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What is a Physical Medicine & Rehabilitation Physician?

This article was published in the Dystonia Dialogue. “We’re experts in the diagnosis, pathophysiology, and management of any disabling condition,” explained John McGuire, MD, a physical medicine and rehabilitation (PM&R) specialist and Director of Stroke Rehabilitation & Spasticity Management at Froedtert Medical College of Wisconsin. PM&R physicians evaluate and treat patients with physical and cognitive […]

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DMRF Launches First Scientific Journal Dedicated to Dystonia

The Dystonia Medical Research Foundation (DMRF) has partnered with Frontiers to launch Dystonia, a Gold Open Access journal. The journal will bring visibility to the growing dystonia field and highlight advancements in science and clinical practice. “The field is ready for a journal focused solely on dystonia,” said Co-Editor-in-Chief Aasef Shaikh, MD, PhD, Penni and […]

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Dystonia, Depression & Anxiety

This article was published in the Dystonia Dialogue. Dystonia is a neurological disorder that causes excessive, involuntary muscle contractions. These muscle contractions result in abnormal muscle movements and body postures, making it difficult for individuals to control their movements. People who live with dystonia may also experience a range of non-motor symptoms that dramatically impact […]

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Journeys into Parenthood

This article was published in the Dystonia Dialogue. The path to becoming a parent for individuals in the dystonia community is as varied as society at large. There are more options than ever for having children: biologically, via reproductive medicine, fostering, and adoption. Parents with dystonia may encounter challenges that parents without health issues might […]

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Share Why DMRF is Important to You

2021 marks 45 years since the Dystonia Medical Research Foundation (DMRF) was founded. Since 1976, we have worked tirelessly, every day, on behalf of every affected individual and family. And we won’t stop until there is a cure. Whether you are new to DMRF or have been a member for decades, thank you. Over and […]

Dystonia Advocacy Day on Capitol Hill

Become a Dystonia Advocate

You can educate Members of Congress about dystonia and how it changes lives. Join us to support the Dystonia Advocacy Network’s virtual advocacy agenda, launching March 3, 2021. Register today. Join dedicated volunteers from across the country to advocate for the dystonia community on important issues like funding for research, creating research funding opportunities through […]

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Dystonia: Frequently Asked Questions

This article was originally published in the Dystonia Dialogue. What is dystonia? Dystonia is a brain disorder resulting in involuntary, abnormal postures or movements of the body due to excessive muscle contractions. Dystonia may be the only neurological disorder a person has, or the dystonia may be part of a medical condition or disease with […]

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Legacy Society Honors Visionary Donors

This article was originally published in the Dystonia Dialogue. The DMRF was only a few years old in the late 1970s when Susan Aguilera’s seven-year-old daughter Emma was diagnosed with dystonia by a special panel of neurologists in San Diego. Finally there was an explanation for why her little girl had lost the ability to […]