Read online article in the full Winter 2024 issue of Dystonia Dialogue Caring for a loved one with dystonia can be both a rewarding and challenging experience. The demands of caregiving can be physically and emotionally taxing, making it essential to find ways to prevent burnout. As the number of caregivers continues to grow each…
Read online article in the full Summer 2025 issue of Dystonia Dialogue Pain associated with dystonia can be variable—it can depend on what part of the body is involved, the severity of the dystonia, a person’s age, and comorbidities, which are additional medical conditions. Physicians who treat people with dystonia can provide several options to…
Read online article in the full Winter 2024 issue of the Dystonia Dialogue Traveling can be an enriching experience that allows us to explore new places, connect with different cultures, reunite with family and friends, and create lasting memories. However, for individuals with dystonia—traveling can present unique challenges. With proper planning, support, and strategies, it…
Read online article in the full Winter 2025 issue of Dystonia Dialogue. Botulinum neurotoxin injections are a common dystonia treatment, first used for blepharospasm 30 years ago. This is a highly specialized, ongoing therapy that must be customized to each patient. There are several factors that can influence the outcome for treatment, degree of benefit,…
Dystonia Dialogue magazine is published three times a year, featuring news on the latest dystonia research, personal profiles, coping tips for living with dystonia, and community events.
DYT1 dystonia, also known as early-onset torsion dystonia, is a severe form of hereditary, generalized dystonia.
Tips for Managing Holiday Stress Living with dystonia is challenging year-round, but the holiday season can pile on additional stress that can affect your health and dampen the spirit of the season. DMRF spoke with Mary and Mark Letson of Melrose, Mass., to find out how they manage the holidays as a person with dystonia…
It is not uncommon for some people with dystonia to also suffer with depression and/or anxiety. Knowing where to seek help can be overwhelming and sometimes a hindrance to getting help. To break down that barrier, DMRF spoke with Laurie Strawgate-Kanefsky, PhD to explain the various types of mental health providers and offer some critical…
Raise Awareness and Make a Difference During the month of September, the DMRF is enlisting volunteers to raise awareness for dystonia. An estimated 250,000 people in the United States have dystonia, a chronic movement disorder affecting the brain and nervous system. It is the third most common movement disorder after essential tremor and Parkinson disease. Dystonia…
Yips and dystonia are task-specific motor disorders that affect both athletes and musicians. In the realm of sports, the term “yips” describes a focal dystonia that causes involuntary muscle spasms during specific movements, impeding precise motor control. Similarly, musicians can develop focal dystonia, known as musician’s dystonia or musician’s cramp, which disrupts their ability…
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