on April 12, 2022. In her honor, the newly named Pamela Sloate Bronx Dystonia Zoo Day to benefit DMRF will take place Sunday, September 10, 2022 at The Bronx Zoo. The event is in its 6th year, after a two-year hiatus due to […]

Making the Connection: Untangling Complex Neural Networks is Key to Solving Dystonia

Neurons

This article was published in the Dystonia Dialogue. Excessive muscle contractions are a hallmark sign of dystonia, but the muscles are not the source of the problem. The muscles are responding to abnormal signals from the brain, which cause them to flex, and this results in dystonic movements and postures. Research shows that the origins […]

Deep Dive into Oromandibular Dystonia

Semi-transparent profile of human head and neck with jaw area illuminated against dark background..

This article was published in the Dystonia Dialogue. In a study partially supported by DMRF, an international team of investigators embarked on the most comprehensive examination of the clinical features of oromandibular dystonia with the purpose of reducing misdiagnosis. The symptoms of OMD include varying combinations of abnormal jaw, tongue, or lower face movements. OMD […]

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