Follow Dystonia Medical Research Foundation Board Member Jon Davis as he makes progress towards his goal of raising $25,000 for the DMRF this year. All monies raised go towards research to find a cure for dystonia. Jon was diagnosed with dystonia at the age of 13. By his 30s he could no longer ride a…
The Dystonia Medical Research Foundation looks forward to serving the dystonia community throughout the new year, and 2026 marks a notable milestone as we acknowledge our 50th anniversary. The DMRF was founded in 1976 by Samuel and Frances Belzberg, of Vancouver, British Columbia, after their daughter was diagnosed with dystonia. Dedicated to serving the needs…
The mission of the Dystonia Medical Research Foundation is to advance dystonia research for more treatments and ultimately a cure, to promote awareness and education, and to support the needs and wellbeing of affected individuals and families. The DMRF is grateful to everyone in the dystonia community who contributed to these ongoing efforts, and we…
On behalf of the leadership and staff of the Dystonia Medical Research Foundation, DMRF President Mark Rudolph and Executive Director Janet Hieshetter would like to wish all of you a peaceful holiday season, and best wishes for the coming year. https://youtu.be/D2Ul2Td3LAY
During the month of September, the DMRF is asking YOU to help raise awareness of dystonia. As many as 70% of patients are misdiagnosed prior to receiving a dystonia diagnosis, so spreading knowledge within the medical profession can be just as important as sharing information outside of it. The theme for this year’s Dystonia Awareness…
In honor of International Women’s Day on March 8, this month the Dystonia Medical Research Foundation (DMRF) is recognizing women with cervical dystonia whose perseverance is nothing short of awe-inspiring. Their stories will be featured in a four-part series called Warrior Women Wednesdays. Cervical dystonia is a type of dystonia that affects the neck muscles,…
In honor of International Women’s Day on March 8, this month the Dystonia Medical Research Foundation (DMRF) is recognizing women with cervical dystonia whose perseverance is nothing short of awe-inspiring. Their stories will be featured in a four-part series called Warrior Women Wednesdays. Cervical dystonia is a type of dystonia that affects the neck muscles,…
In honor of International Women’s Day on March 8, this month the Dystonia Medical Research Foundation (DMRF) is recognizing women with cervical dystonia whose perseverance is nothing short of awe-inspiring. Their stories will be featured in a four-part series called Warrior Women Wednesdays. Cervical dystonia is a type of dystonia that affects the neck muscles,…
In honor of International Women’s Day on March 8, this month the Dystonia Medical Research Foundation (DMRF) is recognizing women with cervical dystonia whose perseverance is nothing short of awe-inspiring. Their stories will be featured in a four-part series called Warrior Women Wednesdays. Cervical dystonia is a type of dystonia that affects the neck muscles,…
Maddie Paolero and Dee Linde share how their dogs, JJ and Murphy, bring independence and companionship to their lives. Learn if a service dog may be right for you and what it takes to find and care for one. At age 5, Maddie Paolero was diagnosed with early-onset generalized dystonia. “I started noticing when she…
Privacy Policy | Terms |Cookie Policy | Disclaimer | Sitemap
© 2026 Dystonia Medical Research Foundation
All Rights Reserved.
One East Wacker Drive, Suite 1730
Chicago, Illinois 60601-1980
Phone: 312-755-0198
Toll free: 800-377-DYST (3978)
Email: [email protected]
We use cookies to improve your experience on our site. By using our site, you consent to cookies.
Manage your cookie preferences below:
Essential cookies enable basic functions and are necessary for the proper function of the website.
CloudFlare provides web performance and security solutions, enhancing site speed and protecting against threats.
Service URL: developers.cloudflare.com (opens in a new window)
Google Tag Manager simplifies the management of marketing tags on your website without code changes.
Service URL: business.safety.google (opens in a new window)
Stripe is a payment processing platform that enables businesses to accept online payments securely and efficiently.
Service URL: stripe.com (opens in a new window)
WooCommerce is a customizable eCommerce platform for building online stores using WordPress.
Statistics cookies collect information anonymously. This information helps us understand how visitors use our website.
Google Analytics is a powerful tool that tracks and analyzes website traffic for informed marketing decisions.
Service URL: business.safety.google (opens in a new window)
SourceBuster is used by WooCommerce for order attribution based on user source.
You can find more information in our Cookie Policy and Privacy Policy.