Focus On: DYT1 Dystonia

DYT1 dystonia, also known as early-onset torsion dystonia, is a severe form of hereditary, generalized dystonia.

What Makes You Stronger: Mother & Daughter Reflect on Family Legacy of Living Beyond Dystonia

This article appeared in the Dystonia Dialogue. “In my family, we were all aware that my father had a problem with his hands,” explained Carole Rawson, “and my parents’ generation was one in which, if there was something bad going on, you didn’t talk about it. He was very closed-lipped about it.” Carole’s father went […]