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Posts
- “Detectives” Hunt Indianapolis for Dystonia Cure (October 2, 2018)
- 1st Dystonia Day at San Diego Zoo Raises Awareness & Funds for Research (November 5, 2018)
- Self-Care for the Holidays (December 4, 2018)
- RGS9-2 Protein Corrects Dopamine Imbalance in DYT1 Dystonia Models (December 21, 2018)
- Groundbreaking Investigations Seek Cure for Disabling Childhood Dystonia (December 27, 2018)
- On Target: Drug Discovery Efforts Pursue New & Improved Treatment (March 4, 2019)
- DMRF Welcomes New Scientific Director (March 5, 2019)
- Cross-Disciplinary Projects Explore Dystonia Brain Networks to Improve Diagnosis & Treatment (March 13, 2019)
- DMRF Tackles Urgent Need for Movement Disorder Specialists (March 20, 2019)
- Cervical Dystonia Study in Need of Volunteers (March 22, 2019)
- Researchers Need Adult & Child Volunteers (April 2, 2019)
- Right-Handed Cervical Dystonia Patients Needed for Study (April 16, 2019)
- 100+ Support Nashua Dystance4Dystonia Walk for a Cure (May 6, 2019)
- Botulinum Neurotoxin Therapy Survey (May 20, 2019)
- FDA Approves Xeomin® as First-Line Treatment for Focal Eye Dystonia (June 17, 2019)
- Register for 6th International Dystonia Symposium (July 18, 2019)
- Everybody’s Zooing It! Thousands Attend Dystonia Zoo Walks to Find a Cure (July 29, 2019)
- Eyes on Me: Dystonia & Social Anxiety (August 1, 2019)
- Video Contest: “How I Explain Dystonia” (August 28, 2019)
- September is Dystonia Awareness Month (September 1, 2019)
- Local Communities Unite to Raise Dystonia Awareness & Funds for Cure (September 5, 2019)
- Buffalo Bills Support Dystonia Awareness Events (September 9, 2019)
- Triple Header Dystonia Zoo Walks Raise Awareness & Funds for Research (September 10, 2019)
- Providence Zoo Walk Marks 5th Anniversary (September 16, 2019)
- Survey: Dystonia & Mental Health (September 19, 2019)
- Double Dystonia Zoo Walk Weekend Raises Awareness & Funds for Medical Research (September 23, 2019)
- Hunt for a Dystonia Cure is On in Indianapolis (September 29, 2019)
- 1st Toledo Dystonia Zoo Walk Raises Awareness & Research Funds (October 15, 2019)
- Cheri Tannenbaum’s Memoir Shares Philosophy for Living Well (October 25, 2019)
- Basket Bash Marks 14 Years of Raising Dystonia Awareness & Research Funds (October 30, 2019)
- One Wild Year: Phoenix & Los Angeles Host Final Dystonia Zoo Walks of 2019 (November 12, 2019)
- Non-Invasive Brain Stimulation Therapies Offer New Therapeutic Opportunities (November 20, 2019)
- What Makes You Stronger: Mother & Daughter Reflect on Family Legacy of Living Beyond Dystonia (November 20, 2019)
- DMRF Earns Top Rating from Charity Navigator (December 1, 2019)
- Dystonia Community Mourns Sesame Street Icon Caroll Spinney (December 9, 2019)
- DMRF Salutes Grammys for Nominating Alex Klein’s First Album since Demise of Performing Career due to Focal Dystonia (December 30, 2019)
- More than a Movement Disorder: Non-Motor Dystonia Symptoms (January 5, 2020)
- Dystonia & Sleep (March 1, 2020)
- Naturally Curious: An Integrative Approach to Treating Dystonia (March 6, 2020)
- Maintaining Social Connection (March 16, 2020)
- Tips for Self-Care in Stressful Times (March 28, 2020)
- Quick Questions with Chief Scientific Advisor Dr. Jan Teller (April 6, 2020)
- 40+ Years of DMRF Research Achievements (April 13, 2020)
- Dystonia Medical Research Foundation Recognized by HSN Cares During Annual $1,000 A Day Giveaway Campaign (April 23, 2020)
- Mindfulness Meditation with Dr. Karen Ross (April 23, 2020)
- Dystonia & COVID-19: Your Questions Answered (April 24, 2020)
- Promote Dystonia Awareness While Following Health Recommendations (May 5, 2020)
- Benefits of Exercise for Dystonia are Physical & Emotional (June 22, 2020)
- Study Examines Massage Therapy for Dystonia (July 28, 2020)
- DMRF Research Grants Fund Diverse Investigations into Dystonia Origins (July 31, 2020)
- Dystonia Community Mourns Legendary Pianist Leon Fleisher (August 7, 2020)
- Greetings from National Sponsors (August 17, 2020)
- New Grant Explores Patient Response to Alcohol in Myoclonus-Dystonia (October 25, 2020)
- Gone Viral: Stories from the Dystonia Community in a Pandemic (October 26, 2020)
- Quick Facts about Botulinum Neurotoxin Injections (October 26, 2020)
- Musicians With Dystonia Renamed to Honor Leon Fleisher (October 27, 2020)
- Dystonia Genes Converge in Specific Neurons & Intersect Underlying Genetic Basis of Psychiatric Disorders (November 4, 2020)
- New AI Platform Diagnoses Focal Dystonia with High Accuracy in Less Than One Second (November 4, 2020)
- Dystonia Coalition Natural History Study Sheds Light on Dystonia Symptom Spread (November 16, 2020)
- Legacy Society Honors Visionary Donors (November 25, 2020)
- Dystonia: Frequently Asked Questions (February 1, 2021)
- Become a Dystonia Advocate (February 3, 2021)
- Journeys into Parenthood (April 26, 2021)
- Dystonia, Depression & Anxiety (April 27, 2021)
- DMRF Launches First Scientific Journal Dedicated to Dystonia (April 30, 2021)
- What is a Physical Medicine & Rehabilitation Physician? (April 30, 2021)
- DMRF-Funded Investigators Develop New Approach to Studying Motor Control (May 21, 2021)
- TorsinA Restoration in DYT1 Dystonia Model Identifies a Critical Therapeutic Window (June 24, 2021)
- High Impact Exercise More Likely to Worsen Dystonia (July 8, 2021)
- Building a Multi-Level Support System (July 30, 2021)
- Accelerating Advancements in Deep Brain Stimulation (July 30, 2021)
- Creative Coping: Tips & Tricks for Daily Life (August 12, 2021)
- New Dystonia Drug Candidates Discovered (September 1, 2021)
- Co-Founder Frances Belzberg Appointed to the Order of British Columbia (September 5, 2021)
- Mental Health Resources (September 10, 2021)
- Virtual Dystonia Zoo Day Highlights (September 25, 2021)
- Dystonia Researcher Awarded $11.9 Million NIH Grant to Lead New Center for Neurological Voice Disorders (September 30, 2021)
- Individuals with Dystonia Needed for Brain Function Study (October 4, 2021)
- Discovery Begins with Imagination (November 19, 2021)
- The Singing Chef Andy LoRusso Cooks to Support DMRF (December 22, 2021)
- $5Cure4Dystonia Raises $100K+ for Medical Research (January 25, 2022)
- Not Born Yesterday: Dystonia & Aging (January 30, 2022)
- Family Healing in Living with Dystonia (January 31, 2022)
- Sydney Peterson Competes in Beijing Paralympic Winter Games (February 22, 2022)
- DMRF Announces New Board Slate & Union with Cure Dystonia Now (February 22, 2022)
- Take Action to Educate Elected Officials about Dystonia (February 24, 2022)
- New Consensus Guidelines for Botulinum Neurotoxin Therapy for Dystonia & Spasticity (March 29, 2022)
- Tips on Finding a Doctor (March 29, 2022)
- DMRF Research Awards Advance Understanding of Dystonia (April 14, 2022)
- Nashua Dystance4Dystonia 5K Returns (May 18, 2022)
- Investigating Dystonia Remission (June 1, 2022)
- Deep Dive into Oromandibular Dystonia (June 1, 2022)
- Making the Connection: Untangling Complex Neural Networks is Key to Solving Dystonia (June 1, 2022)
- DMRF’s Pamela Sloate Bronx Dystonia Zoo Day Named for Late Dystonia Advocate (June 2, 2022)
- Upcoming Dystonia Events – Join Us! (June 8, 2022)
- New Dystonia Strong Awareness Merchandise (June 8, 2022)
- Everybody’s Zoo-ing It: Dystonia Zoo Days Start August 18 (July 5, 2022)
- 9th Annual Rockin’ for a Cure Raises $147K for Dystonia Research (July 18, 2022)
- DMRF Co-Funds Dystonia Coalition Pilot Project Awards (August 3, 2022)
- DMRF Welcomes Allergan, an AbbVie Company as Returning National Sponsor of Dystonia Zoo Days (August 18, 2022)
- Dystonia Zoo Day Season Has Begun! (August 22, 2022)
- 2nd Toledo Zoo Day Promotes Dystonia Awareness & Unites Community (August 30, 2022)
- September is Dystonia Awareness Month (September 1, 2022)
- DMRF Formalizes Commitment to Mental Health (September 1, 2022)
- In Memoriam: Blair Ford, MD (September 2, 2022)
- Living with Cervical Dystonia (September 9, 2022)
- Volunteers with Laryngeal Dystonia Needed (September 13, 2022)
- Pamela Sloate Bronx Dystonia Zoo Day Reunites Community & Supports Research (September 13, 2022)
- Dystonia Zoo Days Draw Crowds in Boston and Pittsburgh (September 22, 2022)
- H.Res. 1413 Recognizes Dystonia Awareness Month (October 4, 2022)
- Dystonia Zoo Days Close Out Awareness Month (October 6, 2022)
- DMRF Events Unite Community Virtually & In-Person (October 13, 2022)
- DMRF Research Awards Advance Understanding of Dystonia (April 13, 2023)
- Bid It Up for Dystonia Auction Preview is Open! (April 13, 2023)
- Dystonia Symposium in Dublin, Ireland, June 1-3, 2023 (May 31, 2023)
- Yips and Focal Dystonia (June 16, 2023)
- Dystonia Zoo Days Successfully Launches in Twin Cities, Uniting Communities for Dystonia Awareness (June 29, 2023)
- Sign Up for Dystonia Zoo Day in Bridgeport, CT (July 21, 2023)
- September is Dystonia Awareness Month (August 5, 2023)
- Dystonia Awareness Month for Leaders (August 9, 2023)
- Check out the 2023 Summer Dystonia Dialogue (August 12, 2023)
- Service Dogs Can Change Lives for Those with Dystonia (August 29, 2023)
- Thanks to St. Louis for Dystonia Zoo Day (September 1, 2023)
- 2023 Angels Walk Update (September 21, 2023)
- Mental Health Care Provider Overview for Dystonia (September 26, 2023)
- Dystonia Zoo Days Held in Ft. Wayne and Toledo (September 26, 2023)
- Boston Dystonia Zoo Day Closes Out Awareness Month (October 18, 2023)
- Chicago Dystonia Zoo Day Recognizes Local Researcher (October 18, 2023)
- 4th Virtual Dystonia Zoo Day Unites the Community (October 18, 2023)
- Jason Dunn Gets Street Named in His Honor (November 20, 2023)
- Tips for Managing Holiday Stress With Dystonia (December 1, 2023)
- Focus On: DYT1 Dystonia (December 6, 2023)
- DMRF Announces 2024 Grant and Fellowship Recipients to Propel Dystonia Research (April 1, 2024)
- Dr. Mahlon DeLong’s Legacy Lives On Through the Dystonia Community (May 24, 2024)
- Thank You Portland! (July 29, 2024)
- Thank You for Promoting National Dystonia Awareness Month! (October 3, 2024)
- DMRF Announces RFAs for 2025 Funding Opportunities (October 3, 2024)
- Architectural Designs Has Plan to Support DMRF (October 3, 2024)
Pages
- Home (February 26, 2015)
- About Us (May 10, 2015)
- What is Dystonia? (May 11, 2015)
- Newly Diagnosed (September 24, 2018)
- Dystonia Basics (September 24, 2018)
- Symptoms & Classifications (September 24, 2018)
- Types of Dystonia (September 24, 2018)
- Cervical Dystonia (October 31, 2018)
- Blepharospasm (October 31, 2018)
- Oromandibular Dystonia (November 1, 2018)
- Spasmodic Dysphonia (November 2, 2018)
- Hand Dystonia (November 2, 2018)
- Lower Limb Dystonia (November 2, 2018)
- Generalized Dystonia (November 2, 2018)
- Dopa-Responsive Dystonia (November 6, 2018)
- Myoclonus-Dystonia (November 6, 2018)
- Neurological & Metabolic Disorders (November 6, 2018)
- Toxins (November 6, 2018)
- Traumatic Injury (November 6, 2018)
- Paroxysmal Dystonia & Dyskinesias (November 6, 2018)
- Pediatric Dystonia (November 9, 2018)
- Drug-Induced Dyskinesias & Dystonia (December 3, 2018)
- Musician’s Dystonia (December 3, 2018)
- X-linked Dystonia-Parkinsonism (December 5, 2018)
- Rapid-onset Dystonia Parkinsonism (December 5, 2018)
- Secondary Dystonias (December 5, 2018)
- Musicians With Dystonia Renamed (October 20, 2020)
- Functional Dystonia (May 19, 2021)
- Genetics (September 24, 2018)
- Download Materials (September 25, 2018)
- Common Misunderstandings (November 28, 2018)
- Frequently Asked Questions (November 29, 2018)
- Calendar (May 11, 2015)
- Merchandise & Brochures (September 19, 2018)
- Cart (September 19, 2018)
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- My account (September 19, 2018)
- Template (September 24, 2018)
- Get Involved (September 25, 2018)
- Events (October 1, 2018)
- Phoenix Educational Meeting (October 1, 2018)
- Cleveland Educational Meeting (October 1, 2018)
- Northwest Regional Meeting (October 2, 2018)
- Boston Educational Meeting (October 2, 2018)
- St. Louis Educational Meeting (October 2, 2018)
- Nashua Dystance4Dystonia Donations (February 14, 2020)
- SB Squares for Dystonia (January 24, 2022)
- Bid it Up for Dystonia (December 28, 2022)
- Angels Walk for Dystonia (March 8, 2023)
- Lolly Lardpop’s Fundraiser for DMRF (November 30, 2023)
- Dystonia Warrior Ride (January 30, 2024)
- Hunt for a Dystonia Cure (August 2, 2024)
- Register as a Brain Donor (November 9, 2018)
- Email Sign Up (December 4, 2018)
- Dystonia Advocacy Network (December 4, 2018)
- Video Contest (August 8, 2019)
- Dystonia Strong (July 8, 2022)
- Research (September 25, 2018)
- Research Overview 101 (October 2, 2018)
- Research Impact (October 2, 2018)
- Current Projects (October 2, 2018)
- Clinical Fellowship Program (October 2, 2018)
- Research Funding Programs (October 2, 2018)
- Dystonia Coalition (October 2, 2018)
- Dystonia Study Group (October 2, 2018)
- Global Dystonia Registry (October 2, 2018)
- Conversations with Investigators (November 6, 2018)
- Accomplishments & Milestones in Research (November 13, 2018)
- Resources for Investigators (November 29, 2018)
- Joan Miller Young Investigator Scholarship Award (March 4, 2020)
- Untangling Complexity of Dystonia: Report (March 17, 2020)
- Dystonia Journal (May 6, 2021)
- Embed Link (October 2, 2018)
- Living with Dystonia (October 2, 2018)
- Support Groups (October 2, 2018)
- Find Support (October 2, 2018)
- Find a Doctor (October 2, 2018)
- Treatment (October 2, 2018)
- Emotional & Mental Health (October 2, 2018)
- Resources for Parents (October 2, 2018)
- Online (October 11, 2018)
- Submit a Doctor (October 17, 2018)
- Taking Charge of Your Care (November 9, 2018)
- Event or Meeting Submission (January 7, 2019)
- What is a Movement Disorder Specialist? (November 4, 2020)
- Resources for Mental Health Professionals (September 8, 2022)
- Better Questions Better Outcome (June 6, 2023)
- Directory (October 2, 2018)
- Directory Dashboard (October 2, 2018)
- Add Listing (October 2, 2018)
- Privacy (October 3, 2018)
- Terms (October 3, 2018)
- Donate (November 7, 2018)
- Donation Confirmation (November 28, 2018)
- Donation Failed (November 28, 2018)
- Donation History (November 28, 2018)
- Recurring Donations (November 28, 2018)
- Calendar (December 12, 2018)
- Friends (December 12, 2018)
- Miles4Movement – TCS NYC Marathon (December 12, 2018)
- Amanda Lockhead – The March to End Dystonia (March 21, 2019)
- Jirome DeCastro – OC & Chicago Marathons (April 3, 2019)
- Lance Howitt Birthday Fundraiser (May 29, 2019)
- NDR Fund – 2019 Fundraiser (June 11, 2019)
- Ali’s ZooGooders (July 9, 2019)
- The Martin & Roberta Sloate Dystonia Research Fund (August 19, 2019)
- Jen Devore – Wineglass Marathon (September 9, 2019)
- David Firer – Massapequa Turkey Trot (November 5, 2019)
- Chef Elena (October 12, 2020)
- Chef Dani (October 12, 2020)
- Chef Scott (October 12, 2020)
- Chef Adrienne (October 12, 2020)
- Chef Jill (October 12, 2020)
- Dish for Dystonia Donation (October 16, 2020)
- Keith Emerson Fund (January 14, 2021)
- Tom Wilson Memorial Fund (June 11, 2021)
- Lena V. Pentangelo Memorial Fund (July 19, 2021)
- It’s All Relative (August 3, 2021)
- Kit Smith – Going Vertical for Dystonia (August 11, 2021)
- Tom and Connor Ahern are Running for the DMRF (October 1, 2021)
- Mark Donovan (October 18, 2021)
- Cure Dystonia Now Fund (December 16, 2021)
- Tributes for Margaret (Meg) Shorten (July 17, 2023)
- Ft. Wayne Dystonia Zoo Day (August 7, 2023)
- Tributes for Martin ‘Marty’ Ohlhausen (August 22, 2023)
- Stefanie Barbieri (January 30, 2024)
- Delaney Sondag (September 4, 2024)
- 2024 Pet Palooza Registration (December 18, 2018)
- Shopping (July 24, 2019)
- Facebook & Instagram Fundraisers (July 24, 2019)
- Dystonia Social Network Activity (November 14, 2019)
- Members (November 14, 2019)
- Register (November 18, 2019)
- Activate (November 18, 2019)
- Groups (November 18, 2019)
- Dystonia Social Network (November 26, 2019)
- Original Dystonia Bulletin Boards (December 2, 2019)
- Support Leader Webinars (December 10, 2019)
- Social Media Fundraisers (December 20, 2019)
- Dystonia Social Network Logged In (January 8, 2020)
- Start a Fundraiser (January 14, 2020)
- Dish for Dystonia (May 28, 2020)
- FAQ Virtual Dystonia Zoo Day (September 9, 2020)
- Do I Have Cervical Dystonia? (January 20, 2021)
- Valentine E-Cards (March 15, 2021)
- Donor Dashboard (April 1, 2021)
- Donor Dashboard (April 8, 2021)
- Donor Dashboard (April 15, 2021)
- Marion IA Dog Walk 2021 Sponsorship (July 22, 2021)
- Discovery Begins with Imagination (October 28, 2021)
- Defining the Role of Brain Networks (November 4, 2021)
- Welcome to the DMRF (January 20, 2022)
- Test Instagram (February 14, 2022)
- 2024 Dystonia Pet Palooza (February 14, 2022)
- Pet Palooza – Willow (February 12, 2019)
- Pet Palooza – Snoopy (February 1, 2021)
- Pet Palooza – Mila (January 27, 2022)
- Pet Palooza – Murphy (January 4, 2023)
- Pet Palooza – Template (January 5, 2023)
- Pet Palooza – Mallomar (January 9, 2023)
- Pet Palooza – Lila (January 9, 2023)
- Pet Palooza – Haley (January 10, 2023)
- Pet Palooza – Fish (January 18, 2023)
- Pet Palooza – McKinley and Carter (January 19, 2023)
- Pet Palooza – Bentley & Emma (January 27, 2023)
- Pet Palooza – Jasper (January 27, 2023)
- Pet Palooza – Gordie & Rufus (January 30, 2023)
- Pet Palooza – Daisy,Oakley,Norie (January 30, 2023)
- Pet Palooza – Chloe (January 30, 2023)
- Pet Palooza – Latte and Pearl (January 30, 2023)
- Pet Palooza – Suki (January 30, 2023)
- Pet Palooza – Oliver,Remi,Lil Bit (January 30, 2023)
- Pet Palooza – JJ (January 30, 2023)
- Pet Palooza – Mishka (January 30, 2023)
- Pet Palooza – Otis (January 30, 2023)
- Pet Palooza – Penny and Jaidee (January 30, 2023)
- Pet Palooza – Rocco (January 30, 2023)
- Pet Palooza – Opie (January 30, 2023)
- Pet Palooza – Biscuit (January 30, 2023)
- Pet Palooza – Alphie and Kira (January 30, 2023)
- Pet Palooza – Lyric (January 30, 2023)
- Pet Palooza – Nova and Bruin (January 30, 2023)
- Pet Palooza – Lilly (January 30, 2023)
- Pet Palooza – Benny (February 2, 2023)
- Pet Palooza – Tobias and Oliver (February 2, 2023)
- Pet Palooza – Cooper (February 6, 2023)
- Pet Palooza – Molly (February 6, 2023)
- Pet Palooza – Lottie (February 7, 2023)
- Pet Palooza – Tortellini & My Girls (February 7, 2023)
- Pet Palooza – Finnigan (February 7, 2023)
- Pet Palooza – Rondo,Kula,Tua (February 8, 2023)
- Pet Palooza – Jaspurr (February 8, 2023)
- Pet Palooza – Chance (February 8, 2023)
- Pet Palooza – Charlie (February 9, 2023)
- Pet Palooza – Stella & Foxy (February 9, 2023)
- Pet Palooza – Foisty & Ashby (February 10, 2023)
- Pet Palooza – Pickles and Bella (February 14, 2023)
- Pet Palooza – Mukkada (February 14, 2023)
- Pet Palooza – iuma (February 15, 2023)
- Pet Palooza – Blue (February 16, 2023)
- Pet Palooza – Molly (February 16, 2023)
- Pet Palooza – Rafi (February 16, 2023)
- Pet Palooza – Sunshine & Dimitri (February 17, 2023)
- Pet Palooza – Remy (February 19, 2023)
- Pet Palooza – Scruffy (February 19, 2023)
- Pet Palooza – Cinder (February 23, 2023)
- Pet Palooza – Iris (February 28, 2023)
- Pet Palooza – Sadie (January 29, 2024)
- Pet Palooza – JJ & Kylie (January 29, 2024)
- Pet Palooza – Red (January 29, 2024)
- Pet Palooza – Dusty (January 30, 2024)
- Dystonia Pet Palooza – Coco (January 31, 2024)
- Dystonia Pet Palooza – Woody (February 1, 2024)
- Dystonia Pet Palooza – Mason (February 1, 2024)
- Dystonia Pet Palooza – Wilson (February 5, 2024)
- Dystonia Pet Palooza – Princess (February 5, 2024)
- Dystonia Pet Palooza – Kula, Chester, Harlow & Nelson (February 6, 2024)
- Dystonia Pet Palooza – Nacho & Missy (February 7, 2024)
- Pet Palooza – Cali (February 20, 2024)
- Pet Palooza – Maze (February 20, 2024)
- Pet Palooza – Meddy (February 20, 2024)
- Dystonia Pet Palooza – Maddi & Bailey (February 27, 2024)
- Dystonia Pet Palooza – Brush Creek Doodle Dogs (March 5, 2024)
- DMRF E-Cards (April 7, 2022)
- Pet Palooza – Kahlua (January 4, 2023)
- Dystonia Pet Palooza Merchandise (January 19, 2023)
- Matching Gifts (April 21, 2023)
- Let’s Party – With a Purpose (July 20, 2023)
- Jon Davis – #Riding4Us (July 20, 2023)
- Positive Altitude (September 7, 2023)
- Lina Aghdamilian (October 4, 2023)
- $5CURE4DYSTONIA (November 14, 2023)
- SResults (March 5, 2024)
- Dystonia Dialogue (April 2, 2024)
- 2023AR (May 18, 2024)
- Science Events – Internation Symposium (May 31, 2024)
- The 1919 is Supporting DMRF & William K (June 13, 2024)
- Test Donation Form (October 4, 2024)
Directory
- Central Connecticut Dystonia Support Group (October 12, 2018)
- Birmingham, AL Dystonia Support Group (October 12, 2018)
- CO Dystonia Support Group in Denver & Colorado Springs (October 12, 2018)
- Fairfield, CA Dystonia Support Group (October 12, 2018)
- Greater Washington DC Dystonia Support Group (October 12, 2018)
- Hudson Valley, NY Dystonia Outreach and Support Group (October 12, 2018)
- Los Angeles Dystonia Support Group (October 12, 2018)
- Minnesota Dystonia Support Group (October 12, 2018)
- Central Oregon Dystonia Support Group (October 12, 2018)
- Quad-Cities Support Group (October 12, 2018)
- Arizona Dystonia Support Group (October 12, 2018)
- Support and Advocacy Group of San Diego County (October 12, 2018)
- Contact the DMRF for Assistance – VT (October 12, 2018)
- Regional Coordinator – Northwest (October 12, 2018)
- North Georgia Dystonia Support Group (October 12, 2018)
- Dystonia Support Group of New Mexico & SW Texas (October 12, 2018)
- Regional Coordinator – Northwest (October 12, 2018)
- Western Pennsylvania Dystonia Support Group (October 12, 2018)
- South Carolina Dystonia Support Group (October 12, 2018)
- Southeast Pennsylvania Support Group (October 12, 2018)
- Portland, OR & Southwest WA Support Group (October 12, 2018)
- Contact the DMRF for Assistance – WV (October 12, 2018)
- Contact the DMRF for Assistance – WI (October 12, 2018)
- Utah Dystonia Support Group (October 12, 2018)
- Regional Coordinator – South Central (October 12, 2018)
- Regional Coordinator – Pacific (October 12, 2018)
- Rhode Island Area Contact (October 12, 2018)
- Greater Washington DC Dystonia Support Group (MD) (October 12, 2018)
- Regional Coordinator – Pacific (October 12, 2018)
- Contact the DMRF for Assistance – WY (October 12, 2018)
- Contact the DMRF for Assistance – MS (October 12, 2018)
- NYC Dystonia Support Group (October 12, 2018)
- East Central Iowa Corridor Dystonia Support Group (October 12, 2018)
- Roanoke, Virginia Support Group (October 12, 2018)
- Michigan Tri-Cities Dystonia Support Group (October 12, 2018)
- Contact the DMRF for Assistance – SD (October 12, 2018)
- Area Contact – Shreveport, LA (October 12, 2018)
- Tulsa, OK Dystonia Support Group (October 12, 2018)
- Contact the DMRF for Assistance – IL (October 12, 2018)
- Central Indiana Dystonia Support Group (October 12, 2018)
- Greater Boston Dystonia Support Group (October 12, 2018)
- Dystonia Support Group of New Mexico & SW Texas (October 12, 2018)
- Dystonia Support Group of the Ozarks (March 6, 2019)
- Dystonia Support Group of Greater Cleveland (March 6, 2019)
- St. Louis Dystonia Support Group (April 2, 2019)
- San Joaquin County Support Group (June 5, 2019)
- Atlanta Dystonia Support Group (November 25, 2019)
- Nevada Dystonia Support Group (November 25, 2019)
- Dystonia Support Group of Keene, NH (January 9, 2020)
- Metro Detroit Dystonia Support Group (May 15, 2020)
- Houston Dystonia Support Group (June 16, 2020)
- North Carolina Dystonia Support Group (November 25, 2020)
- Nebraska Dystonia Support Group (July 23, 2021)
- Dystonia Support Group of North Dakota (February 23, 2022)
- Contact the DMRF for Assistance – FL (February 1, 2023)
- Contact DMRF for assistance – DE (February 1, 2023)
- Contact the DMRF for Assistance – NJ (February 1, 2023)
- Contact the DMRF for Assistance – TN (March 3, 2023)
- Rochester, NY Dystonia Support Group (May 4, 2023)
- Dystonia Support Group of Kentuckiana (July 11, 2023)
- Seattle Dystonia Support Group (August 2, 2023)
- Central Ohio Dystonia Support Group (September 29, 2023)
- Greater Richmond Area Dystonia Support Group (May 14, 2024)
Products
- Valentine Dog Bone Food Mat (September 25, 2018)
- Dystonia Ribbon Lapel Pin (September 25, 2018)
- Dogs4Dystonia Dog Collar (September 25, 2018)
- Never Look Down – Children’s Book (September 25, 2018)
- Dystonia A Movement Disorder Brochure (September 25, 2018)
- Awareness Wallet Cards & Stickers (September 25, 2018)
- DMRF Moving Toward a Cure Brochure (September 25, 2018)
- Understanding Dystonia Fact Sheet (September 25, 2018)
- Blepharospasm Brochure (September 25, 2018)
- Cervical Dystonia/Spasmodic Torticollis Brochure (September 25, 2018)
- Functional/Psychogenic Dystonia Brochure (September 25, 2018)
- Lower Limb Dystonia Brochure (September 25, 2018)
- Oromandibular Dystonia Brochure (September 25, 2018)
- Generalized Dystonia Brochure (September 25, 2018)
- Spasmodic Dysphonia Brochure (September 25, 2018)
- Botulinum Neurotoxin Therapy Brochure (September 25, 2018)
- Finding Support (September 25, 2018)
- DMRF Wallet Info Cards (Pack of 5) (September 25, 2018)
- Genetics of Dystonia Fact Sheet (September 25, 2018)
- DMRF 3-Fold Card (September 25, 2018)
- Legacy Society Brochure (September 25, 2018)
- Red Light Green Light (September 25, 2018)
- Hand Dystonia Brochure (January 9, 2019)
- Deep Brain Stimulation for Dystonia Brochure (February 11, 2019)
- Good Dog Mini Tote Bag (May 21, 2019)
- Let’s Talk Dystonia Popsocket (July 23, 2019)
- Mystery T-Shirt (July 23, 2019)
- Dystonia Information Kit (December 20, 2019)
- Sample Newsletter (December 20, 2019)
- Nashua Dystance4Dystonia 5k Walk Run for Dystonia (February 14, 2020)
- DMRF Awareness Face Mask (April 30, 2020)
- Cervical Dystonia Info Kit (February 5, 2021)
- DMRF Tote Bag (April 27, 2021)
- DMRF Water Bottle (April 27, 2021)
- Dogs for Dystonia Treat Pouch (May 14, 2021)
- Dogs for Dystonia Bag Dispenser (May 14, 2021)
- Dystonia Moves Me Awareness Packs (February 24, 2022)
- Dystonia Strong Shirt (May 20, 2022)
- Dystonia Strong Yard Flag (May 20, 2022)
- Dystonia Strong Banner (May 20, 2022)
- Dystonia Strong Notecards (June 8, 2022)
- Dystonia Strong Magnet (June 8, 2022)
- 2022 Virtual Dystonia Zoo Day T-Shirt (November 3, 2022)
- DMRF Neck Pillow (December 1, 2022)
- Dystonia Pet Palooza Fleece Blanket (January 19, 2023)
- Pet Palooza Magnet (January 20, 2023)
- Pet Palooza Sticker (January 27, 2023)
- Dogs for Dystonia Dog Tag (January 27, 2023)
- Pet Palooza Baseball Cap (February 14, 2023)
- License Plate Frame (March 1, 2023)
- Dystonia Awareness Month Sticker – Ask Me Why (Pack of 5) (August 5, 2023)
- Dystonia Awareness Month Sticker 2023 (Pack of 5) (August 5, 2023)
- Dystonia Awareness Month Sticker – Ask Me Why (Pack of 5) 2nd Edition (August 15, 2023)
- Living with Dystonia Thriving with Hope – Sticker (August 30, 2023)
- I am a Dystonia Warrior – Sticker (August 31, 2023)
- Research Rocks – Sticker (September 2, 2023)
- Shaken Not Broken – Sticker (September 2, 2023)
- Sticker Variety Pack (September 2, 2023)
- Dystonia Warrior Canvas Bag (September 15, 2023)
Events
- Dystonia Support & Advocacy Group of San Diego County Meeting (December 12, 2018)
- Hudson Valley NY Dystonia Support Group (December 12, 2018)
- Connecticut Dystonia Support Group Meeting (December 12, 2018)
- Twin Cities Dystonia Zoo Day (December 12, 2018)
- Los Angeles Dystonia Support Group Meeting (December 12, 2018)
- Minnesota Dystonia Support Group Meeting (December 12, 2018)
- Dothan, AL Dystonia Support Group Meeting (December 12, 2018)
- Dystonia Education & Support Group of the Mid-South Meeting (Memphis, TN) (December 12, 2018)
- North Bay, CA Dystonia Support Group Meeting (December 12, 2018)
- Dystonia Advocacy Day (December 12, 2018)
- Dothan, AL Dystonia Support Group Meeting (December 12, 2018)
- Houston Dystonia Support Group Meeting (December 12, 2018)
- Los Angeles Dystonia Support Group Meeting (December 12, 2018)
- Los Angeles Dystonia Support Group Meeting (December 12, 2018)
- North Carolina Dystonia Support Group Meeting (December 12, 2018)
- North Carolina Dystonia Support Group Meeting (December 12, 2018)
- Minnesota Dystonia Support Group Meeting (December 12, 2018)
- Houston Dystonia Support Group Meeting (December 12, 2018)
- Minnesota Dystonia Support Group Picnic/Meeting (December 12, 2018)
- Houston Dystonia Support Group Meeting (December 12, 2018)
- Nebraska Dystonia Support Group Meeting (December 12, 2018)
- North Carolina Dystonia Support Group Meeting (December 12, 2018)
- Nebraska/Utah Dystonia Support Group Meeting (December 12, 2018)
- Florida Dystonia Support Group Meeting (December 12, 2018)
- Houston Dystonia Support Group Meeting (December 12, 2018)
- Maine Dystonia Support Group Meeting (December 12, 2018)
- Seattle Dystonia Support Group Meeting (December 12, 2018)
- Dystonia Support Group of Kentuckiana (December 12, 2018)
- Dystonia Support Group of Kentuckiana (December 12, 2018)
- Dystonia Support Group of Kentuckiana (December 12, 2018)
- Dystonia Support Group of Kentuckiana (December 12, 2018)
- Hudson Valley, NY Dystonia Support Group (December 12, 2018)
- Lansing Dystonia Zoo Day (December 12, 2018)
- Nevada Dystonia Support Group (December 12, 2018)
- Nevada Dystonia Support Group (December 12, 2018)
- Nevada Dystonia Support Group (December 12, 2018)
- Fairfield, CA Dystonia Support Group Picnic (December 27, 2018)
- South Carolina Dystonia Support Group Meeting (December 27, 2018)
- Central IN Dystonia Support Group Meeting (December 27, 2018)
- NYC Dystonia Support Group Meeting (December 27, 2018)
- Fairfield, CA Dystonia Support Group (December 27, 2018)
- NYC Dystonia Support Group Meeting (December 27, 2018)
- NYC Dystonia Support Group Meeting (December 27, 2018)
- NYC Dystonia Support Group Meeting (December 27, 2018)
- Nashua Dystance4Dystonia 5k Walk Run for Dystonia (February 15, 2019)
- Dystonia Warrior Ride (February 15, 2019)
- Angels Walk for Dystonia (February 15, 2019)
- Greater Washington, DC Dystonia Support Group (February 20, 2019)
- Weill Cornell Dystonia Support Group (February 20, 2019)
- Arizona Dystonia Support Group Meeting (February 20, 2019)
- Tucson, AZ Dystonia Support Group Meeting (February 20, 2019)
- **CANCELLED** Tucson, AZ Dystonia Support Group Meeting (February 20, 2019)
- Central Oregon Dystonia Support Group Meeting (February 20, 2019)
- Central Oregon Dystonia Support Group Meeting (February 20, 2019)
- Central Oregon Dystonia Support Group Gathering (February 20, 2019)
- Central Oregon Dystonia Support Group Meeting (February 20, 2019)
- Central Oregon Dystonia Support Group Meeting (February 20, 2019)
- Southeastern Pennsylvania Dystonia Support Group Meeting (February 20, 2019)
- Portland, OR & Southwest WA Dystonia Support Group Meeting (February 20, 2019)
- Dystonia Support Group of Greater Cleveland Meeting (February 22, 2019)
- Central Ohio Dystonia Support Group Meeting (February 22, 2019)
- Greater Richmond Area Dystonia Support Group Meeting (February 22, 2019)
- Greater Richmond Area Dystonia Support Group Meeting (February 22, 2019)
- Minnesota Dystonia Support Group Gathering (February 22, 2019)
- CANCELLED: East Central Iowa Corridor Dystonia Support Group Meeting (February 22, 2019)
- Central Indiana Dystonia Support Group Meeting (February 22, 2019)
- East Central Iowa Corridor Dystonia Support Group Meeting (February 22, 2019)
- St. Louis Dystonia Support Group Meeting (April 2, 2019)
- St. Louis Dystonia Support Group Meeting (April 2, 2019)
- Roanoke, VA Dystonia Support Group Meeting (April 4, 2019)
- Colorado Dystonia Support Group Meeting (April 26, 2019)
- South Carolina Dystonia Support Group Meeting (May 10, 2019)
- Greater Boston Dystonia Support Group Meeting (May 13, 2019)
- Greater Boston Dystonia Support Group Meeting (May 13, 2019)
- CANCELLED: Greater Boston Dystonia Support Group Meeting (May 13, 2019)
- Dyscoveries Dystonia Support Group of Spokane, WA Meeting (May 13, 2019)
- Rochester, NY Dystonia Support Group Meeting (May 13, 2019)
- Dystonia Support & Advocacy Group of San Diego County Meeting (May 20, 2019)
- Western PA Dystonia Support Group Meeting (May 20, 2019)
- Dystonia Awareness Month (July 18, 2019)
- Indy Hunt for a Cure (July 18, 2019)
- Dystonia Warrior Ride (July 18, 2019)
- Newly Diagnosed Virtual Support Group Meeting (September 3, 2019)
- Southern Nevada Dystonia Support Group Meeting (January 6, 2020)
- Dystonia Support Group of Keene, NH Meeting (February 10, 2020)
- Atlanta Dystonia Support Group Meeting (February 10, 2020)
- Atlanta Dystonia Support Group Meeting (February 10, 2020)
- Atlanta Dystonia Support Group Meeting (February 10, 2020)
- Atlanta Dystonia Support Group Meeting (February 10, 2020)
- Dystonia Support Group of Keene, NH Meeting (February 10, 2020)
- Metro Detroit Dystonia Support Group Meeting (April 22, 2020)
- Metro Detroit Dystonia Support Group Meeting (April 22, 2020)
- Metro Detroit Dystonia Support Group Meeting (April 22, 2020)
- Connecticut Dystonia Education Program (September 15, 2020)
- Dystonia is More Than a Movement Disorder (September 15, 2020)
- Botox® Savings Program (September 15, 2020)
- Dysport® Copay Program (September 15, 2020)
- Xeomin® Savings Webinar (September 15, 2020)
- Deep Brain Stimulation from the Patient Perspective (March 30, 2021)
- Webinar: The Dystonia Coalition (March 30, 2021)
- Dystonia Research Extra Access (March 30, 2021)
- Dystonia & Cerebral Palsy Webinar (March 30, 2021)
- Puget Sound Dystonia Symposium (March 30, 2021)
- Virtual Dystonia Educational Symposium (March 30, 2021)
- Legacy of the DYT1/TOR1A Dystonia Gene Discovery (March 30, 2021)
- Dystonia & Physical Therapy Webinar (March 30, 2021)
- Virtual Dystonia Zoo Day Kick-Off (April 29, 2021)
- Virtual Dystonia Zoo Day (April 29, 2021)
- Bid It Up for Dystonia – Auction Preview Dates (April 29, 2021)
- Bid It Up for Dystonia – Auction is Live (April 29, 2021)
- Marion IA Virtual Dog Walk (May 4, 2021)
- Rockin for a Dystonia Cure (May 16, 2022)
- 2nd Annual Fight for a Cure – Dystonia Awareness (May 16, 2022)
- Portland Dystonia Zoo Day (May 16, 2022)
- Ft. Wayne Dystonia Zoo Day (May 16, 2022)
- St. Louis Dystonia Zoo Day (May 16, 2022)
- Connecticut Dystonia Zoo Day (May 16, 2022)
- Indianapolis Dystonia Zoo Day (May 16, 2022)
- Long Island Dystonia Zoo Day (May 16, 2022)
- Chicago Dystonia Zoo Day (May 16, 2022)
- Toledo Dystonia Zoo Day (May 16, 2022)
- DMRF Pamela Sloate Bronx Dystonia Zoo Day (May 16, 2022)
- Boston Dystonia Zoo Day (May 16, 2022)
- Botulinum Neurotoxin Injections for Dystonia Webinar (May 16, 2022)
- Pittsburgh Dystonia Zoo Day (May 16, 2022)
- Los Angeles Dystonia Zoo Day (May 16, 2022)
- SB Squares for Dystonia (December 28, 2022)
- Dystonia Pet Palooza – 10th Anniversary (December 28, 2022)
- Dystonia Caregivers Webinar (April 17, 2024)
- Botulinum Neurotoxin Injections for the Treatment of Dystonia Webinar (April 17, 2024)
- Hunt for a Dystonia Cure Chicago (September 5, 2024)
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