The Department of Defense Peer Review Medical Research Program is an important source of funding for dystonia researchers. We need your help to ensure our researchers have the opportunity to continue to compete for these research funds. The preliminary list of the eligible conditions for Fiscal Year 2021 was released recently and dystonia was not […]
The DMRF is inviting feedback about how the Covid-19 pandemic is affecting individuals and families affected by dystonia. The information collected will help DMRF in the development and planning of future activities. The survey should take less than 10 minutes to complete. Click here to access the survey. The Dystonia Medical Research Foundation is a 501(c)(3) non-profit […]
Researchers at Massachusetts Eye and Ear in Boston led by Kristina Simonyan, MD, PhD, Dr med have developed a unique diagnostic tool that detects dystonia from MRI scans, the first technology of its kind to provide an objective diagnosis of the disorder. Dr. Simonyan is a former member of the DMRF Medical & Scientific Advisory […]
There are many types of dystonia, often presenting with very distinct symptoms. There is also a great deal of overlap in the physical manifestation of symptoms across the different types. Non-motor symptoms are common, including psychiatric disorders such as depression and anxiety. There have been numerous genes identified to cause dystonia, and it is not […]
The Musicians With Dystonia program of the DMRF has been renamed The Leon Fleisher Foundation for Musicians with Dystonia, in memory of the influential and beloved pianist and prominent public champion for dystonia. Mr. Fleisher sadly passed away earlier this year. The Leon Fleisher Foundation for Musicians with Dystonia was created in 2000 by French […]
This article was originally published in the Dystonia Dialogue. The Covid-19 outbreak has had a disproportionate impact on individuals with disabilities and chronic medical conditions, including those with dystonia. There has been widespread disruption of local public services, delays in treatment appointments, and changes to everyday routines. The DMRF checked in with several members of […]
CLICK HERE ON SEPTEMBER 12 FOR LIVE STREAM BEGINNING AT 11AM CT. The Dystonia Medical Research Foundation (DMRF) has transitioned its popular local zoo walks into Virtual Dystonia Zoo Day on Saturday, September 12, 2020. The dystonia community is uniting online for a national day of action to boost dystonia awareness and raise funds for […]
The DMRF family sends our deepest sympathies to the family and friends of pianist extraordinaire Leon Fleisher who passed away on August 2 at the age of 92. Mr. Fleisher inspired countless audiences with his spectacular talent. He served as mentor for many musically gifted young artists and helped them tremendously with their careers. Mr. […]
Dystonia is a movement disorder characterized by excessive muscle contractions that cause abnormal movements and postures. Dystonia is not caused by pathology in a specific brain structure, but by dysfunctional circuits of communication between multiple brain areas responsible for coordinating and controlling body movement. Despite substantial progress made in understanding various aspects of dystonia, there […]
Registration is open! The first-ever Virtual Dystonia Zoo Day to benefit the DMRF is Saturday, September 12, 2020. The dystonia community is uniting for an exciting national day of action to boost dystonia awareness and raise funds for medical research toward a cure. Registration is free and there are numerous ways to support the event. […]
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