Tag: advocacy

4th Virtual Dystonia Zoo Day Unites the Community

In June, DMRF launched a series of dystonia awareness and community-building events, including the signature Dystonia Zoo Days. Dystonia Zoo Days were held in-person in 12 cities plus the 4th Virtual Dystonia Zoo Day which was livestreamed online on October 14 uniting the entire dystonia community across all 50 states. The DMRF is grateful to […]

Chicago Dystonia Zoo Day Recognizes Local Researcher

Chicago Dystonia Zoo Day was held at the Brookfield Zoo on Saturday, October 7. This family-friendly event was organized to promote awareness of dystonia, connect the dystonia community, and support the work of the DMRF. DMRF Board members Art Kessler and Treasurer John Downey presented the prestigious Changing Lives through Science award to Cynthia Comella, […]

Boston Dystonia Zoo Day Closes Out Awareness Month

Heartfelt gratitude goes out to all participants, volunteers, and generous sponsors of 2023 Boston Dystonia Zoo Day held on September 30, the final day of Dystonia Awareness Month. This year’s event, hosted by Paula Schneider, Vice President of Support for the Dystonia Medical Research Foundation and members of the Greater Boston Dystonia Support Group, including co-leaders […]

Dystonia Zoo Days Held in Ft. Wayne and Toledo

On September 23, Dystonia Zoo Day events were held in Toledo, OH, and Ft. Wayne, IN. Each event united the local dystonia community in support of the DMRF mission to find a dystonia cure. We congratulate host Community Leadership Council member Kristin Cinglie for her outstanding efforts in creating a successful event in Toledo that […]

Thank You Connecticut

Thank you for your incredible support in uniting the dystonia community, along with their families and friends, to raise awareness and contribute to the mission of the Dystonia Medical Research Foundation (DMRF) to find a cure. We extend our deepest appreciation to Janice & Len Nachbar, Paula Schneider, and Ron Hersh, whose dedicated efforts played […]

September is Dystonia Awareness Month

Raise Awareness and Make a Difference During the month of September, the DMRF is enlisting volunteers to raise awareness for dystonia.  An estimated 250,000 people in the United States have dystonia, a chronic movement disorder affecting the brain and nervous system. It is the third most common movement disorder after essential tremor and Parkinson disease. Dystonia […]

Take Action to Educate Elected Officials about Dystonia

The Dystonia Advocacy Network (DAN) needs your help to raise awareness of dystonia with US elected officials and support the need for more dystonia research. Please consider becoming a dystonia advocate and joining with others across the country in making a difference. Sign up with DAN here. Being a dystonia advocate is easy, empowering, and […]

Become a Dystonia Advocate

You can educate Members of Congress about dystonia and how it changes lives. Join us to support the Dystonia Advocacy Network’s virtual advocacy agenda, launching March 3, 2021. Register today. Join dedicated volunteers from across the country to advocate for the dystonia community on important issues like funding for research, creating research funding opportunities through […]