Registration is open! The first-ever Virtual Dystonia Zoo Day to benefit the DMRF is Saturday, September 12, 2020. The dystonia community is uniting for an exciting national day of action to boost dystonia awareness and raise funds for medical research toward a cure. Registration is free and there are numerous ways to support the event. […]
If you are in the States of AL, IL, KY, VT, TN, CA, ME, WA, AK, RI, MO, MT, KS, NM, ND, AR, HI, SC, or WI please send a message to your Senator who serves on the Senate Defense Appropriations Subcommittee today! Contact the office of your Senator serving on the Defense Appropriations Subcommittee […]
This content originally appeared in the Dystonia Dialogue. The Centers for Disease Control & Prevention (CDC) estimate that 60% of Americans are not active at the recommended levels for good health. The merits of exercise have been studied extensively, including in neurological conditions such as Parkinson’s disease and multiple sclerosis. Researchers are beginning to examine […]
New face masks are available from the Dystonia Medical Research Foundation (DMRF). They are 100% cotton jersey, 3 ply construction with two layers of jersey with a non-woven center for additional filtration. $10 a piece. Help raise awareness of dystonia while following public health recommendations Click here to order.
The Dystonia Medical Research Foundation (DMRF) and Dystonia Medical Research Foundation Canada (DMRFC) hosted a webinar, “Dystonia and the COVID-19 Virus – Your Questions Answered,” on Wednesday, April 1, 2020. Movement disorder specialists Mark Hallett, MD of the National Institute of Neurological Disorders & Stroke and Robert Chen, MB BCh, MB BChir of the University […]
Mindfulness meditation is a technique that can provide support during times of elevated stress. A daily practice can reduce tension and pain and provide moments of peace. Mindfulness meditation is not a substitute for medical treatment. It is a process to support overall wellness for individuals living with and without chronic conditions. DMRF Vice President […]
The Dystonia Medical Research Foundation (DMRF) will receive $1,000 from HSN, as part of the HSN Cares annual $1,000 A Day Giveaway campaign. HSN Cares selected DMRF from hundreds of entries. Julie Greene of Minnesota nominated DMRF to receive a $1000 donation during HSN’s Customer Appreciation Month. The organization is committed to finding a cure […]
“DMRF initiated, supported, stimulated, and catalyzed essential scientific and medical efforts that created the modern dystonia field.” -Jan Teller, MA, PhD Chief Scientific Advisor Nearly 45 years ago, the DMRF began the ambitious mission to find a dystonia cure. Since that time, the Foundation has provided funding to 270+ investigators and has grown the field […]
This article originally appeared in the Dystonia Dialogue. The DMRF leads a global research effort, grounded in the belief that the best service the Foundation can provide the dystonia community is to work every day toward improved therapies and a cure. Jan Teller, MA, PhD, DMRF’s Chief Scientific Advisor since 2006, recently commented on a […]
Stress is notorious for making dystonia symptoms worse. The following gentle reminders may help ease stress before it becomes overwhelming, especially during these unprecedented times due to the COVID-19 pandemic. Acknowledge loss and change. Daily life may feel very different today than it did a month, or even a week ago. You may be unable […]
Feeling connected to other people affected by dystonia can benefit your physical and emotional health. DMRF connects you to people who understand life with dystonia: Support Groups – DMRF offers peer support groups in communities across the USA. Although regular support group meetings are postponed due to the COVID-19 pandemic, many groups are connecting through […]
This article originally appeared in the Dystonia Dialogue. “Even when we treat symptoms in dystonia, people are still sometimes left with bothersome symptoms, and they’re also dealing with more than just the physical symptoms that we can see,” explained Danny Bega, MD, neurologist and movement disorders specialist at Northwestern Medicine in Chicago. “A lot of patients with […]
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