I have generalized dystonia. There is no cure right now. Just physical therapy which I do twice a week and have been doing forever, and medications that help control the spasms and pain but make you very sleepy, and the Botox injections of about 35 to 50 shots every 3 to 6 months. Makes your muscles feel better but weakens you. Sometimes very sore and sick few for a few days after. I have been doing this since 2012. I’m at highest doses of meds and injections I can do now.
Help me by donating to help find cure or better treatments please. Deep brain stimulation therapy, which is a pacemaker they put in the brain, is another treatment, but not for me!