Tag: dystonia awareness month

Thank You for Promoting National Dystonia Awareness Month!

Thank you to all the awareness warriors who organized local events last month or participated in a Dystonia Zoo Day this year. Each September, National Dystonia Awareness Month brings us a unique opportunity to focus our efforts to help others understand what dystonia is and how it changes lives. DMRF would like to thank the […]

September is Dystonia Awareness Month

Raise Awareness and Make a Difference During the month of September, the DMRF is enlisting volunteers to raise awareness for dystonia.  An estimated 250,000 people in the United States have dystonia, a chronic movement disorder affecting the brain and nervous system. It is the third most common movement disorder after essential tremor and Parkinson disease. Dystonia […]

H.Res. 1413 Recognizes Dystonia Awareness Month

As a testament to the tireless work of the dystonia community’s legislative advocates, H.Res.1413 – “Expressing support for designation of September 2022 as ‘National Dystonia Awareness Month’ and raising awareness and understanding of the disorder of dystonia” was entered into the Congressional Record on September 30th. The resolution to recognize Dystonia Awareness Month was championed […]

Living with Cervical Dystonia

September is Dystonia Awareness Month. Join us for a conversation about cervical dystonia, its impact, diagnosis and management, and the importance of speaking with a healthcare provider if you are experiencing potential symptoms. Janet Hieshetter, Dystonia Medical Research Foundation’s Executive Director, is joined by Crystal Edmonds, who is diagnosed with cervical dystonia, and Dr. Diego […]

$5Cure4Dystonia Raises $100K+ for Medical Research

Mike Delise and Jason Dunn are on a mission to find a cure for dystonia $5 at a time. They are also educating the world about this under-recognized brain disorder that affects more people than ALS, muscular dystrophy, and cystic fibrosis combined. Mike became passionate about increasing dystonia awareness after meeting Jason, a childhood friend […]