Living with Cervical Dystonia: Nadia’s Story
In honor of International Women’s Day on March 8, this month the Dystonia Medical Research Foundation (DMRF) is recognizing women with cervical dystonia whose perseverance
News & Press Releases
Dystonia is a Movement Disorder
Register Now for DMRF Dystonia Pet Palooza
The Dystonia Medical Research Foundation’s Dystonia Pet Palooza is a program to spread awareness of dystonia and how it changes lives, and celebrate the important
Living with Cervical Dystonia: Diana’s Story
In honor of International Women’s Day on March 8, this month the Dystonia Medical Research Foundation (DMRF) is recognizing women with cervical dystonia whose perseverance
Living with Cervical Dystonia: Pat’s Story
In honor of International Women’s Day on March 8, this month the Dystonia Medical Research Foundation (DMRF) is recognizing women with cervical dystonia whose perseverance
DMRF Urges Trump Administration to Retain Indirect Cost Reimbursements from NIH
Rare Disease Research Will be Significantly Impacted by Change in Reimbursement Levels CHICAGO, IL—The Dystonia Medical Research Foundation (DMRF) joins with other national voluntary health
Jon Davis Continues #Riding4Us with $25,000 Goal
DMRF Board Member Jon Davis is back on the road this year–aiming to ride 5,000 miles and raise $25,000. All monies raised go towards research
Jacob Peterson Running for Dystonia
Jacob Peterson is running for dystonia support, education and research—and you can help! Contribute to Jacob’s online fundraiser for the Dystonia Medical Research Foundation as
Dystonia Advocacy Network Capitol Hill Day March 4-5
The next Dystonia Advocacy Network (DAN) Capitol Hill Advocacy Day will be held March 4-5, 2025, in Washington D.C. This is your opportunity to have
New Brochure on Truncal Dystonia Now Available
The truncal dystonia (axial dystonia) brochure is the latest addition to the DMRF’s library of resources. Truncal dystonia impacts the muscles in the middle trunk
Season’s Greetings from the Dystonia Medical Research Foundation
On behalf of the leadership and staff of the Dystonia Medical Research Foundation, DMRF Executive Director Janet Hieshetter would like to wish all of you
During the Holiday Season There Are Many Things We Are Thankful For.
At the DMRF we are happy that our work gives hope to people who suffer from dystonia. By Janet Hieshetter, Executive Director, Dystonia Medical Research
Real Results. Real Hope. Your Donation Makes a Difference!
Imagine a world without dystonia. A world where individuals and families can live life to the fullest, free from the constraints of painful involuntary muscle
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