Raise Awareness and Make a Difference During the month of September, the DMRF is enlisting volunteers to raise awareness for dystonia. An estimated 250,000 people in the United States have dystonia, a chronic movement disorder affecting the brain and nervous system. It is the third most common movement disorder after essential tremor and Parkinson disease. Dystonia […]
As a testament to the tireless work of the dystonia community’s legislative advocates, H.Res.1413 – “Expressing support for designation of September 2022 as ‘National Dystonia Awareness Month’ and raising awareness and understanding of the disorder of dystonia” was entered into the Congressional Record on September 30th. The resolution to recognize Dystonia Awareness Month was championed […]
September is Dystonia Awareness Month. Join us for a conversation about cervical dystonia, its impact, diagnosis and management, and the importance of speaking with a healthcare provider if you are experiencing potential symptoms. Janet Hieshetter, Dystonia Medical Research Foundation’s Executive Director, is joined by Crystal Edmonds, who is diagnosed with cervical dystonia, and Dr. Diego […]
Mike Delise and Jason Dunn are on a mission to find a cure for dystonia $5 at a time. They are also educating the world about this under-recognized brain disorder that affects more people than ALS, muscular dystrophy, and cystic fibrosis combined. Mike became passionate about increasing dystonia awareness after meeting Jason, a childhood friend […]
Dystonia Community
How You Can Help
There are many benefits to joining a dystonia support group. Find the support group nearest you and enjoy the rewards.
You can connect with others in the dystonia community who are committed to making a difference. Getting involved is empowering.
The Dystonia Medical Research Foundation (DMRF) has stood up for the dystonia community since 1976. Join us in our global effort to find a cure.
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