News & Press Releases

Latest Dystonia News & Progress
Kessler Ozelius Breakefield

Dystonia Zoo Days Draw Crowds in Boston and Pittsburgh

The 1st Boston Dystonia Zoo Day took place on Saturday, September 17th, followed by the 7th Pittsburgh Dystonia Zoo Day on Sunday, September 18th. Each event united the local dystonia community in support of the DMRF mission to find a dystonia cure. In Boston, DMRF past President Art Kessler presented Dr. Xandra Breakefield of Massachusetts […]

A stylized blue transparent X-ray illustration of an adult human from the chest up, against a black background. The skeleton and organs are visible. The voice box located in the throat is illuminated in pink.

Volunteers with Laryngeal Dystonia Needed

Boston University Stepp Lab researches various voice and sensorimotor disorders. They hope to help guide new and existing forms of therapy. They are creating more objective measures to diagnose and assess the severity of adductor spasmodic dysphonia/laryngeal dystonia. They want to better understand the nature of SD/LD and how treatments impact symptoms. Currently, they have […]

CDPicture1

Living with Cervical Dystonia

September is Dystonia Awareness Month. Join us for a conversation about cervical dystonia, its impact, diagnosis and management, and the importance of speaking with a healthcare provider if you are experiencing potential symptoms. Janet Hieshetter, Dystonia Medical Research Foundation’s Executive Director, is joined by Crystal Edmonds, who is diagnosed with cervical dystonia, and Dr. Diego […]

abtract neutral

In Memoriam: Blair Ford, MD

DMRF leadership is deeply saddened to report the death of movement disorder specialist Blair Ford, MD, Medical Director for the Center for Neuromodulation and Movement Disorder Surgery at Columbia University Medical Center. Steven Frucht, MD, Co-Founder of the Leon Fleisher Foundation for Musicians with Dystonia, authored the fitting tribute below. “It is with great sadness […]

Detroit Zoo Man Seated with Smiling Woman

September is Dystonia Awareness Month

An estimated 250,000 people in the United States have dystonia, a chronic movement disorder affecting the brain and nervous system. It is the third most common movement disorder after essential tremor and Parkinson disease. Dystonia causes excessive, uncontrollable muscle spasms. The muscle spasms twist the body and limbs into involuntary movements and awkward postures. Estimates […]

Friends in Portland cropped

Dystonia Zoo Day Season Has Begun!

On Thursday, August 18, DMRF officially launched a series of Dystonia Zoo Day events with a Virtual Kick-Off Celebration. DMRF President Mark Rudolph and Executive Director Janet Hieshetter provided a preview of in-person and virtual Dystonia Zoo Day events scheduled for August through October and introduced viewers to in-person Dystonia Zoo Day hosts and DMRF […]

Medical,Hospital:,Neurologist,And,Neurosurgeon,Talk,,Use,Computer,,Analyse,Patient

DMRF Co-Funds Dystonia Coalition Pilot Project Awards

The DMRF is proud to partially support two Dystonia Coalition Pilot Project Awards. The goal of the Pilot Projects Program is to foster the most promising clinical and translational studies on dystonia. Moodscreen for Cervical Dystonia: A Diagnostic Accuracy Study of Depression and Anxiety Davide Martino, MD, PhD, University of Calgary Depression and anxiety frequently […]

Logo that reads "Dystonia Zoo Day 2022" with illustrations of animals.

Everybody’s Zoo-ing It: Dystonia Zoo Days Start August 18

The DMRF is pleased to return to in-person events in select cities to re-unite the dystonia community, promote awareness, and support the mission to find a cure. We’re especially excited to announce this year’s Dystonia Zoo Day season, with both in-person events and virtual opportunities to participate. A Virtual Kick-Off Celebration on August 18, 2022 will mark […]

Dystonia Community

How You Can Help
en_USEnglish