News & Press Releases
Dystonia is a Movement Disorder
Action Alert for Dystonia Advocates: OMB Proposed Rule
Contact your Members of Congress to express concerns about a recent proposed rule that could negatively affect dystonia research. Background In late May, the Office
Dystonia Coalition Webinar Recording Now Available
What is the Dystonia Coalition, and how is it helping drive progress in dystonia research? Research collaboration is critical to advancing treatments and improving lives.
DMRF Welcomes New MSAC Members in 2026
The Dystonia Medical Research Foundation is welcoming the following new members to the Medical and Scientific Advisory Council (MSAC) this year. We look forward to
The Heat is On: Keeping Cool in Hot Weather
Summer months bring higher temperatures, and the need for greater awareness about the potential effects of heat on your health. According to the National Weather
Jules van Dongen Launches “Pedals & Points” Fundraiser for DMRF
FINAL DAYS: Two years after first experiencing symptoms and six months after being diagnosed with task-specific dystonia, professional dart player Jules van Dongen is turning
Renew Your DMRF Membership by June 15
DEADLINE APPROACHING: Renew your DMRF membership by June 15 to receive a free gift—this fan will keep you cool in the warmer days ahead. It’s easy
Save the Dates for Upcoming Dystonia Zoo Days
Get ready for these upcoming Dystonia Zoo Days and visit the event websites to learn more about T-shirt deadlines and sponsorship opportunities. You won’t want
Dystonia Medical Research Foundation Announces 2026 Grant and Fellowship Recipients to Advance Dystonia Research
The Dystonia Medical Research Foundation (DMRF), a leading non-profit organization dedicated to funding research to find a cure for dystonia, is proud to announce its
7th Samuel Belzberg International Dystonia Symposium to be Held April 7-9, 2027, in Seville
SAVE THE DATE: The 7th Samuel Belzberg International Dystonia Symposium will be held April 7-9, 2027, in Seville, Spain. Co-chaired by Buz Jinnah, MD, PhD,
Spring 2026 Dystonia Dialogue Available Now
In this issue: Why Does the DMRF Fund Basic Research? Dystonia Support Groups Meet People Where They Are Personal Profile: Ginny Bryan Focus On: Rare
Honoring Those Who Make a Difference: 50th Anniversary Tributes
In DMRF’s 50th year, we invite you to honor the people who have made a difference in your dystonia journey — doctors, therapists, caregivers, researchers,
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