It is not uncommon for some people with dystonia to also suffer with depression and/or anxiety. Knowing where to seek help can be overwhelming and sometimes a hindrance to getting help. To break down that barrier, DMRF spoke with Laurie Strawgate-Kanefsky, PhD to explain the various types of mental health providers and offer some critical […]
At a Glance: Untreated mental health disorders reduce quality of life for individuals with dystonia. The Covid-19 pandemic has taken a global toll on peoples’ mental health. DMRF created a Mental Health Programming Committee to formalize efforts to address mental health needs. The hallmark symptoms of dystonia are involuntary movements and postures, but this only […]
The DMRF is proud to partially support two Dystonia Coalition Pilot Project Awards. The goal of the Pilot Projects Program is to foster the most promising clinical and translational studies on dystonia. Moodscreen for Cervical Dystonia: A Diagnostic Accuracy Study of Depression and Anxiety Davide Martino, MD, PhD, University of Calgary Depression and anxiety frequently […]
Dystonia is a neurological disorder that affects the physical body, but the impact goes far deeper and may affect a person’s emotional and mental health. Individuals diagnosed with dystonia commonly experience symptoms that affect more than how the body moves. If you are feeling depressed, anxious, or overwhelmed, please consider reaching out for help. The […]
This article was published in the Dystonia Dialogue. Dystonia is a neurological disorder that causes excessive, involuntary muscle contractions. These muscle contractions result in abnormal muscle movements and body postures, making it difficult for individuals to control their movements. People who live with dystonia may also experience a range of non-motor symptoms that dramatically impact […]
There are many types of dystonia, often presenting with very distinct symptoms. There is also a great deal of overlap in the physical manifestation of symptoms across the different types. Non-motor symptoms are common, including psychiatric disorders such as depression and anxiety. There have been numerous genes identified to cause dystonia, and it is not […]
Mindfulness meditation is a technique that can provide support during times of elevated stress. A daily practice can reduce tension and pain and provide moments of peace. Mindfulness meditation is not a substitute for medical treatment. It is a process to support overall wellness for individuals living with and without chronic conditions. DMRF Vice President […]
Stress is notorious for making dystonia symptoms worse. The following gentle reminders may help ease stress before it becomes overwhelming, especially during these unprecedented times due to the COVID-19 pandemic. Acknowledge loss and change. Daily life may feel very different today than it did a month, or even a week ago. You may be unable […]
Dystonia is a neurological disorder that affects the physical body, but the impact goes far deeper. Individuals diagnosed with dystonia commonly experience symptoms that affect more than how the body moves. Living well with dystonia often requires addressing more than the physical movement symptoms. Non-motor symptoms are a significant burden, and can be as disabling—or […]
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