News & Press Releases

Latest Dystonia News & Progress
R7_DystoniaFoundation_VirtualZooDayTShirt

Virtual Dystonia Zoo Day Games & Contests

Virtual Dystonia Zoo Day on Saturday, September 12, 2020 includes a number of fun games and contests. Details to participate are below. Where Can I Find the Scavenger Hunt Work Sheet? Download this work sheet and use it to check off images or likenesses of animals you find all around you – for example, in […]

R7_DystoniaFoundation_VirtualZooDayTShirt

Virtual Dystonia Zoo Day is September 12, 2020

CLICK HERE ON SEPTEMBER 12 FOR LIVE STREAM BEGINNING AT 11AM CT. The Dystonia Medical Research Foundation (DMRF) has transitioned its popular local zoo walks into Virtual Dystonia Zoo Day on Saturday, September 12, 2020. The dystonia community is uniting online for a national day of action to boost dystonia awareness and raise funds for […]

blue abtract background

Gone Viral: Stories from the Dystonia Community in a Pandemic

This article was originally published in the Dystonia Dialogue. The Covid-19 outbreak has had a disproportionate impact on individuals with disabilities and chronic medical conditions, including those with dystonia. There has been widespread disruption of local public services, delays in treatment appointments, and changes to everyday routines. The DMRF checked in with several members of […]

R7_DystoniaFoundation_VirtualZooDayTShirt

Greetings from National Sponsors

Virtual Dystonia Zoo Day to benefit the Dystonia Medical Research Foundation is taking place on Saturday, September 12, 2020. The dystonia community is uniting online for a national day of action to boost dystonia awareness and raise funds for urgently-needed medical research. We are grateful to our National Sponsors, who each recorded special messages of […]

Fleisher

Dystonia Community Mourns Legendary Pianist Leon Fleisher

The DMRF family sends our deepest sympathies to the family and friends of pianist extraordinaire Leon Fleisher who passed away on August 2 at the age of 92. Mr. Fleisher inspired countless audiences with his spectacular talent. He served as mentor for many musically gifted young artists and helped them tremendously with their careers. Mr. […]

Laboratory research in science and medical setting.

New Grant Explores Patient Response to Alcohol in Myoclonus-Dystonia

The Myoclonus-Dystonia Research Program is a partnership between the DMRF and the Brown Family Foundation focused on advancing knowledge of this inherited movement disorder. Myoclonus-dystonia (M-D) is a movement disorder characterized by a combination of rapid, brief muscle contractions (myoclonus) and/or sustained twisting and repetitive movements that result in abnormal postures (dystonia). Non-movement features may […]

Gonzalez-AlegreLab-3-400w

DMRF Research Grants Fund Diverse Investigations into Dystonia Origins

Dystonia is a movement disorder characterized by excessive muscle contractions that cause abnormal movements and postures. Dystonia is not caused by pathology in a specific brain structure, but by dysfunctional circuits of communication between multiple brain areas responsible for coordinating and controlling body movement. Despite substantial progress made in understanding various aspects of dystonia, there […]

R7_DystoniaFoundation_VirtualZooDayTShirt

Register Today for Virtual Dystonia Zoo Day

Registration is open! The first-ever Virtual Dystonia Zoo Day to benefit the DMRF is Saturday, September 12, 2020. The dystonia community is uniting for an exciting national day of action to boost dystonia awareness and raise funds for medical research toward a cure. Registration is free and there are numerous ways to support the event. […]

doctor giving neck injection

Quick Facts about Botulinum Neurotoxin Injections

Botulinum neurotoxin (BNT) injections are a common treatment for dystonia. This therapy is used to treat dystonia symptoms in a specific group of muscles, for example, the neck, face, or a limb. Despite the popularity of this treatment for dystonia, certain important aspects of the therapy may come as a surprise to new patients. BNT […]

massage-therapist-mask-on

Study Examines Massage Therapy for Dystonia

Many individuals with dystonia seek out complementary and integrative therapies to help manage symptoms, including massage. However, the use of massage for dystonia is not well documented or studied. A recent case report, using objective rating scales, suggests that massage can temporarily reduce pain intensity, pain and spasm frequency, and dystonia symptoms in activities of […]

seated exercise

Benefits of Exercise for Dystonia are Physical & Emotional

This content originally appeared in the Dystonia Dialogue. The Centers for Disease Control & Prevention (CDC) estimate that 60% of Americans are not active at the recommended levels for good health. The merits of exercise have been studied extensively, including in neurological conditions such as Parkinson’s disease and multiple sclerosis. Researchers are beginning to examine […]

Dystonia Community

How You Can Help
en_USEnglish
en_USEnglish