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40+ Years of DMRF Research Achievements

“DMRF initiated, supported, stimulated, and catalyzed essential scientific and medical efforts that created the modern dystonia field.” -Jan Teller, MA, PhD Chief Scientific Advisor Nearly 45 years ago, the DMRF began the ambitious mission to find a dystonia cure. Since that time, the Foundation has provided funding to 270+ investigators and has grown the field […]

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Quick Questions with Chief Scientific Advisor Dr. Jan Teller

This article originally appeared in the Dystonia Dialogue. The DMRF leads a global research effort, grounded in the belief that the best service the Foundation can provide the dystonia community is to work every day toward improved therapies and a cure. Jan Teller, MA, PhD, DMRF’s Chief Scientific Advisor since 2006, recently commented on a […]

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Tips for Self-Care in Stressful Times

Stress is notorious for making dystonia symptoms worse. The following gentle reminders may help ease stress before it becomes overwhelming, especially during these unprecedented times due to the COVID-19 pandemic. Acknowledge loss and change. Daily life may feel very different today than it did a month, or even a week ago. You may be unable […]

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Maintaining Social Connection

Feeling connected to other people affected by dystonia can benefit your physical and emotional health. DMRF connects you to people who understand life with dystonia: Support Groups – DMRF offers peer support groups in communities across the USA. Although regular support group meetings are postponed due to the COVID-19 pandemic, many groups are connecting through […]

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Naturally Curious: An Integrative Approach to Treating Dystonia

This article originally appeared in the Dystonia Dialogue. “Even when we treat symptoms in dystonia, people are still sometimes left with bothersome symptoms, and they’re also dealing with more than just the physical symptoms that we can see,” explained Danny Bega, MD, neurologist and movement disorders specialist at Northwestern Medicine in Chicago. “A lot of patients with […]

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Dystonia & Sleep

Good sleep is among the top self-care activities that can boost your coping and physical wellness. Individuals with dystonia frequently experience insomnia and problems with sleep. Insomnia may occur prior to developing dystonia, or as a result of dystonia. Some sources suggest more than 60% of individuals with dystonia have fatigue or day time sleepiness. […]

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Do You Have 2020 Vision?

The Dystonia Medical Research Foundation (DMRF) is looking forward to a full and productive year in 2020, thanks to the generosity of supporters like you. Each New Year provides the opportunity to reflect on the past and set intentions for the future. 20/20 is the measure of clear vision. We approach the coming year with […]

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More than a Movement Disorder: Non-Motor Dystonia Symptoms

Dystonia is a neurological disorder that affects the physical body, but the impact goes far deeper. Individuals diagnosed with dystonia commonly experience symptoms that affect more than how the body moves. Living well with dystonia often requires addressing more than the physical movement symptoms. Non-motor symptoms are a significant burden, and can be as disabling—or […]

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DMRF Salutes Grammys for Nominating Alex Klein’s First Album since Demise of Performing Career due to Focal Dystonia

Alex Klein’s latest solo recording, 20th Century Oboe Sonatas, has been nominated for a Grammy Award in the category of “Producer of the Year” in recognition of Jim Ginsburg of Cedille Records. Klein is among the world’s most famous oboe players and former principal oboist of the Chicago Symphony Orchestra. This is Klein’s first full-length […]