Virtual Dystonia Zoo Day on Saturday, September 12, 2020 includes a number of fun games and contests. Details to participate are below. Where Can I Find the Scavenger Hunt Work Sheet? Download this work sheet and use it to check off images or likenesses of animals you find all around you – for example, in […]
CLICK HERE ON SEPTEMBER 12 FOR LIVE STREAM BEGINNING AT 11AM CT. The Dystonia Medical Research Foundation (DMRF) has transitioned its popular local zoo walks into Virtual Dystonia Zoo Day on Saturday, September 12, 2020. The dystonia community is uniting online for a national day of action to boost dystonia awareness and raise funds for […]
This article was originally published in the Dystonia Dialogue. The Covid-19 outbreak has had a disproportionate impact on individuals with disabilities and chronic medical conditions, including those with dystonia. There has been widespread disruption of local public services, delays in treatment appointments, and changes to everyday routines. The DMRF checked in with several members of […]
Virtual Dystonia Zoo Day to benefit the Dystonia Medical Research Foundation is taking place on Saturday, September 12, 2020. The dystonia community is uniting online for a national day of action to boost dystonia awareness and raise funds for urgently-needed medical research. We are grateful to our National Sponsors, who each recorded special messages of […]
The DMRF family sends our deepest sympathies to the family and friends of pianist extraordinaire Leon Fleisher who passed away on August 2 at the age of 92. Mr. Fleisher inspired countless audiences with his spectacular talent. He served as mentor for many musically gifted young artists and helped them tremendously with their careers. Mr. […]
The Myoclonus-Dystonia Research Program is a partnership between the DMRF and the Brown Family Foundation focused on advancing knowledge of this inherited movement disorder. Myoclonus-dystonia (M-D) is a movement disorder characterized by a combination of rapid, brief muscle contractions (myoclonus) and/or sustained twisting and repetitive movements that result in abnormal postures (dystonia). Non-movement features may […]
Dystonia is a movement disorder characterized by excessive muscle contractions that cause abnormal movements and postures. Dystonia is not caused by pathology in a specific brain structure, but by dysfunctional circuits of communication between multiple brain areas responsible for coordinating and controlling body movement. Despite substantial progress made in understanding various aspects of dystonia, there […]
Registration is open! The first-ever Virtual Dystonia Zoo Day to benefit the DMRF is Saturday, September 12, 2020. The dystonia community is uniting for an exciting national day of action to boost dystonia awareness and raise funds for medical research toward a cure. Registration is free and there are numerous ways to support the event. […]
Botulinum neurotoxin (BNT) injections are a common treatment for dystonia. This therapy is used to treat dystonia symptoms in a specific group of muscles, for example, the neck, face, or a limb. Despite the popularity of this treatment for dystonia, certain important aspects of the therapy may come as a surprise to new patients. BNT […]
Many individuals with dystonia seek out complementary and integrative therapies to help manage symptoms, including massage. However, the use of massage for dystonia is not well documented or studied. A recent case report, using objective rating scales, suggests that massage can temporarily reduce pain intensity, pain and spasm frequency, and dystonia symptoms in activities of […]
If you are in the States of AL, IL, KY, VT, TN, CA, ME, WA, AK, RI, MO, MT, KS, NM, ND, AR, HI, SC, or WI please send a message to your Senator who serves on the Senate Defense Appropriations Subcommittee today! Contact the office of your Senator serving on the Defense Appropriations Subcommittee […]
This content originally appeared in the Dystonia Dialogue. The Centers for Disease Control & Prevention (CDC) estimate that 60% of Americans are not active at the recommended levels for good health. The merits of exercise have been studied extensively, including in neurological conditions such as Parkinson’s disease and multiple sclerosis. Researchers are beginning to examine […]
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