Allergan, an AbbVie Company is continuing their long-standing support of the dystonia community by returning as a National Sponsor of the Dystonia Medical Research Foundation’s (DMRF) Dystonia Zoo Days in 2022. The purpose of these events is to bring together individuals and families affected by dystonia and raise funds in support of the DMRF mission. […]
The DMRF is proud to partially support two Dystonia Coalition Pilot Project Awards. The goal of the Pilot Projects Program is to foster the most promising clinical and translational studies on dystonia. Moodscreen for Cervical Dystonia: A Diagnostic Accuracy Study of Depression and Anxiety Davide Martino, MD, PhD, University of Calgary Depression and anxiety frequently […]
The 9th Annual “Rockin’ for a Cure” organized by Robin and Marc Miller of New York on July 14 raised $147,000 for urgently-needed dystonia research. The event supported the Cure Dystonia Now Fund of the Dystonia Medical Research Foundation (DMRF). Sponsors included Allergan, an AbbVie Company; Reliance First Capital; and Command Direct. Over the past […]
The DMRF is pleased to return to in-person events in select cities to re-unite the dystonia community, promote awareness, and support the mission to find a cure. We’re especially excited to announce this year’s Dystonia Zoo Day season, with both in-person events and virtual opportunities to participate. A Virtual Kick-Off Celebration on August 18, 2022 will mark […]
Celebrate the strength and resilience of the dystonia community while increasing awareness with DMRF’s new line of “Dystonia Strong” merchandise. Available items include a Dystonia Strong baseball style shirt, yard flag, notecards, magnet, and banner. September may be Dystonia Awareness Month, but promoting awareness is essential all year. Shop now.
The Dystonia Medical Research Foundation (DMRF) is pleased to begin returning to in-person events in select cities to re-unite the dystonia community, promote awareness, and support the mission to find a cure. We’re especially excited to announce this year’s Dystonia Zoo Day season, with both in-person events and virtual opportunities to participate regardless of geography. […]
Dystonia Medical Research Foundation (DMRF) Board Member Pamela Sloate died from cancer on April 12, 2022. In her honor, the newly named Pamela Sloate Bronx Dystonia Zoo Day to benefit DMRF will take place Sunday, September 10, 2022 at The Bronx Zoo. The event is in its 6th year, after a two-year hiatus due to […]
This article was published in the Dystonia Dialogue. Excessive muscle contractions are a hallmark sign of dystonia, but the muscles are not the source of the problem. The muscles are responding to abnormal signals from the brain, which cause them to flex, and this results in dystonic movements and postures. Research shows that the origins […]
This article was published in the Dystonia Dialogue. In a study partially supported by DMRF, an international team of investigators embarked on the most comprehensive examination of the clinical features of oromandibular dystonia with the purpose of reducing misdiagnosis. The symptoms of OMD include varying combinations of abnormal jaw, tongue, or lower face movements. OMD […]
This article was published in the Dystonia Dialogue. There are occasional reports of dystonia symptoms going into remission. Given the research and prognosis implications of this, investigators did a systematic review of reports of remission in the medical literature. They reviewed data from 2,551 cases with reports predominantly from individuals with cervical dystonia or blepharospasm/Meige […]
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