News & Press Releases

Latest Dystonia News & Progress
dystonia strong ecard

New Dystonia Strong Awareness Merchandise

Celebrate the strength and resilience of the dystonia community while increasing awareness with DMRF’s new line of “Dystonia Strong” merchandise. Available items include a Dystonia Strong baseball style shirt, yard flag, notecards, magnet, and banner. September may be Dystonia Awareness Month, but promoting awareness is essential all year. Shop now.

Five adults and two children, one in a stroller, posing for a photo. A young brunette woman in the front row is sitting in a wheelchair. All are wearing matching Dystonia Zoo Day t-shirts.

Upcoming Dystonia Events – Join Us!

The Dystonia Medical Research Foundation (DMRF) is pleased to begin returning to in-person events in select cities to re-unite the dystonia community, promote awareness, and support the mission to find a cure. We’re especially excited to announce this year’s Dystonia Zoo Day season, with both in-person events and virtual opportunities to participate regardless of geography. […]

Semi-transparent profile of human head and neck with jaw area illuminated against dark background..

Deep Dive into Oromandibular Dystonia

This article was published in the Dystonia Dialogue. In a study partially supported by DMRF, an international team of investigators embarked on the most comprehensive examination of the clinical features of oromandibular dystonia with the purpose of reducing misdiagnosis. The symptoms of OMD include varying combinations of abnormal jaw, tongue, or lower face movements. OMD […]

Profile view of a glowing human brain against a dark, cloud-like background.

Investigating Dystonia Remission

This article was published in the Dystonia Dialogue. There are occasional reports of dystonia symptoms going into remission. Given the research and prognosis implications of this, investigators did a systematic review of reports of remission in the medical literature. They reviewed data from 2,551 cases with reports predominantly from individuals with cervical dystonia  or blepharospasm/Meige […]

Amanda Sleeper and friend 2022

Nashua Dystance4Dystonia 5K Returns

The Nashua Dystance4Dystonia 5K Walk/Run organized by Amanda Lockhead took place Sunday, May 15, 2022 to raise dystonia awareness and funds for urgently-needed research toward a cure. More than 100 people attended to share their support, after the event had been paused in recent years due to the pandemic. Donations continue to be calculated, but […]

Laboratory research in science and medical setting.

DMRF Research Awards Advance Understanding of Dystonia

The Dystonia Medical Research Foundation (DMRF) has announced the latest research grant and fellowship awards to advance progress toward improved dystonia treatment options and ultimately a cure. Dystonia is the third most common movement disorder, affecting approximately 250,000 Americans and potentially millions worldwide. “The pace of dystonia research has been accelerating faster and faster, and […]

medical professional with young female patient

Tips on Finding a Doctor

This article was published in the Dystonia Dialogue. One of the most common inquiries the DMRF receives is from people seeking help locating a doctor who is qualified to diagnose and treat dystonia. They may have received a tentative diagnosis from a general neurologist and need a movement disorder specialist to confirm or rule out […]

Dystonia Advocacy Day on Capitol Hill

Take Action to Educate Elected Officials about Dystonia

The Dystonia Advocacy Network (DAN) needs your help to raise awareness of dystonia with US elected officials and support the need for more dystonia research. Please consider becoming a dystonia advocate and joining with others across the country in making a difference. Sign up with DAN here. Being a dystonia advocate is easy, empowering, and […]

Dystonia Community

How You Can Help
en_USEnglish