About Us

Dystonia is a Movement Disorder

The DMRF is a 501(c)3 non-profit organization dedicated to serving all people with dystonia and their families.

Since 1976, the DMRF has grown from a small family-based foundation into a dynamic membership-driven organization led by a Board of Directors and network of volunteers with personal connections to dystonia. Because dystonia hits so close to home for our directors and volunteers, the DMRF leadership is motivated by an unrelenting drive to find a cure and an unwavering commitment to serving people affected by dystonia.

The DMRF has high ratings from Charity Navigator (4 Stars) and Guidestar (Platinum rating). We want to assure you that you can give with confidence and we encourage you to review our financials.