The 3rd Annual Indy Hunt for a Cure for Dystonia took place September 29. The event was a scavenger hunt to promote awareness and raise funds for dystonia research. Participants competed for points by answering trivia questions, completing tasks, and collecting items throughout Garfield Park in Indianapolis. The event was organized by Sunshine Fox and […]
Dystonia Awareness Month is marked by events throughout the country to bring visibility to dystonia and raise funds for medical research toward a cure. This double-header weekend included the 7th Annual Cincinnati Dystonia Zoo Walk on September 21 and the 3rd Annual Philadelphia Dystonia Zoo Walk on September 22. Thirteen Dystonia Zoo Walks are expected […]
The Dystonia & Speech Motor Control Lab at Massachusetts Eye and Ear Infirmary is conducting an online survey examining psychological co-morbidities in patients with dystonia. The survey is open to anyone diagnosed with any form of dystonia, and takes approximately 10-15 minutes to complete. Click here for detailed information about the survey, and to participate. […]
Providence, Rhode Island is the latest of 13 cities across the USA to host a Dystonia Zoo Walk in 2019. The event on September 14 was the fifth Dystonia Zoo Walk to take place in New England. The purpose of this community day at the zoo was to raise dystonia awareness and funds for medical […]
The first full weekend of Dystonia Awareness Month was marked by simultaneous Dystonia Zoo Walks in three cities on Sunday, September 8: Cleveland, NYC/Bronx, and Pittsburgh. Thirteen Dystonia Zoo Walks are taking place across the country and are expected to raise $300,000 this year. Cumulatively, Dystonia Zoo Walks have raised $1.3 million in support of […]
The Buffalo Bills are champions for dystonia awareness! The franchise hosted a kickball tournament on August 25 and a cornhole tournament on September 7 to raise awareness and research funds for dystonia, the third most common movement disorder. The kickball team slots were sold out and 85 teams competed in the cornhole tournament. Proceeds benefited […]
Dystonia Awareness Month is underway, and volunteers across the country are hosting events to bring visibility to the disorder and raise funds for urgently needed medical research toward a cure. The Pittsburgh Pirates welcomed members of the Western, Pennsylvania Dystonia Support Group for Dystonia Awareness Day at PNC Park, as a lead up to the […]
An estimated 250,000 people in the United States have dystonia, a chronic movement disorder affecting the brain and nervous system. It is the third most common movement disorder after essential tremor and Parkinson disease. Dystonia causes excessive, uncontrollable muscle spasms. The muscle spasms twist the body and limbs into involuntary movements and awkward postures. Estimates […]
The Dystonia Medical Research Foundation is launching a dystonia awareness video contest as part of Dystonia Awareness Month activities throughout September. Individuals are invited to submit a video to demonstrate how they explain what dystonia is, and how it affects them, to other people. The purpose of the video is to help promote greater public […]
Thirteen cities across the country are hosting Dystonia Zoo Walks in 2019. The purpose of these fun community events is to increase public awareness of dystonia, a little-known but surprisingly common neurological disorder. Proceeds support the mission of the Dystonia Medical Research Foundation (DMRF), which supports urgently-needed medical research toward a cure and programs for individuals and families […]
The DMRF, in partnership with Dystonia Europe, is proud to announce the Samuel Belzberg 6th International Dystonia Symposium, a research conference to take place June 4–6, 2020 in Dublin, Ireland. The meeting is named for DMRF Co-Founder Samuel Belzberg who passed away in 2018. Co-Chairs are H. A. “Buz” Jinnah, MD, PhD of Emory University […]
The US Food & Drug Administration (FDA) has approved the use of the botulinum neurotoxin Xeomin® (incobotulinumtoxinA) as a first-line treatment of blepharospasm in adults, as announced in a press release from Merz. Blepharospasm is a focal dystonia that causes muscles around the eyes to contract involuntarily. Individuals with blepharospasm may experience excessive blinking, light […]
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