I was diagnosed with dystonia when I was 13. I came home from school with a note from my teacher saying that she could no longer read my handwriting. I taught myself overnight how to write with my other hand. When I could no longer play the cello at age 15, I turned to singing. At 30, even walking became difficult and by 40 I was heading toward life in a wheelchair.

A procedure called Deep Brain Stimulation (DBS), drilling holes in my head and batteries in my chest, gave me my life back. I could do the things I could do before I knew what dystonia was. I tell people at 35, my birthday wish was ‘I hope my dystonia goes away’. Today, at 55, it’s ‘I hope that I can go on a 100-mile bike ride’. Not everyone has the success that I did with DBS.

I have so much to be grateful for that I feel a responsibility to pay it forward.  In 2018, I joined the Board of the DMRF.

I have two goals this year: one I’ve got and one I need help with.

  1. The first one is to ride 4,000 miles this year. With under 200 miles to go, I’ve got that one.
  2. My second goal is to raise $20,000. With under $2,000 to go, I need YOUR help!

I will personally match the first $4000 raised. Help me reach my goal!

  • Trailblazers – $.01 per mile ($40)
  • KOMs – $.10 per mile ($400)
  • Any level of help is appreciated!

PS – In August, I will be biking through Scotland – follow posts on social media and track my progress to reaching 4000 miles and dollars here!

Thank you Donors!

Diane Powers

I read your story in Dystonia Dialogue and was truly inspired. Keep riding!

Alex Churchill

Very inspiring story Jon!


Adele Carter

Kery Kilgannon

Go Jon!!!


Yi Li

Namita Amin

Vivek Khemka

Jon, thanks for sharing your story. Very inspirational and I had no clue the challenges you were going through during business school

matt downing

Eduardo Tobon

Go Jon!!!

Dea Kampbjorn

Jon Davis – Riding4Us

$20,277 of $20,000 raised
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Donation Total: $40.00 One Time