As a testament to the tireless work of the dystonia community’s legislative advocates, H.Res.1413 – “Expressing support for designation of September 2022 as ‘National Dystonia Awareness Month’ and raising awareness and understanding of the disorder of dystonia” was entered into the Congressional Record on September 30th.

The resolution to recognize Dystonia Awareness Month was championed by Rep. Christopher Smith of New Jersey and Rep. Jan Schakowsky of Illinois.

Congratulations to our volunteers who have raised awareness of dystonia with Members of Congress for making this possible.

The Dystonia Medical Research Foundation is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families.