Share Why DMRF is Important to You

A collage of images depicting dystonia families and dystonia research.
The DMRF mission is to advance research toward a cure, promote awareness, and support the well-being of individuals and families affected by all types of dystonia.

2021 marks 45 years since the Dystonia Medical Research Foundation (DMRF) was founded. Since 1976, we have worked tirelessly, every day, on behalf of every affected individual and family. And we won’t stop until there is a cure.

Whether you are new to DMRF or have been a member for decades, thank you. Over and over again, we are inspired by how the dystonia community steps up to support the DMRF and each other. Together we have pushed the dystonia field forward and welcomed major milestones, not only in research but also support and education programs. We are grateful for your support.

During our anniversary year, DMRF is collecting and sharing testimonials from the community to highlight what we have accomplished together.

Please take a moment to tell us why the DMRF is important to you. We will share these contributions throughout the year on social media and additional DMRF communications.

You can submit a testimonial in one of two ways: 1. video or 2. typed comments.

Option 1: Submit a Video Message:

Share your video via Facebook, Instagram (@dystoniamrf), or Twitter (@dmrf) with the hashtag #DMRF45.

Or click here to upload a video.

Please review theses video guidelines & tips before sending your video:

  • Begin your video by identifying yourself: “My name is [name] and I live in [location]. The Dystonia Medical Research Foundation is important to me because…”
  • If you are recording on a phone, hold the phone horizontally (the long way) instead of vertically.
  • Pause for 3 seconds at the beginning (before speaking) and end of your video (after you finish speaking).
  • Limit your video message to a minute or less.
  • Try to use non-distracting backgrounds, without a lot of objects or clutter.
  • Make sure your light source is in front of you, not behind you. Natural lighting is often best, if possible. Do not film with a lit window directly behind you or you may be shown in silhouette.
  • If needed, use a tripod or steady surface, or ask someone to act as your ‘camera person’ to assist with recording.
  • Find a quiet environment with little to no background noise. You can usually obtain great audio without the need for any additional microphones in a closed room.
  • Position yourself close to the camera microphone, so the audio is strong.

Option 2: Submit a Typed Message:

Click here to send typed message.

PLEASE NOTE: By submitting a video or typed message, you authorize the Dystonia Medical Research Foundation (DMRF) to use your name, likeness, and/or testimonial for any awareness or educational content produced by DMRF.

Questions or issues? Contact us. Thank you for your support!

The Dystonia Medical Research Foundation is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families.