Finding Support
Search for a Support Group in Your Local Area
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Atlanta Dystonia Support Group
Contact Name:
Kathy Ray
State:
Georgia
Phone:
404-274-5934
Email:
Website:
Visit the group’s Facebook page.
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Central Indiana Dystonia Support Group
Contact Name:
Sarah Ernstberger
State:
Indiana
Phone:
317-577-8410
Email:
Website:
Visit the group’s Facebook page.
Additional Contact Name:
Sunshine Fox
Additional Contact Phone:
317-435-7713
Additional Contact Email:
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Colorado Dystonia Support Group in Denver & Colorado Springs
Contact Name:
Paul Kavanaugh
State:
Colorado
Phone:
719-351-0420
Email:
Website:
Visit the group’s Facebook page.
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East Central Iowa Corridor Area Contact
Contact Name:
Sheila Killham
State:
Iowa
Phone:
Text to 319-521-5055
Email:
Website:
Visit the group’s Facebook page.
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Greater Boston Dystonia Support Group
Contact Name:
Mary Letson
State:
Massachusetts
Phone:
617-281-6440
Email:
Additional Contact Name:
Linda Cline
Additional Contact Phone:
617-240-2735
Additional Contact Email:
[email protected] or call 617-240-2735
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Los Angeles Dystonia Support Group
Contact Name:
Von Cashman
State:
California
Phone:
562-335-3422
Email:
Website:
Visit the group’s Facebook page.
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Metro Detroit Dystonia Support Group
Contact Name:
Bill Aemisegger
State:
Michigan
Phone:
586-232-5028
Email:
Website:
Visit group’s web page.
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Michigan Dystonia Support Group
Contact Name:
Kim Robinson
State:
Michigan
Phone:
248-404-5035
Email:
Website:
Visit the group’s Facebook page.
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Minnesota Dystonia Support Group
Contact Name:
Brad Schmitt
State:
Minnesota
Email:
Website:
Visit the group’s Facebook page.
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Nebraska Dystonia Support Group
Contact Name:
Haley Brock
State:
Nebraska
Phone:
801-884-9569
Email:
Website:
Visit the group’s Facebook page.
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North Carolina Dystonia Support Group
Contact Name:
Crystal Edmonds
State:
North Carolina
Phone:
910-728-6142
Email:
Website:
Visit the group’s Facebook page.
Additional Contact Name:
Jody Robson
Additional Contact Phone:
919-395-9085
Additional Contact Email:
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NYC Dystonia Support Group
Contact Name:
Margaux Galli
State:
New York
Email:
Additional Contact Name:
Joan Miravite, NP, DNP
Additional Contact Phone:
212-844-6075
Additional Contact Email:
[email protected] or call 212-844-6075
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Portland, OR & Southwest WA Support Group
Contact Name:
Dee Linde
State:
Oregon
Phone:
503-351-4204
Email:
Website:
Visit the group’s Facebook page.
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Rochester, NY Dystonia Support Group
Contact Name:
Lauren Jackson
State:
New York
Phone:
585-341-7515
Email:
Website:
Visit the group’s Instagram page.
Additional Contact Name:
Naomi Taggart
Additional Contact Phone:
585-274-0204
Additional Contact Email:
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Support and Advocacy Group of San Diego County
Contact Name:
Martha Murphy
State:
California
Phone:
619-582-1961
Email:
Website:
Visit the group’s webpage.
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Utah Dystonia Support Group
Contact Name:
Haley Brock
State:
Utah
Phone:
801-884-9569
Email:
Website:
Visit the group’s Facebook page.
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Western Pennsylvania Dystonia Support Group
Contact Name:
Ed Cwalinski
State:
Pennsylvania
Phone:
412-657-7362
Email:
Website:
Visit the group’s Facebook page.
Additional Contact Name:
MaryRae Nee
