The Dystonia Medical Research Foundation is welcoming the following new members to the Medical and Scientific Advisory Council (MSAC) this year. We look forward to working with them and having them as part of the DMRF. Amy Bastian, PhD, PT (Kennedy Krieger/Johns Hopkins) Baltimore, MD, USA Davide Martino, MD, PhD University of Calgary Calgary, Alberta,…
In DMRF’s 50th year, we invite you to honor the people who have made a difference in your dystonia journey — doctors, therapists, caregivers, researchers, friends, and loved ones who inspire hope — with a 50th Anniversary Tribute. Click HERE to learn more!
Thank you to everyone who participated in last month’s survey to choose the 2026 Dystonia Zoo Day T-shirt color. The winning color is Heather Galapagos Blue, and we look forward to seeing everyone sporting their blue T-shirts at the upcoming Zoo Day events later this year: July 18: Portland | Oregon ZooAug. 15: Toledo |…
Bid. Win. Make a difference for dystonia. Mark your calendar for the DMRF Auction for Action, our national virtual silent auction — where every bid supports dystonia research and community programs nationwide. Get ready for an exciting week of fun and friendly competition featuring incredible deals on dream travel, unforgettable dining, unique art, luxury handbags,…
In this issue:
Follow Dystonia Medical Research Foundation Board Member Jon Davis as he makes progress towards his goal of raising $25,000 for the DMRF this year. All monies raised go towards research to find a cure for dystonia. Jon was diagnosed with dystonia at the age of 13. By his 30s he could no longer ride a…
The mission of the Dystonia Medical Research Foundation is to advance dystonia research for more treatments and ultimately a cure, to promote awareness and education, and to support the needs and wellbeing of affected individuals and families. The DMRF is grateful to everyone in the dystonia community who contributed to these ongoing efforts, and we…
On behalf of the leadership and staff of the Dystonia Medical Research Foundation, DMRF President Mark Rudolph and Executive Director Janet Hieshetter would like to wish all of you a peaceful holiday season, and best wishes for the coming year. https://youtu.be/D2Ul2Td3LAY
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