Celebrate the strength and resilience of the dystonia community while increasing awareness with DMRF’s new line of “Dystonia Strong” merchandise. Available items include a Dystonia Strong baseball style shirt, yard flag, notecards, magnet, and banner. September may be Dystonia Awareness Month, but promoting awareness is essential all year. Shop now.
The Dystonia Medical Research Foundation (DMRF) is pleased to begin returning to in-person events in select cities to re-unite the dystonia community, promote awareness, and support the mission to find a cure. We’re especially excited to announce this year’s Dystonia Zoo Day season, with both in-person events and virtual opportunities to participate regardless of geography. […]
Dystonia Medical Research Foundation (DMRF) Board Member Pamela Sloate died from cancer on April 12, 2022. In her honor, the newly named Pamela Sloate Bronx Dystonia Zoo Day to benefit DMRF will take place Sunday, September 10, 2022 at The Bronx Zoo. The event is in its 6th year, after a two-year hiatus due to […]
This article was published in the Dystonia Dialogue. Excessive muscle contractions are a hallmark sign of dystonia, but the muscles are not the source of the problem. The muscles are responding to abnormal signals from the brain, which cause them to flex, and this results in dystonic movements and postures. Research shows that the origins […]
This article was published in the Dystonia Dialogue. In a study partially supported by DMRF, an international team of investigators embarked on the most comprehensive examination of the clinical features of oromandibular dystonia with the purpose of reducing misdiagnosis. The symptoms of OMD include varying combinations of abnormal jaw, tongue, or lower face movements. OMD […]
This article was published in the Dystonia Dialogue. There are occasional reports of dystonia symptoms going into remission. Given the research and prognosis implications of this, investigators did a systematic review of reports of remission in the medical literature. They reviewed data from 2,551 cases with reports predominantly from individuals with cervical dystonia or blepharospasm/Meige […]
The Nashua Dystance4Dystonia 5K Walk/Run organized by Amanda Lockhead took place Sunday, May 15, 2022 to raise dystonia awareness and funds for urgently-needed research toward a cure. More than 100 people attended to share their support, after the event had been paused in recent years due to the pandemic. Donations continue to be calculated, but […]
The Dystonia Medical Research Foundation (DMRF) has announced the latest research grant and fellowship awards to advance progress toward improved dystonia treatment options and ultimately a cure. Dystonia is the third most common movement disorder, affecting approximately 250,000 Americans and potentially millions worldwide. “The pace of dystonia research has been accelerating faster and faster, and […]
This article was published in the Dystonia Dialogue. One of the most common inquiries the DMRF receives is from people seeking help locating a doctor who is qualified to diagnose and treat dystonia. They may have received a tentative diagnosis from a general neurologist and need a movement disorder specialist to confirm or rule out […]
This article was published in the Dystonia Dialogue. Botulinum neurotoxin (BNT) therapy is one of the most common treatments to reduce dystonia symptoms. BNT therapy involves injecting appropriate doses of BNT into the appropriate selection of muscles. Both the muscles to be treated and the specific doses determine the dosing regimen for an individual patient. […]
The Dystonia Advocacy Network (DAN) needs your help to raise awareness of dystonia with US elected officials and support the need for more dystonia research. Please consider becoming a dystonia advocate and joining with others across the country in making a difference. Sign up with DAN here. Being a dystonia advocate is easy, empowering, and […]
The Dystonia Medical Research Foundation (DMRF) announced at their annual meeting a new President of the Board of Directors and two new Directors as a result of joining with the non-profit organization Cure Dystonia Now. Each of these new appointments will enhance the DMRF’s work in service to the dystonia community. Mark Rudolph was appointed […]
English