The Dystonia Medical Research Foundation (DMRF), a leading non-profit organization dedicated to funding research to find a cure for dystonia, is proud to announce its 2024 grant and fellowship recipients. This year, the DMRF awarded seven grants and fellowships totaling over $570,000 for basic and clinical dystonia research projects. These grants and fellowships will support […]
DYT1 dystonia, also known as early-onset torsion dystonia, is a severe form of hereditary, generalized dystonia.
Groundbreaking Research to be Presented Dublin – May 30, 2023 — The Dystonia Medical Research Foundation (DMRF) and Dystonia Europe are pleased to announce the upcoming Samuel Belzberg 6th International Dystonia Symposium, set to take place in Dublin, Ireland, from June 1st to June 3rd, 2023. The Symposium is named in memory of Samuel Belzberg, […]
The preview days for the DMRF’s first nationwide Bid it Up for Dystonia online auction are now open. We have some incredible one-of-a-kind opportunities including fabulous trips (with airfare, good for three years, no blackouts), autographed memorabilia from iconic sports figures, unique experiences with DMRF celebrities, tech gadgets for kids of all ages, and more. April 11-17 – […]
The Dystonia Medical Research Foundation (DMRF) has announced the latest research grant and fellowship awards to advance progress toward improved dystonia treatment options and ultimately a cure. Dystonia is the third most common movement disorder, affecting approximately 250,000 Americans and potentially millions worldwide. “The DMRF prides itself in funding the most promising research and are […]
The Dystonia Medical Research Foundation (DMRF) has announced the latest research grant and fellowship awards to advance progress toward improved dystonia treatment options and ultimately a cure. Dystonia is the third most common movement disorder, affecting approximately 250,000 Americans and potentially millions worldwide. “The pace of dystonia research has been accelerating faster and faster, and […]
A protein in the brain called TorsinA is known to cause childhood onset dystonia when it cannot function properly due to genetic changes in the DYT1/TOR1A gene. This makes TorsinA a possible target for new treatment approaches. Numerous research teams across the world are investigating whether restoring normal TorsinA function could be an effective strategy […]
Dystonia is a movement disorder characterized by excessive muscle contractions that cause abnormal movements and postures. Dystonia is not caused by pathology in a specific brain structure, but by dysfunctional circuits of communication between multiple brain areas responsible for coordinating and controlling body movement. Despite substantial progress made in understanding various aspects of dystonia, there […]
This article appeared in the Dystonia Dialogue. “In my family, we were all aware that my father had a problem with his hands,” explained Carole Rawson, “and my parents’ generation was one in which, if there was something bad going on, you didn’t talk about it. He was very closed-lipped about it.” Carole’s father went […]
An estimated 250,000 people in the United States have dystonia, a chronic movement disorder affecting the brain and nervous system. It is the third most common movement disorder after essential tremor and Parkinson disease. Dystonia causes excessive, uncontrollable muscle spasms. The muscle spasms twist the body and limbs into involuntary movements and awkward postures. Estimates […]
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