Twin Cities Dystonia Zoo Group blog

Everybody’s Zooing It! Thousands Attend Dystonia Zoo Walks to Find a Cure

Thirteen cities across the country are hosting Dystonia Zoo Walks in 2019. The purpose of these fun community events is to increase public awareness of dystonia, a little-known but surprisingly common neurological disorder. Proceeds support the mission of the Dystonia Medical Research Foundation (DMRF), which supports urgently-needed medical research toward a cure and programs for individuals and families […]

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Save the Date: 6th International Dystonia Symposium

The DMRF, in partnership with Dystonia Europe, is proud to announce the Samuel Belzberg 6th International Dystonia Symposium, a research conference to take place June 4–6, 2020 in Dublin, Ireland. The meeting is named for DMRF Co-Founder Samuel Belzberg who passed away in 2018. Co-Chairs are H. A. “Buz” Jinnah, MD, PhD of Emory University […]

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FDA Approves Xeomin® as First-Line Treatment for Focal Eye Dystonia

The US Food & Drug Administration (FDA) has approved the use of the botulinum neurotoxin Xeomin® (incobotulinumtoxinA) as a first-line treatment of blepharospasm in adults, as announced in a press release from Merz. Blepharospasm is a focal dystonia that causes muscles around the eyes to contract involuntarily. Individuals with blepharospasm may experience excessive blinking, light […]

doctor giving neck injection

Botulinum Neurotoxin Therapy Survey

We need your valuable input. Please consider participating in a brief, anonymous survey to help the Dystonia Medical Research Foundation better understand your experiences with botulinum neurotoxin injections. Individuals who are diagnosed with dystonia and receive treatment in the USA are welcome to participate. Click here to participate.  Any questions, please contact us.    

Dystonia diagnosis and x-ray

Individuals with Dystonia Needed for Brain Function Study

The Center for Neurosciences at The Feinstein Institute for Medical Research conducts one of the nation’s leading brain imaging programs directed by neuroscientist, David Eidelberg, MD. The program is internationally recognized for developing new techniques to identify and measure patterns and circuits of brain function in people with disorders such as Parkinson’s disease, Huntington’s disease, […]

doctor giving neck injection

DMRF Tackles Urgent Need for Movement Disorder Specialists

The Dystonia Medical Research Foundation (DMRF) announced Abhimanyu Mahajan, MD, MHS, University of Cincinnati, as the latest recipient of the DMRF Clinical Fellowship Award to support training in the diagnosis and treatment of movement disorders with special expertise in dystonia. Dr. Mahajan’s mentor is Alberto J. Espay, MD, MSc, Professor of Neurology, Director, James J. […]

Mahlon DeLong and Joel Perlmutter

DMRF Welcomes New Scientific Director

The DMRF is pleased to announce the appointment of Joel S. Perlmutter, MD as Scientific Director.  He is pictured (R) with Scientific Director Emeritus, Mahlon Delong, MD. Dr. Perlmutter is the Elliot H. Stein Family Professor of Neurology and Professor of Radiology, Neuroscience, Physical Therapy and Occupational Therapy; and Head of the Movement Disorders Section […]