Living with Cervical Dystonia

September is Dystonia Awareness Month. Join us for a conversation about cervical dystonia, its impact, diagnosis and management, and the importance of speaking with a healthcare provider if you are experiencing potential symptoms. Janet Hieshetter, Dystonia Medical Research Foundation’s Executive Director, is joined by Crystal Edmonds, who is diagnosed with cervical dystonia, and Dr. Diego […]

Gone Viral: Stories from the Dystonia Community in a Pandemic

This article was originally published in the Dystonia Dialogue. The Covid-19 outbreak has had a disproportionate impact on individuals with disabilities and chronic medical conditions, including those with dystonia. There has been widespread disruption of local public services, delays in treatment appointments, and changes to everyday routines. The DMRF checked in with several members of […]

September is Dystonia Awareness Month

An estimated 250,000 people in the United States have dystonia, a chronic movement disorder affecting the brain and nervous system. It is the third most common movement disorder after essential tremor and Parkinson disease. Dystonia causes excessive, uncontrollable muscle spasms. The muscle spasms twist the body and limbs into involuntary movements and awkward postures. Estimates […]

Right-Handed Cervical Dystonia Patients Needed for Study

A hand writing with a pen

The Motor Neuroscience Lab at Michigan State University is recruiting right-handed adults with cervical dystonia who are currently undergoing treatment using botulinum neurotoxin injections for a study examining how the brain controls arm movements. Participants will be asked to move a joystick or robotic handles to control a cursor on a computer screen while their […]

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