News & Press Releases

Latest Dystonia News & Progress
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Family Healing in Living with Dystonia

By Karen K. Ross, PhD, DMRF Vice President of Support This article was published in the Dystonia Dialogue. Our family felt like the rug was pulled out from under us when my son was first diagnosed with dystonia. Each family member was affected in profound ways, and we experienced the entire range of emotions. Shock, […]

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Not Born Yesterday: Dystonia & Aging

This article was published in the Dystonia Dialogue. Whether someone has lived with dystonia for months or decades, the disorder often requires adjustments across many areas of daily life. The advantages of experience and aging can help ease certain aspects of the dystonia journey, while evolving realities may create new challenges. Being aware of the […]

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Discovery Begins with Imagination

The Dystonia Medical Research Foundation (DMRF) was founded on the promise two parents made to their child. 45 years ago, Sam and Fran Belzberg vowed to do whatever it took to find answers for their newly diagnosed daughter and for people everywhere living with dystonia. They imagined a future without dystonia and the DMRF’s commitment […]

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$5Cure4Dystonia Raises $100K+ for Medical Research

Mike Delise and Jason Dunn are on a mission to find a cure for dystonia $5 at a time. They are also educating the world about this under-recognized brain disorder that affects more people than ALS, muscular dystrophy, and cystic fibrosis combined. Mike became passionate about increasing dystonia awareness after meeting Jason, a childhood friend […]

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Individuals with Dystonia Needed for Brain Function Study

The Center for Neurosciences at The Feinstein Institute for Medical Research conducts one of the nation’s leading brain imaging programs directed by neuroscientist, David Eidelberg, MD. The program is internationally recognized for developing new techniques to identify and measure patterns and circuits of brain function in people with disorders such as Parkinson’s disease, Huntington’s disease, […]

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Dystonia Researcher Awarded $11.9 Million NIH Grant to Lead New Center for Neurological Voice Disorders

DMRF extends congratulations to Kristina Simonyan, MD, PhD, Dr med, Director of laryngology research at Mass Eye and Ear, for being awarded an $11.9 million P50 Clinical Research Center Grant from the National Institute on Deafness and Other Communicable Disorders (NIDCD) of the National Institute of Health (NIH) to form a new multidisciplinary center across […]

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Virtual Dystonia Zoo Day Highlights

Thank you to everyone who stepped up to support Virtual Dystonia Zoo Day to benefit the Dystonia Medical Research Foundation (DMRF). The following videos are excerpts from the program on September 25, 2021. There is still time to donate! Below is a pre-recording of the Loosey Goosey Exercise Warm Up. Below is a recording of […]

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Mental Health Resources

Dystonia is a neurological disorder that affects the physical body, but the impact goes far deeper and may affect a person’s emotional and mental health. Individuals diagnosed with dystonia commonly experience symptoms that affect more than how the body moves. If you are feeling depressed, anxious, or overwhelmed, please consider reaching out for help. The […]

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New Dystonia Drug Candidates Discovered

Several research teams reported major advances in the development of new drugs to treat movement disorders including dystonia. In one of the preclinical studies, investigators have identified several compounds that retain the beneficial effects of anticholinergic drugs like Artane® while eliminating side effects. Another research group successfully corrected dystonic brain abnormalities in mice with a […]

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Creative Coping: Tips & Tricks for Daily Life

This article was published in the Dystonia Dialogue. Medical treatment for dystonia is available, but effectiveness varies. Few treatment options, on their own, provide 100% relief. Living well with dystonia often requires creative adaptations invented by those experiencing the disorder firsthand. An international team of clinicians recently published examples of the “self-concocted, curious, and creative” […]

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