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DMRF Earns Top Rating from Charity Navigator

Non-profit evaluator Charity Navigator has once again awarded the Dystonia Medical Research Foundation (DMRF) with the top 4-star rating. Charity Navigator bases its rating on an organization’s financial health and commitment to accountability and transparency. Thank you for trusting the DMRF with your donations and support. Together, we will find a cure for dystonia. The […]

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Non-Invasive Brain Stimulation Therapies Offer New Therapeutic Opportunities

This article originally appeared in the Dystonia Dialogue. “During my fellowship training at Duke, the faces of dystonia patients with painful postures and tremors stayed with me,” said Noreen Bukhari-Parlakturk, MD, PhD, a movement disorder neurologist and clinical investigator at Duke Neurological Disorders Clinic. “Their stories of resilience and optimism—despite daily hardship and social misunderstanding—inspired […]

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Hunt for a Dystonia Cure is On in Indianapolis

The 3rd Annual Indy Hunt for a Cure for Dystonia took place September 29. The event was a scavenger hunt to promote awareness and raise funds for dystonia research. Participants competed for points by answering trivia questions, completing tasks, and collecting items throughout Garfield Park in Indianapolis. The event was organized by Sunshine Fox and […]

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Survey: Dystonia & Mental Health

The Dystonia & Speech Motor Control Lab at Massachusetts Eye and Ear Infirmary is conducting an online survey examining psychological co-morbidities in patients with dystonia. The survey is open to anyone diagnosed with any form of dystonia, and takes approximately 10-15 minutes to complete. Click here for detailed information about the survey, and to participate. […]

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Providence Zoo Walk Marks 5th Anniversary

Providence, Rhode Island is the latest of 13 cities across the USA to host a Dystonia Zoo Walk in 2019. The event on September 14 was the fifth Dystonia Zoo Walk to take place in New England. The purpose of this community day at the zoo was to raise dystonia awareness and funds for medical […]