Tag: dystonia

Thank You Toledo

Thank you for your incredible support in uniting the dystonia community, along with their families and friends, to raise awareness and contribute to the mission of the Dystonia Medical Research Foundation (DMRF) to find a cure. We want to extend our sincere gratitude to our host Kristin Cinglie for her outstanding efforts in creating such […]

Thanks to St. Louis for Dystonia Zoo Day

Thank you for your incredible support in uniting the dystonia community, along with their families and friends, to raise awareness and contribute to the mission of the Dystonia Medical Research Foundation (DMRF) to find a cure. We extend our deepest appreciation to June Tritley, whose dedicated efforts played a vital role in making this event […]

Thank You Connecticut

Thank you for your incredible support in uniting the dystonia community, along with their families and friends, to raise awareness and contribute to the mission of the Dystonia Medical Research Foundation (DMRF) to find a cure. We extend our deepest appreciation to Janice & Len Nachbar, Paula Schneider, and Ron Hersh, whose dedicated efforts played […]

Service Dogs Can Change Lives for Those with Dystonia

Maddie Paolero and Dee Linde share how their dogs, JJ and Murphy, bring independence and companionship to their lives. Learn if a service dog may be right for you and what it takes to find and care for one. At age 5, Maddie Paolero was diagnosed with early-onset generalized dystonia. “I started noticing when she […]

Dystonia Symposium in Dublin, Ireland, June 1-3, 2023

Groundbreaking Research to be Presented Dublin – May 30, 2023 — The Dystonia Medical Research Foundation (DMRF) and Dystonia Europe are pleased to announce the upcoming Samuel Belzberg 6th International Dystonia Symposium, set to take place in Dublin, Ireland, from June 1st to June 3rd, 2023. The Symposium is named in memory of Samuel Belzberg, […]

Bid It Up for Dystonia Auction Preview is Open!

The preview days for the DMRF’s first nationwide Bid it Up for Dystonia online auction are now open. We have some incredible one-of-a-kind opportunities including fabulous trips (with airfare, good for three years, no blackouts), autographed memorabilia from iconic sports figures, unique experiences with DMRF celebrities, tech gadgets for kids of all ages, and more. April 11-17 – […]

DMRF Research Awards Advance Understanding of Dystonia

The Dystonia Medical Research Foundation (DMRF) has announced the latest research grant and fellowship awards to advance progress toward improved dystonia treatment options and ultimately a cure. Dystonia is the third most common movement disorder, affecting approximately 250,000 Americans and potentially millions worldwide. “The DMRF prides itself in funding the most promising research and are […]

DMRF Events Unite Community Virtually & In-Person

In August, DMRF launched a series of dystonia awareness and community-building events, including the signature Dystonia Zoo Days. Dystonia Zoo Days were held in-person in eight cities plus the 3rd Virtual Dystonia Zoo Day  which was livestreamed online. Volunteers hosted additional local meetings and events in the summer and fall. DMRF support groups across the […]

Dystonia Zoo Days Close Out Awareness Month

The DMRF’s final three in-person Dystonia Zoo Days closed out Dystonia Awareness Month in cities across the country: Cleveland, Los Angeles, and St. Paul/Twin Cities. The Flanagan Family, who created the original Dystonia Zoo Day, hosted the 9th Cleveland Dystonia Zoo Day on September 25th. Many thanks to event organizers DMRF Community Leadership Council Member Karen […]

Dystonia Zoo Days Draw Crowds in Boston and Pittsburgh

The 1st Boston Dystonia Zoo Day took place on Saturday, September 17th, followed by the 7th Pittsburgh Dystonia Zoo Day on Sunday, September 18th. Each event united the local dystonia community in support of the DMRF mission to find a dystonia cure. In Boston, DMRF past President Art Kessler presented Dr. Xandra Breakefield of Massachusetts […]