Virtual Dystonia Zoo Day is September 25, 2021

Lolly Lardpop is returning for Virtual Dystonia Zoo Day 2021!

On Saturday, September 25, 2021, the dystonia community is uniting online for Virtual Dystonia Zoo Day to benefit the Dystonia Medical Research Foundation (DMRF). An estimated 2,500 people, representing all 50 US states, will take action together to boost dystonia awareness and raise funds for urgently-needed medical research.

Signing up for the event is free and participants can support the event by making a donation. All contributions will ensure that DMRF continues to provide programs and resources for individuals and families affected by dystonia while advancing cutting edge scientific investigations by leading experts.

The event is generously supported by National Sponsors Allergan, an AbbVie company; Merz; Ipsen, and Revance.

The countdown officially begins September 1, on the first day of Dystonia Awareness Month. The Virtual Dystonia Zoo Day torch is traveling across the country, arriving in a new city every day between now and the event, when it will ultimately reach the hands of DMRF President Art Kessler to kick-off the festivities. Follow the torch and look for event updates on Facebook and Instagram.

Among the planned activities is the Virtual Dystonia Zoo Day Chalk Art Contest. Create your very own chalk art masterpiece to promote dystonia awareness, celebrate Virtual Dystonia Zoo Day, or express something about your dystonia experience. Email a photo of your chalk art drawing to zooday@dystonia-foundation.org by 1PM Central time on Saturday, September 25 to be entered into a drawing for dystonia awareness merchandise and other treats. Winners will be announced during the live event broadcast. Winning artwork will also be featured in the Dystonia Dialogue. Click here for full contest details.

Event Program

Let’s ZOO This! (11:00 AM – 11:10 AM CT)
Virtual Dystonia Zoo Day Kick-Off Celebration with DMRF President Art Kessler and Surprise Guests

Where the Wild Things Are (11:10 AM – 11:30 AM CT)
Zoo Keeper Chat with Toledo Zoo & Aquarium

Loosey-Goosey (11:40 AM – 12:05 PM CT)
Stretch your muscles with our adaptive warm up

Animal Crafts with Lolly Lardpop (12:15 PM – 12:30 PM CT)
Fun activities for kids of all ages!

It’s a Jungle in Here (12:40 PM – 1:00 PM CT)
Go backstage at the Como Zoo

Birds of a Feather (1:15 PM – 1:45 PM CT)
Hear inspiring stories from the dystonia community

Dance Paw-ty (1:45 PM —2:00 PM CT)
Closing Ceremony & World Premiere of the DMRF Dystonia Dance
Don’t Miss the Dance Party!

Follow the Virtual Dystonia Zoo Day torch from city to city on Facebook and Instagram.

Dystonia is a chronic, often disabling, brain disorder marked by extreme, involuntary muscle contractions that cause abnormal body movements and postures. Common signs include abnormal movements of the head and neck, excessive blinking, a breathy or choking voice, hand cramps, or a twisted foot. Because dystonia is not better known, symptoms are often mistaken for mental illness, intoxication, or poor social skills. Dystonia impacts people of all ages and backgrounds. There is currently no cure, and though treatments exist there is no single therapy that benefits even a majority of patients.


The Dystonia Medical Research Foundation is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families.