With the support of our generous members, donors, and volunteers, we were able to accomplish a tremendous amount in 2019. Please click below to watch a special video ‘thank you’ recorded by DMRF Executive Director Janet Hieshetter which details the many accomplishments that were made possible this year. If you have not yet made your […]
Non-profit evaluator Charity Navigator has once again awarded the Dystonia Medical Research Foundation (DMRF) with the top 4-star rating. Charity Navigator bases its rating on an organization’s financial health and commitment to accountability and transparency. Thank you for trusting the DMRF with your donations and support. Together, we will find a cure for dystonia. The […]
This article appeared in the Dystonia Dialogue. “In my family, we were all aware that my father had a problem with his hands,” explained Carole Rawson, “and my parents’ generation was one in which, if there was something bad going on, you didn’t talk about it. He was very closed-lipped about it.” Carole’s father went […]
This article originally appeared in the Dystonia Dialogue. “During my fellowship training at Duke, the faces of dystonia patients with painful postures and tremors stayed with me,” said Noreen Bukhari-Parlakturk, MD, PhD, a movement disorder neurologist and clinical investigator at Duke Neurological Disorders Clinic. “Their stories of resilience and optimism—despite daily hardship and social misunderstanding—inspired […]
Throughout the year, volunteers across the country have organized events to bring visibility to dystonia and raise funds for urgently needed medical research toward a cure. 13 Dystonia Zoo Walks have drawn 5,000+ participants nationally and are on track to raise $300,000 in support of the Dystonia Medical Research Foundation. National Sponsors are Allergan and […]
The 14th Chicago Basket Bash, which took place October 27 at Joe’s Live Rosemont, is a charity prize raffle to raise dystonia awareness and funds for research toward a cure. The Basket Bash was started by the late Harriett Farber and her husband Joel Farber, in honor of daughter Shari Farber Tritt, who was diagnosed […]
Cheri Tannenbaum, daughter of DMRF Founders Sam & Fran Belzberg, has published a memoir, Woman of Few Words: My Creative Journey With Dystonia. Cheri is sharing her philosophy on how to be a functioning, fulfilled individual despite daunting challenges. DMRF is grateful to Cheri for sharing her profound story to increase awareness of dystonia and […]
Toledo is the latest of 13 cities across the USA to host a Dystonia Zoo Walk in 2019. The event on October 5 was the very first Dystonia Zoo Walk to take place in Toledo. The purpose of this community day at the zoo was to raise dystonia awareness and funds for medical research. Dystonia Zoo Walks […]
The 3rd Annual Indy Hunt for a Cure for Dystonia took place September 29. The event was a scavenger hunt to promote awareness and raise funds for dystonia research. Participants competed for points by answering trivia questions, completing tasks, and collecting items throughout Garfield Park in Indianapolis. The event was organized by Sunshine Fox and […]
Dystonia Awareness Month is marked by events throughout the country to bring visibility to dystonia and raise funds for medical research toward a cure. This double-header weekend included the 7th Annual Cincinnati Dystonia Zoo Walk on September 21 and the 3rd Annual Philadelphia Dystonia Zoo Walk on September 22. Thirteen Dystonia Zoo Walks are expected […]
The Dystonia & Speech Motor Control Lab at Massachusetts Eye and Ear Infirmary is conducting an online survey examining psychological co-morbidities in patients with dystonia. The survey is open to anyone diagnosed with any form of dystonia, and takes approximately 10-15 minutes to complete. Click here for detailed information about the survey, and to participate. […]
Providence, Rhode Island is the latest of 13 cities across the USA to host a Dystonia Zoo Walk in 2019. The event on September 14 was the fifth Dystonia Zoo Walk to take place in New England. The purpose of this community day at the zoo was to raise dystonia awareness and funds for medical […]
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