The 1st Boston Dystonia Zoo Day took place on Saturday, September 17th, followed by the 7th Pittsburgh Dystonia Zoo Day on Sunday, September 18th. Each event united the local dystonia community in support of the DMRF mission to find a dystonia cure. In Boston, DMRF past President Art Kessler presented Dr. Xandra Breakefield of Massachusetts […]
The Pamela Sloate Bronx Dystonia Zoo Day to benefit the DMRF took place Saturday, September 10th. This is the sixth year of the event, and the first since it was renamed to honor DMRF Board Member Pamela Sloate who died from cancer in April. Pamela previously served as Chair of the planning committee, a role […]
Boston University Stepp Lab researches various voice and sensorimotor disorders. They hope to help guide new and existing forms of therapy. They are creating more objective measures to diagnose and assess the severity of adductor spasmodic dysphonia/laryngeal dystonia. They want to better understand the nature of SD/LD and how treatments impact symptoms. Currently, they have […]
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