News & Press Releases

Latest Dystonia News & Progress
Twin Cities Dystonia Zoo Group blog

Everybody’s Zooing It! Thousands Attend Dystonia Zoo Walks to Find a Cure

Thirteen cities across the country are hosting Dystonia Zoo Walks in 2019. The purpose of these fun community events is to increase public awareness of dystonia, a little-known but surprisingly common neurological disorder. Proceeds support the mission of the Dystonia Medical Research Foundation (DMRF), which supports urgently-needed medical research toward a cure and programs for individuals and families […]

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Save the Date: 6th International Dystonia Symposium

The DMRF, in partnership with Dystonia Europe, is proud to announce the Samuel Belzberg 6th International Dystonia Symposium, a research conference to take place June 4–6, 2020 in Dublin, Ireland. The meeting is named for DMRF Co-Founder Samuel Belzberg who passed away in 2018. Co-Chairs are H. A. “Buz” Jinnah, MD, PhD of Emory University […]

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FDA Approves Xeomin® as First-Line Treatment for Focal Eye Dystonia

The US Food & Drug Administration (FDA) has approved the use of the botulinum neurotoxin Xeomin® (incobotulinumtoxinA) as a first-line treatment of blepharospasm in adults, as announced in a press release from Merz. Blepharospasm is a focal dystonia that causes muscles around the eyes to contract involuntarily. Individuals with blepharospasm may experience excessive blinking, light […]

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100+ Support Nashua Dystance4Dystonia Walk for a Cure

Congratulations and many thanks to event organizer Mandi Sleeper and her 100+ supporters who participated in the Nashua Dystance4Dystonia Walk in New Hampshire on May 5 to support the mission of the Dystonia Medical Research Foundation (DMRF). The event was covered by The Telegraph, bringing much-needed awareness to the community. Estimates suggest the event raised […]

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Thank You Volunteers!

The Dystonia Medical Research Foundation (DMRF) could not function without dedicated, enthusiastic volunteers. This includes the Board of Directors, Medical & Scientific Advisory Council, support group leaders, online forum moderators, event organizers, fundraisers, awareness activists, legislative advocates, area contacts, clinical study recruits, and countless others who lend their time and energy to support DMRF and […]

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Right-Handed Cervical Dystonia Patients Needed for Study

The Motor Neuroscience Lab at Michigan State University is recruiting right-handed adults with cervical dystonia who are currently undergoing treatment using botulinum neurotoxin injections for a study examining how the brain controls arm movements. Participants will be asked to move a joystick or robotic handles to control a cursor on a computer screen while their […]

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Individuals with Dystonia Needed for Brain Function Study

The Center for Neurosciences at The Feinstein Institute for Medical Research conducts one of the nation’s leading brain imaging programs directed by neuroscientist, David Eidelberg, MD. The program is internationally recognized for developing new techniques to identify and measure patterns and circuits of brain function in people with disorders such as Parkinson’s disease, Huntington’s disease, […]

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Researchers Need Adult & Child Volunteers

Do you have the genetic forms of dystonia known as DYT6 (THAP1) or DYT25 (GNAL)? Have you or your child had previous positive genetic testing for either DYT6 (THAP1) or DYT25 (GNAL)? If yes, you and family members, aged 7 or older, can become part of the Dystonia Partners Research Bank at Massachusetts General Hospital. […]

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Cervical Dystonia Study in Need of Volunteers

Research studies are the only way new drugs can be made ready for doctors to prescribe to patients. If you have cervical dystonia and are between the ages of 18 and 80, consider the ASPEN study of a new investigational drug called DAXI for injection, a long-acting form of botulinum toxin. In other studies, DAXI […]

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DMRF Tackles Urgent Need for Movement Disorder Specialists

The Dystonia Medical Research Foundation (DMRF) announced Abhimanyu Mahajan, MD, MHS, University of Cincinnati, as the latest recipient of the DMRF Clinical Fellowship Award to support training in the diagnosis and treatment of movement disorders with special expertise in dystonia. Dr. Mahajan’s mentor is Alberto J. Espay, MD, MSc, Professor of Neurology, Director, James J. […]

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Cross-Disciplinary Projects Explore Dystonia Brain Networks to Improve Diagnosis & Treatment

The Dystonia Medical Research Foundation (DMRF) and Cure Dystonia Now (CDN) announced the latest grant awards to advance research toward improved dystonia treatment options and ultimately a cure. Dystonia is the third most common movement disorder, affecting no fewer than 250,000 Americans and potentially millions worldwide. This marks the latest in an ongoing collaboration between […]

Mahlon DeLong and Joel Perlmutter

DMRF Welcomes New Scientific Director

The DMRF is pleased to announce the appointment of Joel S. Perlmutter, MD as Scientific Director.  He is pictured (R) with Scientific Director Emeritus, Mahlon Delong, MD. Dr. Perlmutter is the Elliot H. Stein Family Professor of Neurology and Professor of Radiology, Neuroscience, Physical Therapy and Occupational Therapy; and Head of the Movement Disorders Section […]

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