Never Look Down – Children’s Book
It takes a pretty special kid to view being diagnosed with a neurological disorder as an opportunity to contribute something positive to the world. But that’s how Zachary Weinstein responded to developing dystonia.
Zachary and his mother Alyssa Dver wrote a book entitled Never Look Down in partnership with the Dystonia Medical Research Foundation (DMRF) so that other children like Zachary feel empowered, not diminished, by this illness. The title is taken from Zachary’s personal motto for overcoming obstacles.
Never Look Down provides newly diagnosed children and their families a simple way to understand dystonia – what the symptoms may be and how it can affect everyday life. The book also provides a variety of resources that can help people with dystonia, their friends, and family members to be better informed and cope with this chronic disorder.
There are several forms of dystonia that typically begin in childhood, including primary and secondary forms. If a child in your family is impacted by dystonia, you may be eligible to receive a copy of Never Look Down at no charge. Please contact the DMRF at 312-755-0198 or firstname.lastname@example.org.