News & Press Releases

Latest Dystonia News & Progress
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Survey: How is Covid-19 Affecting the Dystonia Community?

The DMRF is inviting feedback about how the Covid-19 pandemic is affecting individuals and families affected by dystonia. The information collected will help DMRF in the development and planning of future activities. The survey should take less than 10 minutes to complete. Click here to access the survey. The Dystonia Medical Research Foundation is a 501(c)(3) non-profit […]

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Musicians With Dystonia Renamed to Honor Leon Fleisher

The Musicians With Dystonia program of the DMRF has been renamed The Leon Fleisher Foundation for Musicians with Dystonia, in memory of the influential and beloved pianist and prominent public champion for dystonia. Mr. Fleisher sadly passed away earlier this year. The Leon Fleisher Foundation for Musicians with Dystonia was created in 2000 by French […]

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Quick Facts about Botulinum Neurotoxin Injections

Botulinum neurotoxin (BNT) injections are a common treatment for dystonia. This therapy is used to treat dystonia symptoms in a specific group of muscles, for example, the neck, face, or a limb. Despite the popularity of this treatment for dystonia, certain important aspects of the therapy may come as a surprise to new patients. BNT […]

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Gone Viral: Stories from the Dystonia Community in a Pandemic

This article was originally published in the Dystonia Dialogue. The Covid-19 outbreak has had a disproportionate impact on individuals with disabilities and chronic medical conditions, including those with dystonia. There has been widespread disruption of local public services, delays in treatment appointments, and changes to everyday routines. The DMRF checked in with several members of […]

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New Grant Explores Patient Response to Alcohol in Myoclonus-Dystonia

The Myoclonus-Dystonia Research Program is a partnership between the DMRF and the Brown Family Foundation focused on advancing knowledge of this inherited movement disorder. Myoclonus-dystonia (M-D) is a movement disorder characterized by a combination of rapid, brief muscle contractions (myoclonus) and/or sustained twisting and repetitive movements that result in abnormal postures (dystonia). Non-movement features may […]

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Calls for Grant & Research Fellow Applications

The Dystonia Medical Research Foundation (DMRF) is pleased to announce a Call for Applications for the following funding opportunities: Research Grant applications on Basic and Clinical Aspects of Dystonia Postdoctoral Research Fellowship applications Letters of Intent for both funding opportunities are due by end of day on Monday, October 19.  Letters of intent for grant […]

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Virtual Dystonia Zoo Day Games & Contests

Virtual Dystonia Zoo Day on Saturday, September 12, 2020 includes a number of fun games and contests. Details to participate are below. Where Can I Find the Scavenger Hunt Work Sheet? Download this work sheet and use it to check off images or likenesses of animals you find all around you – for example, in […]

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Virtual Dystonia Zoo Day is September 12, 2020

CLICK HERE ON SEPTEMBER 12 FOR LIVE STREAM BEGINNING AT 11AM CT. The Dystonia Medical Research Foundation (DMRF) has transitioned its popular local zoo walks into Virtual Dystonia Zoo Day on Saturday, September 12, 2020. The dystonia community is uniting online for a national day of action to boost dystonia awareness and raise funds for […]

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