News & Press Releases

Latest Dystonia News & Progress
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Do You Have 2020 Vision?

The Dystonia Medical Research Foundation (DMRF) is looking forward to a full and productive year in 2020, thanks to the generosity of supporters like you. Each New Year provides the opportunity to reflect on the past and set intentions for the future. 20/20 is the measure of clear vision. We approach the coming year with […]

Dystonia Advocacy Day on Capitol Hill

Apply for Douglas Kramer Young Advocate Award

The Dystonia Medical Research Foundation (DMRF) is pleased to announce the availability of applications for the 2020 Douglas Kramer Young Advocate Award. This award will be given to individuals who have demonstrated a commitment to making a difference for those affected by dystonia through advocacy. Eligible candidates must: Be 20 to 35 years of age […]

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DMRF Salutes Grammys for Nominating Alex Klein’s First Album since Demise of Performing Career due to Focal Dystonia

Alex Klein’s latest solo recording, 20th Century Oboe Sonatas, has been nominated for a Grammy Award in the category of “Producer of the Year” in recognition of Jim Ginsburg of Cedille Records. Klein is among the world’s most famous oboe players and former principal oboist of the Chicago Symphony Orchestra. This is Klein’s first full-length […]

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Dystonia Community Mourns Sesame Street Icon Caroll Spinney

The dystonia community joins the world in mourning the loss of Caroll Spinney, whose iconic contributions to Sesame Street and popular culture as characters Bird Bird and Oscar the Grouch will endure indefinitely. Dystonia is a chronic neurological disorder that can dramatically impact quality of life. There are numerous types of dystonia, which can affect […]

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Thank You for Your Support in 2019!

With the support of our generous members, donors, and volunteers, we were able to accomplish a tremendous amount in 2019. Please click below to watch a special video ‘thank you’ recorded by DMRF Executive Director Janet Hieshetter which details the many accomplishments that were made possible this year. If you have not yet made your […]

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DMRF Earns Top Rating from Charity Navigator

Non-profit evaluator Charity Navigator has once again awarded the Dystonia Medical Research Foundation (DMRF) with the top 4-star rating. Charity Navigator bases its rating on an organization’s financial health and commitment to accountability and transparency. Thank you for trusting the DMRF with your donations and support. Together, we will find a cure for dystonia. The […]

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Non-Invasive Brain Stimulation Therapies Offer New Therapeutic Opportunities

This article originally appeared in the Dystonia Dialogue. “During my fellowship training at Duke, the faces of dystonia patients with painful postures and tremors stayed with me,” said Noreen Bukhari-Parlakturk, MD, PhD, a movement disorder neurologist and clinical investigator at Duke Neurological Disorders Clinic. “Their stories of resilience and optimism—despite daily hardship and social misunderstanding—inspired […]

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