Events
If you would like to plan an event in your community, please contact us with questions.
Connecticut Dystonia Zoo Day
November 1, 2026 – 9:30 AM ET
Hanson Cabin/Beardsley Zoo
Connecticut is one of the DMRF’s nationwide, family-friendly Zoo Days bring together community members and supporters to raise awareness and funds to support the DMRF’s mission, as well as provide important connection and information for those living with dystonia. Zoo Days participants receive a t-shirt and refreshments, and enjoy a program of speakers and activities before heading off to enjoy the zoo.
Boston Dystonia Zoo Day
October 4, 2026 – 9 AM ET
Nature’s Pavilion Tent, Franklin Park Zoo
Boston is one of the DMRF’s nationwide, family-friendly Zoo Days bring together community members and supporters to raise awareness and funds to support the DMRF’s mission, as well as provide important connection and information for those living with dystonia. Zoo Days participants receive a t-shirt and refreshments, and enjoy a program of speakers and activities before heading off to enjoy the zoo.
Rochester NY Dystonia Zoo Day
October 3, 2026 – 11 AM ET
Seneca Park-Longhouse Shelter & Seneca Park Zoo
Rochester, NY is one of the DMRF’s nationwide, family-friendly Zoo Days bringing together community members and supporters to raise awareness and funds to support the DMRF’s mission, as well as provide important connection and information for those living with dystonia. Zoo Days participants receive a t-shirt and refreshments, and enjoy a program of speakers and activities before heading off to enjoy the zoo.
Virtual YOU Day
September 30, 2026
This is a new kind of event designed to help you take back your power through self-care. It’s about focusing on what you can control, creating space to care for yourself every day, and finding strength in community. Living with dystonia can be overwhelming—but knowledge, support, and intentional self-care can help restore a sense of control and resilience.
Indianapolis Dystonia Zoo Day
September 19, 2026 – 10 AM ET
White River Waterfront Pavilion, Next to Indy Zoo
Indianapolis is one of DMRF’s 10 family-friendly Dystonia Zoo Days held across the country, bringing together community members and supporters to raise awareness and funds to support the DMRF’s mission, as well as provide important connection and information for those living with dystonia. Dystonia Zoo Day participants receive a t-shirt and refreshments, and enjoy activities and a program of speakers before heading off to enjoy the zoo.
Michigan Dystonia Zoo Day
September 19, 2026 – 10 AM ET
Tiger Den Pavilion, Next to Potter Park Zoo
Michigan is one of the DMRF’s nationwide, family-friendly Dystonia Zoo Days bring together community members and supporters to raise awareness and funds to support the DMRF’s mission, as well as provide important connection and information for those living with dystonia. Dystonia Zoo Days participants receive a t-shirt and refreshments, and enjoy a program of speakers and activities before heading off to enjoy the zoo.
Patrick Anderberg 100-Mile Ultramarathon
September 17-20, 2026 – 9 AM ET
Grindstone Trail Running Festival – Virginia
Support me as I take on a 100-mile ultramarathon in the Grindstone Trail Running Festival, a one-of-a-kind running adventure through acres of national forest just west of the Shenandoah Valley.
Pittsburgh Dystonia Zoo Day
September 13, 2026 – 9 AM ET
Pittsburgh Zoo & Aquarium / Garden Tent
This is one of DMRF’s 10 family-friendly Dystonia Zoo Days held across the country, bringing together community members and supporters to raise awareness and funds to support the DMRF’s mission, as well as provide important connection and information for those living with dystonia. Dystonia Zoo Day participants receive a t-shirt and refreshments, and enjoy activities and a program of speakers before heading off to enjoy the zoo.
Dystonia Awareness Walk
September 12, 2026 – 10 AM ET
Bartlem Park
Join host Timothy Insogna for the Dystonia Awareness Walk, and get ready for fun, community and raising dystonia awareness!
Long Island Dystonia Zoo Day
September 12, 2026 – 9:30 AM ET
Suffolk County Farm & Education Center
Long Island is one of DMRF’s 10 family-friendly Dystonia Zoo Days held across the country, bringing together community members and supporters to raise awareness and funds to support the DMRF’s mission, as well as provide important connection and information for those living with dystonia. Dystonia Zoo Day participants receive a t-shirt and refreshments, and enjoy activities and a program of speakers before heading off to enjoy the zoo.
Deep Brain Stimulation Webinar
September 9, 2026 – 6 PM CT | 7 PM ET
Online
Join us for a discussion about deep brain stimulation (DBS) for dystonia. Guest speakers include Neepa Patel, MD, Rush University and Liz Rawson, Member of the DMRF Board of Directors.
Ride for Dystonia
August 29, 2026 – 1 PM ET
Shoaff Park
After organizing the Fort Wayne Dystonia Zoo Day for many years, Carson Olin and his family are back with new event to increase awareness and raise funds for dystonia research. Join us for a family-friendly day of fun, community and cars!
Twin Cities Dystonia Zoo Day
August 22, 2026 – 10 AM CT
Como Park Zoo
Twin Cities is one of DMRF’s 10 family-friendly Dystonia Zoo Days held across the country, bringing together community members and supporters to raise awareness and funds to support the DMRF’s mission, as well as provide important connection and information for those living with dystonia. Dystonia Zoo Day participants receive a t-shirt and refreshments, and enjoy activities and a program of speakers before heading off to the zoo.
Toledo Dystonia Zoo Day
August 15, 2026 – 9 AM ET
Toledo Zoo & Aquarium
DMRF’s nationwide, family-friendly Dystonia Zoo Days bring together community members and supporters to raise awareness and funds to support the DMRF’s mission, as well as provide important connection and information for those living with dystonia.
Movers & Shakers
DIY Fundraising Events
Movers & Shakers is the DMRF’s grassroots fundraising and awareness program, designed to make it easy—and fun—for individuals and groups to host their own events in support of people living with dystonia.
DMRF 50th Anniversary Tributes
Making a Difference Since 1976
In 2026 we invite our community to mark this milestone by honoring the people who have made a difference in their dystonia journey. Tributes are a meaningful way to recognize and thank anyone in your life.
Jon Davis – #Riding4Us
Help Me Ride Toward a Cure for Dystonia
Hi, I’m Jon Davis, and I’m asking for your help to raise $25,000 to support research into dystonia — a rare and debilitating neurological movement disorder that affects more than 250,000 people in North America.
Find a Support Group
There are many benefits to joining a dystonia support group. Find the support group nearest you and enjoy the rewards.
