I was diagnosed with dystonia when I was 13. I came home from school with a note from my teacher saying that she could no longer read my handwriting. I taught myself overnight how to write with my other hand. When I could no longer play the cello at age 15, I turned to singing. At 30, even walking became difficult and by 40 I was heading toward life in a wheelchair.
A procedure called Deep Brain Stimulation (DBS), drilling holes in my head and batteries in my chest, gave me my life back. I could do the things I could do before I knew what dystonia was. I tell people at 35, my birthday wish was ‘I hope my dystonia goes away’. Today, at 55, it’s ‘I hope that I can go on a 100-mile bike ride’. Not everyone has the success that I did with DBS.
I have so much to be grateful for that I feel a responsibility to pay it forward. In 2018, I joined the Board of the DMRF.
I will personally match the first $4000 raised. Help me reach my goal!
- Trailblazers – $.01 per mile ($40)
- KOMs – $.10 per mile ($400)
- Any level of help is appreciated!
PS – In August, I will be biking through Scotland – follow posts on social media and track my progress to reaching 4000 miles and dollars here!
Thank you Donors!