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Posts
- On Target: Drug Discovery Efforts Pursue New & Improved Treatment (March 4, 2019)
- Eyes on Me: Dystonia & Social Anxiety (August 1, 2019)
- Non-Invasive Brain Stimulation Therapies Offer New Therapeutic Opportunities (November 20, 2019)
- What Makes You Stronger: Mother & Daughter Reflect on Family Legacy of Living Beyond Dystonia (November 20, 2019)
- More than a Movement Disorder: Non-Motor Dystonia Symptoms (January 5, 2020)
- Dystonia & Sleep (March 1, 2020)
- Naturally Curious: An Integrative Approach to Treating Dystonia (March 6, 2020)
- 40+ Years of DMRF Research Achievements (April 13, 2020)
- Mindfulness Meditation with Dr. Karen Ross (April 23, 2020)
- Benefits of Exercise for Dystonia are Physical & Emotional (June 22, 2020)
- Quick Facts about Botulinum Neurotoxin Injections (October 26, 2020)
- Dystonia: Frequently Asked Questions (February 1, 2021)
- Journeys into Parenthood (April 26, 2021)
- Dystonia, Depression & Anxiety (April 27, 2021)
- What is a Physical Medicine & Rehabilitation Physician? (April 30, 2021)
- Accelerating Advancements in Deep Brain Stimulation (July 30, 2021)
- Creative Coping: Tips & Tricks for Daily Life (August 12, 2021)
- New Dystonia Drug Candidates Discovered (September 1, 2021)
- Mental Health Resources (September 10, 2021)
- Not Born Yesterday: Dystonia & Aging (January 30, 2022)
- Family Healing in Living with Dystonia (January 31, 2022)
- Living with Cervical Dystonia (September 9, 2022)
- Yips and Focal Dystonia (June 16, 2023)
- Dystonia Awareness Month for Leaders (August 9, 2023)
- Service Dogs Can Change Lives for Those with Dystonia (August 29, 2023)
- Mental Health Care Provider Overview for Dystonia (September 26, 2023)
- Tips for Managing Holiday Stress With Dystonia (December 1, 2023)
- Focus On: DYT1 Dystonia (December 6, 2023)
- During the Holiday Season There Are Many Things We Are Thankful For. (December 9, 2024)
- Season’s Greetings from the Dystonia Medical Research Foundation (January 6, 2025)
- New Brochure on Truncal Dystonia Now Available (January 6, 2025)
- DMRF Urges Trump Administration to Retain Indirect Cost Reimbursements from NIH (February 19, 2025)
- Living with Cervical Dystonia: Pat’s Story (March 4, 2025)
- Living with Cervical Dystonia: Diana’s Story (March 12, 2025)
- Living with Cervical Dystonia: Nadia’s Story (March 19, 2025)
- Living with Cervical Dystonia: Martha’s Story (March 26, 2025)
- Dystonia Medical Research Foundation Announces 2025 Grant and Fellowship Recipients to Propel Dystonia Research (April 19, 2025)
- Dystonia Dialogue Spring Edition 2025 Now Available (April 20, 2025)
- The Power of Laughter Webinar Now on DMRF YouTube Channel (May 1, 2025)
- New Brochure on Non-Motor Symptoms of Dystonia Available (May 7, 2025)
- Get Ready for the 2025 Dystonia Zoo Days (June 1, 2025)
- Your Support is Needed More Than Ever (June 4, 2025)
- DMRF Hosts Workshop on Dystonia Penetrance (June 5, 2025)
- DMRF Welcomes New MSAC Members (June 5, 2025)
- 2024 Annual Report Now Available on DMRF Website (June 9, 2025)
- Ask Me About Dystonia Buttons Available Now (July 9, 2025)
- Dystonia Dialogue Summer 2025 Edition Now Online (July 9, 2025)
- Visit the DMRF Events Page to Find a Dystonia Zoo Day Near You (July 10, 2025)
- Get Your Movers & Shakers Shirt for Dystonia Awareness Month (July 11, 2025)
- How to Promote Dystonia Awareness in September (August 7, 2025)
- Fall in Love with These Cool Weather Items (October 17, 2025)
- Thank You for Supporting Dystonia Awareness (October 27, 2025)
- Clinical Trials Webinar Recording Now Available (October 29, 2025)
- Survey: What Would You Like to See on the DMRF Online Store? (November 3, 2025)
- November is National Family Caregivers Month (November 5, 2025)
- DMRF Remembers Mark Hallett, MD (November 9, 2025)
- Neuromodulation in Dystonia Meeting Held in Atlanta (November 24, 2025)
- Winter 2025 Dystonia Dialogue Available Now (November 25, 2025)
- Happy Holidays from the Dystonia Medical Research Foundation (December 17, 2025)
- Hope Moves Us. Let’s Keep Moving Forward — Together. (December 22, 2025)
- DMRF Highlights from 2025 (December 23, 2025)
- DMRF Recognizes 50 Years of Making a Difference to the Dystonia Community (January 3, 2026)
- Jon Davis Continues #Riding4Us with $25,000 Goal (February 18, 2026)
- Honoring Those Who Make a Difference: 50th Anniversary Tributes (February 28, 2026)
- Spring 2026 Dystonia Dialogue Available Now (March 18, 2026)
- 7th Samuel Belzberg International Dystonia Symposium to be Held April 7-9, 2027, in Seville (March 24, 2026)
- Dystonia Medical Research Foundation Announces 2026 Grant and Fellowship Recipients to Advance Dystonia Research (March 26, 2026)
- Save the Dates for Upcoming Dystonia Zoo Days (March 26, 2026)
- Renew Your DMRF Membership by June 15 (May 20, 2026)
- Jules van Dongen Launches “Pedals & Points” Fundraiser for DMRF (June 10, 2026)
- The Heat is On: Keeping Cool in Hot Weather (June 10, 2026)
- DMRF Welcomes New MSAC Members in 2026 (June 11, 2026)
Pages
- Home (February 26, 2015)
- About Us (May 10, 2015)
- What is Dystonia? (May 11, 2015)
- Newly Diagnosed (September 24, 2018)
- Dystonia Basics (September 24, 2018)
- Symptoms & Classifications (September 24, 2018)
- Types of Dystonia (September 24, 2018)
- Cervical Dystonia (October 31, 2018)
- Blepharospasm (October 31, 2018)
- Oromandibular Dystonia (November 1, 2018)
- Spasmodic Dysphonia (November 2, 2018)
- Hand Dystonia (November 2, 2018)
- Lower Limb Dystonia (November 2, 2018)
- Generalized Dystonia (November 2, 2018)
- Dopa-Responsive Dystonia (November 6, 2018)
- Myoclonus-Dystonia (November 6, 2018)
- Neurological & Metabolic Disorders (November 6, 2018)
- Toxins (November 6, 2018)
- Traumatic Injury (November 6, 2018)
- Paroxysmal Dystonia & Dyskinesias (November 6, 2018)
- Pediatric Dystonia (November 9, 2018)
- Drug-Induced Dyskinesias & Dystonia (December 3, 2018)
- Musician’s Dystonia (December 3, 2018)
- X-linked Dystonia-Parkinsonism (December 5, 2018)
- Rapid-onset Dystonia Parkinsonism (December 5, 2018)
- Acquired Dystonias (December 5, 2018)
- Functional Dystonia (May 19, 2021)
- Truncal Dystonia (March 6, 2026)
- Genetics (September 24, 2018)
- Download Materials (September 25, 2018)
- Common Misunderstandings (November 28, 2018)
- Frequently Asked Questions (November 29, 2018)
- Calendar (May 11, 2015)
- Merchandise & Brochures (September 19, 2018)
- Cart (September 19, 2018)
- Checkout (September 19, 2018)
- My account (September 19, 2018)
- Get Involved (September 25, 2018)
- Research (September 25, 2018)
- Research Overview 101 (October 2, 2018)
- Current Projects (October 2, 2018)
- Clinical Fellowship Program (October 2, 2018)
- Research Funding Programs (October 2, 2018)
- Dystonia Coalition (October 2, 2018)
- Dystonia Study Group (October 2, 2018)
- Global Dystonia Registry (October 2, 2018)
- Conversations with Investigators (November 6, 2018)
- Accomplishments & Milestones in Research (November 13, 2018)
- Resources for Investigators (November 29, 2018)
- Joan Miller Young Investigator Scholarship Award (March 4, 2020)
- Untangling Complexity of Dystonia: Report (March 17, 2020)
- Dystonia Journal (May 6, 2021)
- Living with Dystonia (October 2, 2018)
- Support Groups (October 2, 2018)
- Find Support (October 2, 2018)
- Find a Doctor (October 2, 2018)
- Treatment (October 2, 2018)
- Emotional & Mental Health (October 2, 2018)
- Resources for Parents (October 2, 2018)
- Online (October 11, 2018)
- Submit a Doctor (October 17, 2018)
- Taking Charge of Your Care (November 9, 2018)
- What is a Movement Disorder Specialist? (November 4, 2020)
- Resources for Mental Health Professionals (September 8, 2022)
- Better Questions Better Outcome (June 6, 2023)
- DMRF Webinars (October 24, 2025)
- Directory (October 2, 2018)
- Directory Dashboard (October 2, 2018)
- Add Listing (October 2, 2018)
- Donate (November 7, 2018)
- Donation Confirmation (November 28, 2018)
- Donation Failed (November 28, 2018)
- Donation History (November 28, 2018)
- Recurring Donations (November 28, 2018)
- Calendar (December 12, 2018)
- Friends (December 12, 2018)
- Shopping (July 24, 2019)
- Register (November 18, 2019)
- Activate (November 18, 2019)
- Dystonia Social Network (November 26, 2019)
- Support Leader Webinars (December 10, 2019)
- Dystonia Social Network Logged In (January 8, 2020)
- Start a Fundraiser (January 14, 2020)
- Do I Have Cervical Dystonia? (January 20, 2021)
- Valentine E-Cards (March 15, 2021)
- Donor Dashboard (April 1, 2021)
- Donor Dashboard (April 8, 2021)
- Donor Dashboard (April 15, 2021)
- Defining the Role of Brain Networks (November 4, 2021)
- Welcome to the DMRF (January 20, 2022)
- Test Instagram (February 14, 2022)
- DMRF E-Cards (April 7, 2022)
- Matching Gifts (April 21, 2023)
- Jon Davis – #Riding4Us (July 20, 2023)
- $5CURE4DYSTONIA (November 14, 2023)
- SResults (March 5, 2024)
- Dystonia Dialogue (April 2, 2024)
- 2023AR (May 18, 2024)
- Science Events – Internation Symposium (May 31, 2024)
- Supporting DMRF & William K (June 13, 2024)
- Test Donation Form (October 4, 2024)
- testing only 2024121302595159 (December 12, 2024)
- William K Fundraiser (June 26, 2025)
- Mike Malinin | Hennepin Hundred (August 27, 2025)
- Privacy Policy (November 1, 2025)
- Terms of Use (November 1, 2025)
- Disclaimer (November 1, 2025)
- Cookie Policy (November 1, 2025)
- Jon Davis – Riding4Us 2026 (February 13, 2026)
Directory
- Western Connecticut Dystonia Support & Action Group (October 12, 2018)
- Alabama Area Contact (October 12, 2018)
- Central Oregon Dystonia Support Group (October 12, 2018)
- CO Dystonia Support Group in Denver & Colorado Springs (October 12, 2018)
- Fairfield, CA Dystonia Support Group (October 12, 2018)
- Greater Washington DC Dystonia Support Group (October 12, 2018)
- Hudson Valley, NY Dystonia Outreach and Support Group (October 12, 2018)
- Los Angeles Dystonia Support Group (October 12, 2018)
- Minnesota Dystonia Support Group (October 12, 2018)
- Contact the DMRF for Assistance – NJ (October 12, 2018)
- Regional Coordinator – Northwest (October 12, 2018)
- Quad-Cities Iowa Area Contact (October 12, 2018)
- Contact DMRF for Assistance – AZ (October 12, 2018)
- Support and Advocacy Group of San Diego County (October 12, 2018)
- Contact the DMRF for Assistance – VT (October 12, 2018)
- Regional Coordinator – Northwest (October 12, 2018)
- Contact the DMRF for Assistance – NM (October 12, 2018)
- Utah Dystonia Support Group (October 12, 2018)
- Contact DMRF for Assistance – SC (October 12, 2018)
- Western Pennsylvania Dystonia Support Group (October 12, 2018)
- Southeast Pennsylvania Support Group (October 12, 2018)
- Portland, OR & Southwest WA Support Group (October 12, 2018)
- Contact the DMRF for Assistance – WV (October 12, 2018)
- Contact the DMRF for Assistance – WI (October 12, 2018)
- Dyscoveries Dystonia Support Group of Spokane, WA (October 12, 2018)
- Regional Coordinator – South Central (October 12, 2018)
- Regional Coordinator – Pacific (October 12, 2018)
- Rhode Island Area Contact (October 12, 2018)
- Greater Washington DC Dystonia Support Group (MD) (October 12, 2018)
- Regional Coordinator – Pacific (October 12, 2018)
- Contact the DMRF for Assistance – WY (October 12, 2018)
- Contact the DMRF for Assistance – MS (October 12, 2018)
- NYC Dystonia Support Group (October 12, 2018)
- East Central Iowa Corridor Area Contact (October 12, 2018)
- Roanoke, Virginia Support Group (October 12, 2018)
- Michigan Tri-Cities Area contact (October 12, 2018)
- Contact the DMRF for Assistance – SD (October 12, 2018)
- Area Contact – Shreveport, LA (October 12, 2018)
- Contact the DMRF for Assistance – OK (October 12, 2018)
- Contact the DMRF for Assistance – IL (October 12, 2018)
- Central Indiana Dystonia Support Group (October 12, 2018)
- Greater Boston Dystonia Support Group (October 12, 2018)
- Contact DMRF for Assistance – AR (March 6, 2019)
- Dystonia Support Group of Greater Cleveland (March 6, 2019)
- St. Louis Dystonia Support Group (April 2, 2019)
- Sacramento Area Contact (June 5, 2019)
- Atlanta Dystonia Support Group (November 25, 2019)
- Nevada Dystonia Support Group (November 25, 2019)
- Contact the DMRF for Assistance – NH (January 9, 2020)
- Metro Detroit Dystonia Support Group (May 15, 2020)
- Houston Dystonia Support Group (June 16, 2020)
- North Carolina Dystonia Support Group (November 25, 2020)
- Nebraska Dystonia Support Group (July 23, 2021)
- Contact the DMRF for Assistance – ND (February 23, 2022)
- Contact the DMRF for Assistance – FL (February 1, 2023)
- Contact DMRF for assistance – DE (February 1, 2023)
- Contact the DMRF for Assistance – TN (March 3, 2023)
- Rochester, NY Dystonia Support Group (May 4, 2023)
- Contact DMRF for Assistance – ME (May 4, 2023)
- Dystonia Support Group of Kentuckiana (July 11, 2023)
- Central Ohio Dystonia Support Group (September 29, 2023)
- Greater Richmond Area Dystonia Support Group (May 14, 2024)
- MI Dystonia Support Group (May 9, 2025)
- Contact the DMRF for Assistance – KS (May 6, 2026)
Products
- Valentine Dog Bone Food Mat (September 25, 2018)
- Never Look Down – Children’s Book (September 25, 2018)
- Dystonia A Movement Disorder Brochure (September 25, 2018)
- Awareness Wallet Cards & Stickers (September 25, 2018)
- DMRF Moving Toward a Cure Brochure (September 25, 2018)
- Understanding Dystonia Fact Sheet (September 25, 2018)
- Blepharospasm Brochure (September 25, 2018)
- Cervical Dystonia/Spasmodic Torticollis Brochure (September 25, 2018)
- Functional/Psychogenic Dystonia Brochure (September 25, 2018)
- Lower Limb Dystonia Brochure (September 25, 2018)
- Oromandibular Dystonia Brochure (September 25, 2018)
- Generalized Dystonia Brochure (September 25, 2018)
- Spasmodic Dysphonia Brochure (September 25, 2018)
- Botulinum Neurotoxin Therapy Brochure (September 25, 2018)
- Finding Support (September 25, 2018)
- DMRF Wallet Info Cards (Pack of 5) (September 25, 2018)
- Genetics of Dystonia Fact Sheet (September 25, 2018)
- DMRF 3-Fold Card (September 25, 2018)
- Legacy Society Brochure (September 25, 2018)
- Red Light Green Light (September 25, 2018)
- Hand Dystonia Brochure (January 9, 2019)
- Deep Brain Stimulation for Dystonia Brochure (February 11, 2019)
- Good Dog Mini Tote Bag (May 21, 2019)
- Dystonia Information Kit (December 20, 2019)
- Sample Newsletter (December 20, 2019)
- Cervical Dystonia Info Kit (February 5, 2021)
- DMRF Water Bottle (April 27, 2021)
- Dogs for Dystonia Treat Pouch (May 14, 2021)
- Dogs for Dystonia Bag Dispenser (May 14, 2021)
- Dystonia Moves Me Awareness Packs (February 24, 2022)
- Dystonia Strong Yard Flag (May 20, 2022)
- Dystonia Strong Banner (May 20, 2022)
- Dystonia Strong Magnet (June 8, 2022)
- Dystonia Pet Palooza Fleece Blanket (January 19, 2023)
- Pet Palooza Sticker (January 27, 2023)
- Dogs for Dystonia Dog Tag (January 27, 2023)
- Pet Palooza Baseball Cap (February 14, 2023)
- License Plate Frame (March 1, 2023)
- DMRF Blue Beanie Hat (December 3, 2024)
- DMRF Striped Beanie Hat with Pom Pom (December 3, 2024)
- DMRF Sunglasses (December 3, 2024)
- DMRF Luggage Tag (December 3, 2024)
- Truncal Dystonia Brochure (December 19, 2024)
- Non-Motor Symptoms of Dystonia Brochure (March 24, 2025)
- Ask Me About Dystonia Button (June 27, 2025)
- Movers & Shakers T-Shirt (July 16, 2025)
Events
- Dystonia Support & Advocacy Group of San Diego County Meeting (December 12, 2018)
- Hudson Valley, NY Dystonia Support Group Meeting (December 12, 2018)
- Connecticut Dystonia Support Group Meeting (December 12, 2018)
- Twin Cities Dystonia Zoo Day (December 12, 2018)
- Los Angeles Dystonia Support Group Meeting (December 12, 2018)
- Minnesota Dystonia Support Group Meeting (December 12, 2018)
- Dothan, AL Dystonia Support Group Meeting (December 12, 2018)
- Dystonia Education & Support Group of the Mid-South Meeting (Memphis, TN) (December 12, 2018)
- North Bay, CA Dystonia Support Group Meeting (December 12, 2018)
- Providence/New England Dystonia Zoo Day (December 12, 2018)
- Dystonia Advocacy Day (December 12, 2018)
- Dothan, AL Dystonia Support Group Meeting (December 12, 2018)
- NEW DATE: Houston Dystonia Support Group Meeting (December 12, 2018)
- Los Angeles Dystonia Support Group Meeting (December 12, 2018)
- Los Angeles Dystonia Support Group Meeting (December 12, 2018)
- North Carolina Dystonia Support Group Meeting (December 12, 2018)
- North Carolina Dystonia Support Group Meeting (December 12, 2018)
- Minnesota Dystonia Support Group Meeting (December 12, 2018)
- Houston Dystonia Support Group Meeting (December 12, 2018)
- Minnesota Dystonia Support Group Picnic/Meeting (December 12, 2018)
- Houston Dystonia Support Group Meeting (December 12, 2018)
- Nebraska Dystonia Support Group Meeting (December 12, 2018)
- North Carolina Dystonia Support Group Meeting (December 12, 2018)
- Nebraska/Utah Dystonia Support Group Meeting (December 12, 2018)
- Florida Dystonia Support Group Meeting (December 12, 2018)
- Houston Dystonia Support Group Meeting (December 12, 2018)
- Maine Dystonia Support Group Meeting (December 12, 2018)
- Seattle Dystonia Support Group Meeting (December 12, 2018)
- Dystonia Support Group of Kentuckiana Meeting (December 12, 2018)
- Dystonia Support Group of Kentuckiana Meeting (December 12, 2018)
- Dystonia Support Group of Kentuckiana Meeting (December 12, 2018)
- Hudson Valley, NY Dystonia Support Group Meeting (December 12, 2018)
- Lansing Dystonia Zoo Day (December 12, 2018)
- North Carolina Dystonia Support Group Meeting (December 12, 2018)
- Nevada Dystonia Support Group Meeting (December 12, 2018)
- Nevada Dystonia Support Group Meeting (December 12, 2018)
- Nevada Dystonia Support Group Meeting (December 12, 2018)
- CANCELLED: Nevada Dystonia Support Group Meeting (December 12, 2018)
- Northern New Jersey Dystonia Support Group Meeting (December 12, 2018)
- Nevada Dystonia Support Group Meeting (December 12, 2018)
- Portland, OR & SW Washington Dystonia Support Group Meeting (December 12, 2018)
- Los Angeles Dystonia Support Group Meeting (December 12, 2018)
- Los Angeles Dystonia Support Group Meeting (December 12, 2018)
- Michigan Dystonia Support Group Meeting (December 12, 2018)
- Houston Dystonia Support Group Meeting (December 12, 2018)
- Michigan Dystonia Support Group Meeting (December 12, 2018)
- Hudson Valley, NY Dystonia Support Group Meeting (December 12, 2018)
- Fairfield, CA Dystonia Support Group Holiday Luncheon (December 27, 2018)
- South Carolina Dystonia Support Group Meeting (December 27, 2018)
- Central IN Dystonia Support Group Meeting (December 27, 2018)
- Fairfield, CA Dystonia Support Group Meeting (December 27, 2018)
- NYC Dystonia Support Group Meeting (December 27, 2018)
- NYC Dystonia Support Group Meeting (December 27, 2018)
- NYC Dystonia Support Group Meeting (December 27, 2018)
- NYC Dystonia Support Group Meeting (December 27, 2018)
- NYC Dystonia Support Group Meeting (December 27, 2018)
- NYC Dystonia Support Group Meeting (December 27, 2018)
- Nashua Dystance4Dystonia 5k Walk Run for Dystonia (February 15, 2019)
- Dystonia Warrior Ride (February 15, 2019)
- Angels Walk for Dystonia (February 15, 2019)
- Greater Washington, DC Dystonia Support Group (February 20, 2019)
- Weill Cornell Dystonia Support Group (February 20, 2019)
- Arizona Dystonia Support Group Meeting (February 20, 2019)
- Tucson, AZ Dystonia Support Group Meeting (February 20, 2019)
- **CANCELLED** Tucson, AZ Dystonia Support Group Meeting (February 20, 2019)
- Central Oregon Dystonia Support Group Meeting (February 20, 2019)
- Central Oregon Dystonia Support Group Meeting (February 20, 2019)
- Central Oregon Dystonia Support Group Gathering (February 20, 2019)
- Central Oregon Dystonia Support Group Meeting (February 20, 2019)
- Central Oregon Dystonia Support Group Meeting (February 20, 2019)
- Central Oregon Dystonia Support Group Meeting (February 20, 2019)
- Central Oregon Dystonia Support Group Meeting (February 20, 2019)
- Central Oregon Dystonia Support Group Holiday Luncheon (February 20, 2019)
- Southeast Pennsylvania Dystonia Support Group Meeting (February 20, 2019)
- Dallas Dystonia Support Group Meeting (February 22, 2019)
- Dystonia Support Group of Greater Cleveland Meeting (February 22, 2019)
- Central Ohio Dystonia Support Group Meeting (February 22, 2019)
- Greater Richmond Area Dystonia Support Group Holiday Party (February 22, 2019)
- Greater Richmond Area Dystonia Support Group Meeting (February 22, 2019)
- Dystonia Support Group of Greater Cleveland Meeting (February 22, 2019)
- Greater Richmond Area Dystonia Support Group Meeting (February 22, 2019)
- Dystonia Support Group of Greater Cleveland Meeting (February 22, 2019)
- Greater Richmond Area Dystonia Support Group Meeting (February 22, 2019)
- Minnesota Dystonia Support Group Gathering (February 22, 2019)
- CANCELLED: East Central Iowa Corridor Dystonia Support Group Meeting (February 22, 2019)
- Central Indiana Dystonia Support Group Meeting (February 22, 2019)
- East Central Iowa Corridor Dystonia Support Group Meeting (February 22, 2019)
- St. Louis Dystonia Support Group Meeting (April 2, 2019)
- St. Louis Dystonia Support Group Meeting (April 2, 2019)
- St. Louis Dystonia Support Group Meeting (April 2, 2019)
- Roanoke, VA Dystonia Support Group Meeting (April 4, 2019)
- Colorado Dystonia Support Group Meeting (April 26, 2019)
- South Carolina Dystonia Support Group Meeting (May 10, 2019)
- Greater Boston Dystonia Support Group Meeting (May 13, 2019)
- Greater Boston Dystonia Support Group Meeting (May 13, 2019)
- Dyscoveries Dystonia Support Group of Spokane, WA Meeting (May 13, 2019)
- Rochester, NY Dystonia Support Group Meeting (May 13, 2019)
- Rochester, NY Dystonia Support Group Meeting (May 13, 2019)
- Rochester, NY Dystonia Support Group Meeting (May 13, 2019)
- Rochester, NY Dystonia Support Group Meeting (May 13, 2019)
- Rochester, NY Dystonia Support Group Meeting (May 13, 2019)
- Rochester, NY Dystonia Support Group Meeting (May 13, 2019)
- Rochester, NY Dystonia Holiday Party (May 13, 2019)
- Dystonia Support & Advocacy Group of San Diego County Meeting (May 20, 2019)
- Dystonia Support & Advocacy Group of San Diego County Meeting (May 20, 2019)
- Western PA Dystonia Support Group Meeting (May 20, 2019)
- Dystonia Awareness Month (July 18, 2019)
- Indy Hunt for a Cure (July 18, 2019)
- Newly Diagnosed Virtual Support Group Meeting (September 3, 2019)
- Dystonia Support Group of Keene, NH Meeting (February 10, 2020)
- Atlanta Dystonia Support Group Meeting (February 10, 2020)
- Atlanta Dystonia Support Group Meeting (February 10, 2020)
- Atlanta Dystonia Support Group Meeting (February 10, 2020)
- Atlanta Dystonia Support Group Meeting (February 10, 2020)
- Dystonia Support Group of Keene, NH Meeting (February 10, 2020)
- Atlanta Dystonia Support Group Meeting (February 10, 2020)
- Atlanta Dystonia Support Group Meeting (February 10, 2020)
- Atlanta Dystonia Support Group Meeting (February 10, 2020)
- Metro Detroit Dystonia Support Group Meeting (April 22, 2020)
- Metro Detroit Dystonia Support Group Meeting (April 22, 2020)
- Metro Detroit Dystonia Support Group Meeting (April 22, 2020)
- Dystonia is More Than a Movement Disorder (September 15, 2020)
- Botox® Savings Program (September 15, 2020)
- Dysport® Copay Program (September 15, 2020)
- Xeomin® Savings Webinar (September 15, 2020)
- Deep Brain Stimulation from the Patient Perspective (March 30, 2021)
- Webinar: The Dystonia Coalition (March 30, 2021)
- Dystonia Research Extra Access (March 30, 2021)
- Dystonia & Cerebral Palsy Webinar (March 30, 2021)
- Puget Sound Dystonia Symposium (March 30, 2021)
- Virtual Dystonia Educational Symposium (March 30, 2021)
- Legacy of the DYT1/TOR1A Dystonia Gene Discovery (March 30, 2021)
- Dystonia & Physical Therapy Webinar (March 30, 2021)
- Virtual Dystonia Zoo Day Kick-Off (April 29, 2021)
- Virtual Dystonia Zoo Day (April 29, 2021)
- Bid It Up for Dystonia – Auction Preview Dates (April 29, 2021)
- Bid It Up for Dystonia – Auction is Live (April 29, 2021)
- Marion IA Virtual Dog Walk (May 4, 2021)
- Rockin for a Dystonia Cure (May 16, 2022)
- 2nd Annual Fight for a Cure – Dystonia Awareness (May 16, 2022)
- Portland Dystonia Zoo Day (May 16, 2022)
- Ft. Wayne Dystonia Zoo Day (May 16, 2022)
- St. Louis Dystonia Zoo Day (May 16, 2022)
- Indianapolis Dystonia Zoo Day (May 16, 2022)
- Long Island Dystonia Zoo Day (May 16, 2022)
- Chicago Dystonia Zoo Day (May 16, 2022)
- Toledo Dystonia Zoo Day (May 16, 2022)
- DMRF Pamela Sloate Bronx Dystonia Zoo Day (May 16, 2022)
- Boston Dystonia Zoo Day (May 16, 2022)
- Botulinum Neurotoxin Injections for Dystonia Webinar (May 16, 2022)
- Pittsburgh Dystonia Zoo Day (May 16, 2022)
- Los Angeles Dystonia Zoo Day (May 16, 2022)
- Dystonia Pet Palooza – 10th Anniversary (December 28, 2022)
- Dystonia Caregivers Webinar (April 17, 2024)
- Botulinum Neurotoxin Injections for the Treatment of Dystonia Webinar (April 17, 2024)
- The Power of Laughter Webinar (April 17, 2024)
- Hunt for a Dystonia Cure Chicago (September 5, 2024)
- Portland 2026 Dystonia Zoo Day (March 31, 2026)
- Toledo 2026 Dystonia Zoo Day (March 31, 2026)
- Twin Cities 2026 Dystonia Zoo Days (March 31, 2026)
- Long Island 2026 Dystonia Zoo Day (March 31, 2026)
- Pittsburgh 2026 Dystonia Zoo Day (March 31, 2026)
- Michigan 2026 Dystonia Zoo Day (March 31, 2026)
- Indianapolis 2026 Dystonia Zoo Day (March 31, 2026)
- Rochester 2026 Dystonia Zoo Day (March 31, 2026)
- Boston 2026 Dystonia Zoo Day (March 31, 2026)
- Connecticut 2026 Dystonia Zoo Day (March 31, 2026)
- Dystonia Coalition Webinar (May 17, 2026)
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