DMRF is excited to announce its current Request for Applications (RFAs) for three funding opportunities aimed at advancing research and training in the field of dystonia. The open grants include the Basic and Clinical Aspects of Dystonia (BCAD) grant ($95,000), Postdoctoral Fellowship ($75,000), and Clinical Fellowship ($75,000) and will be eligible for up to two […]
Thank you to all the awareness warriors who organized local events last month or participated in a Dystonia Zoo Day this year. Each September, National Dystonia Awareness Month brings us a unique opportunity to focus our efforts to help others understand what dystonia is and how it changes lives. DMRF would like to thank the […]
Tips for Managing Holiday Stress Living with dystonia is challenging year-round, but the holiday season can pile on additional stress that can affect your health and dampen the spirit of the season. DMRF spoke with Mary and Mark Letson of Melrose, Mass., to find out how they manage the holidays as a person with dystonia […]
In June, DMRF launched a series of dystonia awareness and community-building events, including the signature Dystonia Zoo Days. Dystonia Zoo Days were held in-person in 12 cities plus the 4th Virtual Dystonia Zoo Day which was livestreamed online on October 14 uniting the entire dystonia community across all 50 states. The DMRF is grateful to […]
Chicago Dystonia Zoo Day was held at the Brookfield Zoo on Saturday, October 7. This family-friendly event was organized to promote awareness of dystonia, connect the dystonia community, and support the work of the DMRF. DMRF Board members Art Kessler and Treasurer John Downey presented the prestigious Changing Lives through Science award to Cynthia Comella, […]
Heartfelt gratitude goes out to all participants, volunteers, and generous sponsors of 2023 Boston Dystonia Zoo Day held on September 30, the final day of Dystonia Awareness Month. This year’s event, hosted by Paula Schneider, Vice President of Support for the Dystonia Medical Research Foundation and members of the Greater Boston Dystonia Support Group, including co-leaders […]
On September 23, Dystonia Zoo Day events were held in Toledo, OH, and Ft. Wayne, IN. Each event united the local dystonia community in support of the DMRF mission to find a dystonia cure. We congratulate host Community Leadership Council member Kristin Cinglie for her outstanding efforts in creating a successful event in Toledo that […]
Thank you for your incredible support in uniting the dystonia community, along with their families and friends, to raise awareness and contribute to the mission of the Dystonia Medical Research Foundation (DMRF) to find a cure. We extend our deepest appreciation to June Tritley, whose dedicated efforts played a vital role in making this event […]
Thank you for your incredible support in uniting the dystonia community, along with their families and friends, to raise awareness and contribute to the mission of the Dystonia Medical Research Foundation (DMRF) to find a cure. We extend our deepest appreciation to Janice & Len Nachbar, Paula Schneider, and Ron Hersh, whose dedicated efforts played […]
Maddie Paolero and Dee Linde share how their dogs, JJ and Murphy, bring independence and companionship to their lives. Learn if a service dog may be right for you and what it takes to find and care for one. At age 5, Maddie Paolero was diagnosed with early-onset generalized dystonia. “I started noticing when she […]
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