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Dystonia Medical Research Foundation
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  • HOME
  • WHAT IS DYSTONIA
    • What is Dystonia?
    • Newly Diagnosed
    • Dystonia Basics
    • Types of Dystonia
    • Symptoms & Classifications
    • Genetics
    • Common Misunderstandings
    • Frequently Asked Questions
    • Download Materials
  • LIVING WITH DYSTONIA
    • Living with Dystonia
    • Treatment
      • Non-Drug Therapies
      • Oral Medications
      • Botulinum Neurotoxin Injections
      • Deep Brain Stimulation
      • Other Surgical Procedures
      • Complementary Therapies
    • Taking Charge of Your Care
    • What is a Movement Disorder Specialist?
    • Find a Doctor
    • Dystonia Support
      • Find a Support Group
      • Online Support
      • Support Group Meetings
    • Emotional & Mental Health
    • Resources for Parents
  • GET INVOLVED
    • Become a Member
    • Email Sign Up
    • Events & Meetings
    • Promote Awareness
    • Become a Legislative Advocate
    • Join the Global Registry
    • Brain Donation
      • Register as a Brain Donor
  • RESEARCH
    • Untangling Complexity of Dystonia: Report
    • Research Overview
      • Accomplishments & Milestones in Research
    • Research Funding Programs
    • Current Projects
    • Clinical Fellowship Program
    • Dystonia Study Group
    • Global Dystonia Registry
    • Dystonia Coalition
    • Resources for Investigators
    • Conversations with Investigators
  • ABOUT US
    • Mission & History
    • How Will We Find a Cure?
    • People
    • News & Press Releases
    • Dystonia Newsletters
    • Financials
    • Privacy
    • Contact
  • DONATE
    • Donate Online
    • Membership
    • Find an Event
    • Shop
      • Shop Merchandise
      • Order Brochures
    • Other Ways to Give
    • Dystonia Pet Palooza
    • Friends
Dystonia Advocacy Day on Capitol Hill
April 6, 2021

Action Alert: Take Action to Protect Dystonia Research

If you live in MT, IL, VT, CA, WA, RI, HI, NH, AL, KY, ME, AK, SC, MO, KS, ND, or AR we need your help ASAP. We are asking you to reach out to your Senator, because they serve on the Senate Defense Appropriations Subcommittee (the list is below), to ask them to continue […]

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Thank You 400w
March 23, 2021

Share Why DMRF is Important to You

2021 marks 45 years since the Dystonia Medical Research Foundation (DMRF) was founded. Since 1976, we have worked tirelessly, every day, on behalf of every affected individual and family. And we won’t stop until there is a cure. Whether you are new to DMRF or have been a member for decades, thank you. Over and […]

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Dystonia Advocacy Day on Capitol Hill
February 3, 2021

Become a Dystonia Advocate

You can educate Members of Congress about dystonia and how it changes lives. Join us to support the Dystonia Advocacy Network’s virtual advocacy agenda, launching March 3, 2021. Register today. Join dedicated volunteers from across the country to advocate for the dystonia community on important issues like funding for research, creating research funding opportunities through […]

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FAQ 920w
February 1, 2021

Dystonia: Frequently Asked Questions

This article was originally published in the Dystonia Dialogue. What is dystonia? Dystonia is a brain disorder resulting in involuntary, abnormal postures or movements of the body due to excessive muscle contractions. Dystonia may be the only neurological disorder a person has, or the dystonia may be part of a medical condition or disease with […]

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legacy society collage reduced
November 25, 2020

Legacy Society Honors Visionary Donors

This article was originally published in the Dystonia Dialogue. The DMRF was only a few years old in the late 1970s when Susan Aguilera’s seven-year-old daughter Emma was diagnosed with dystonia by a special panel of neurologists in San Diego. Finally there was an explanation for why her little girl had lost the ability to […]

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DysCoalition_4cLogo_blogX
November 16, 2020

Dystonia Coalition Natural History Study Sheds Light on Dystonia Symptom Spread

This article was originally published in the Dystonia Dialogue. The Dystonia Coalition is a global research network funded by the National Institutes of Health that has engaged investigators and patients on an unprecedented scale to improve dystonia treatment. Since 2010, the Dystonia Coalition has included a Natural History of Isolated Dystonia study aimed at better […]

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biomarker blog
November 4, 2020

New AI Platform Diagnoses Focal Dystonia with High Accuracy in Less Than One Second

Researchers at Massachusetts Eye and Ear in Boston led by Kristina Simonyan, MD, PhD, Dr med have developed a unique diagnostic tool that detects dystonia from MRI scans, the first technology of its kind to provide an objective diagnosis of the disorder. Dr. Simonyan is a former member of the DMRF Medical & Scientific Advisory […]

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dna-helix-400w
November 4, 2020

Dystonia Genes Converge in Specific Neurons & Intersect Underlying Genetic Basis of Psychiatric Disorders

There are many types of dystonia, often presenting with very distinct symptoms. There is also a great deal of overlap in the physical manifestation of symptoms across the different types. Non-motor symptoms are common, including psychiatric disorders such as depression and anxiety. There have been numerous genes identified to cause dystonia, and it is not […]

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Fleisher
October 27, 2020

Musicians With Dystonia Renamed to Honor Leon Fleisher

The Musicians With Dystonia program of the DMRF has been renamed The Leon Fleisher Foundation for Musicians with Dystonia, in memory of the influential and beloved pianist and prominent public champion for dystonia. Mr. Fleisher sadly passed away earlier this year. The Leon Fleisher Foundation for Musicians with Dystonia was created in 2000 by French […]

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doctor giving neck injection
October 26, 2020

Quick Facts about Botulinum Neurotoxin Injections

Botulinum neurotoxin (BNT) injections are a common treatment for dystonia. This therapy is used to treat dystonia symptoms in a specific group of muscles, for example, the neck, face, or a limb. Despite the popularity of this treatment for dystonia, certain important aspects of the therapy may come as a surprise to new patients. BNT […]

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