The Dystonia Medical Research Foundation (DMRF) and Dystonia Medical Research Foundation Canada (DMRFC) will host a webinar, “Dystonia and the COVID-19 Virus – Your Questions Answered,” on Wednesday, April 1, 2020 at 3:30 pm ET. Movement disorder specialists Mark Hallett, MD of the National Institute of Neurological Disorders & Stroke and Robert Chen, MB BCh, […]
The Dystonia Medical Research Foundation (DMRF) is looking forward to a full and productive year in 2020, thanks to the generosity of supporters like you. Each New Year provides the opportunity to reflect on the past and set intentions for the future. 20/20 is the measure of clear vision. We approach the coming year with […]
Alex Klein’s latest solo recording, 20th Century Oboe Sonatas, has been nominated for a Grammy Award in the category of “Producer of the Year” in recognition of Jim Ginsburg of Cedille Records. Klein is among the world’s most famous oboe players and former principal oboist of the Chicago Symphony Orchestra. This is Klein’s first full-length […]
The dystonia community joins the world in mourning the loss of Caroll Spinney, whose iconic contributions to Sesame Street and popular culture as characters Bird Bird and Oscar the Grouch will endure indefinitely. Dystonia is a chronic neurological disorder that can dramatically impact quality of life. There are numerous types of dystonia, which can affect […]
With the support of our generous members, donors, and volunteers, we were able to accomplish a tremendous amount in 2019. Please click below to watch a special video ‘thank you’ recorded by DMRF Executive Director Janet Hieshetter which details the many accomplishments that were made possible this year. If you have not yet made your […]
Non-profit evaluator Charity Navigator has once again awarded the Dystonia Medical Research Foundation (DMRF) with the top 4-star rating. Charity Navigator bases its rating on an organization’s financial health and commitment to accountability and transparency. Thank you for trusting the DMRF with your donations and support. Together, we will find a cure for dystonia. The […]
This article appeared in the Dystonia Dialogue. “In my family, we were all aware that my father had a problem with his hands,” explained Carole Rawson, “and my parents’ generation was one in which, if there was something bad going on, you didn’t talk about it. He was very closed-lipped about it.” Carole’s father went […]
This article originally appeared in the Dystonia Dialogue. “During my fellowship training at Duke, the faces of dystonia patients with painful postures and tremors stayed with me,” said Noreen Bukhari-Parlakturk, MD, PhD, a movement disorder neurologist and clinical investigator at Duke Neurological Disorders Clinic. “Their stories of resilience and optimism—despite daily hardship and social misunderstanding—inspired […]
Throughout the year, volunteers across the country have organized events to bring visibility to dystonia and raise funds for urgently needed medical research toward a cure. 13 Dystonia Zoo Walks have drawn 5,000+ participants nationally and are on track to raise $300,000 in support of the Dystonia Medical Research Foundation. National Sponsors are Allergan and […]
The 14th Chicago Basket Bash, which took place October 27 at Joe’s Live Rosemont, is a charity prize raffle to raise dystonia awareness and funds for research toward a cure. The Basket Bash was started by the late Harriett Farber and her husband Joel Farber, in honor of daughter Shari Farber Tritt, who was diagnosed […]
Cheri Tannenbaum, daughter of DMRF Founders Sam & Fran Belzberg, has published a memoir, Woman of Few Words: My Creative Journey With Dystonia. Cheri is sharing her philosophy on how to be a functioning, fulfilled individual despite daunting challenges. DMRF is grateful to Cheri for sharing her profound story to increase awareness of dystonia and […]
Toledo is the latest of 13 cities across the USA to host a Dystonia Zoo Walk in 2019. The event on October 5 was the very first Dystonia Zoo Walk to take place in Toledo. The purpose of this community day at the zoo was to raise dystonia awareness and funds for medical research. Dystonia Zoo Walks […]
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