Privacy Statement

Transparency & Responsibility

The Dystonia Medical Research Foundation (DMRF) has created this privacy statement in order to demonstrate our firm commitment to privacy.

Your privacy is a priority for the Dystonia Medical Research Foundation (DMRF). We are committed to a successful stewardship program for our donors.  For donations of $100 or more, the DMRF may acknowledge the names of individual donors in our annual report and similar publications.  For corporate and foundation partners, we may acknowledge the names in publicity surrounding events and in our annual report. All DMRF donors have the option at any time to request that their names not be published in DMRF materials or publicity.  Those who have asked to remain anonymous will be excluded from this listing.

The DMRF is committed to respecting the privacy of our donors. We maintain consistent policies and procedures for guarding privacy and confidentiality of donor information.  All information concerning donors or prospective donors, including their names, addresses and telephone numbers, the names of their beneficiaries, the amount of their gift, etc., shall be kept strictly confidential by the DMRF, its staff and volunteers, unless permission is obtained from donors to release such information.  All information that is obtained and maintained by the DMRF is done through private and secure systems.  Access to the data is on a needs only basis.  A unique login name and password are required to enter the database.

Donor information is used solely by DMRF and is not distributed or sold to third parties.  Should you wish to update or correct your personal contact information, remove yourself from any or all of our contact lists, or discuss a privacy concern with us, please contact the DMRF at 312-755-0198 or dystonia@dystonia-foundation.org.

To the extent any donations are processed through a third-party service provider, our donors’ information will only be used for purposes necessary to process the donation.

The following discloses our information gathering and dissemination practices for this web site:

We use your IP address to help diagnose problems with our server, and to administer our web site. Our site's registration forms require users to give us contact information (like their name and email address) and demographic information (like their zip code, age, or income level). We use customer contact information from the registration form to send the user information about. The customer's contact information is also used to contact the visitor when necessary. Users may opt-out of receiving future mailings; see the choice/opt-out section below.

This site contains links to other sites. Dystonia Medical Research Foundation (dystonia-foundation.org) is not responsible for the privacy practices or the content of such linked web sites.

Our site uses an order form for customers to request information, products, and services. We collect visitor's contact information (like their email address) and financial information (like their account or credit card numbers). Contact information from forms is used to send orders and information to our customers. The customer's contact information is also used to get in touch with the visitor when necessary. The contact information collected may be exchanged or rented to other organizations with like purposes. Users may opt-out of receiving future mailings; see the choice/opt-out section below. Financial information that is collected is only used to bill the user for products and services.

Our online surveys may ask visitors for contact information (like their email address). The information collected may be exchanged or rented to other nonprofits with like purposes. Users may opt-out of receiving future mailings; see the choice/opt-out section below.

This site may make chat rooms, forums, message boards, weblogs and/or news groups available to its users. Please remember that any information that is disclosed in these areas becomes public information and you should exercise caution when deciding to disclose your personal information.

This site has security measures in place to protect the loss, misuse and alteration of the information under our control. We use industry-standard SSL encryption to scramble credit card information on the way from the shopper to our server. Our servers are protected and require user authentication for access.

Our site provides users the opportunity to opt-out of receiving communications from us and our partners at the point where we request information about the visitor.

This site gives users the following options for removing their information from our database to not receive future communications or to no longer receive our service.

1. Contact: webmaster@dystonia-foundation.org/ by email
2. Send a request to:
Webmaster
Dystonia Medical Research Foundation
One East Wacker Drive, Suite 1730
Chicago, Illinois 60601-1980

This site gives users the following options for changing and modifying information previously provided.

1. Contact: webmaster@dystonia-foundation.org/ by email
2. Send a request to:
Webmaster
Dystonia Medical Research Foundation
One East Wacker Drive, Suite 1730
Chicago, Illinois 60601-1980

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