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Dystonia Medical Research Foundation
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  • HOME
  • WHAT IS DYSTONIA
    • What is Dystonia?
    • Newly Diagnosed
    • Dystonia Basics
    • Types of Dystonia
    • Symptoms & Classifications
    • Genetics
    • Common Misunderstandings
    • Frequently Asked Questions
    • Download Materials
  • LIVING WITH DYSTONIA
    • Living with Dystonia
    • Treatment
      • Non-Drug Therapies
      • Oral Medications
      • Botulinum Neurotoxin Injections
      • Deep Brain Stimulation
      • Other Surgical Procedures
      • Complementary Therapies
    • Taking Charge of Your Care
    • What is a Movement Disorder Specialist?
    • Find a Doctor
    • Dystonia Support
      • Find a Support Group
      • Online Support
      • Support Group Meetings
    • Emotional & Mental Health
    • Resources for Parents
  • GET INVOLVED
    • Become a Member
    • Email Sign Up
    • Promote Awareness
    • Events & Meetings
    • Start a Fundraiser
    • Become a Legislative Advocate
    • Join the Global Registry
    • Brain Donation
      • Register as a Brain Donor
  • RESEARCH
    • Untangling Complexity of Dystonia: Report
    • Dystonia Journal
    • Research Funding Programs
    • Current Projects
    • Clinical Fellowship Program
    • Dystonia Study Group
    • Global Dystonia Registry
    • Dystonia Coalition
    • Resources for Investigators
    • Conversations with Investigators
  • ABOUT US
    • Mission & History
    • How Will We Find a Cure?
    • People
    • News & Press Releases
    • Dystonia Newsletters
    • Financials
    • Privacy
    • Contact
  • DONATE
    • Donate Online
    • Membership
    • Find an Event
    • Shop
      • Shop Merchandise
      • Order Brochures
    • Start a Fundraiser
    • Other Ways to Give
    • Dystonia Pet Palooza
    • Friends
Medical,Hospital:,Neurologist,And,Neurosurgeon,Talk,,Use,Computer,,Analyse,Patient
August 3, 2022

DMRF Co-Funds Dystonia Coalition Pilot Project Awards

The DMRF is proud to partially support two Dystonia Coalition Pilot Project Awards. The goal of the Pilot Projects Program is to foster the most promising clinical and translational studies on dystonia. Moodscreen for Cervical Dystonia: A Diagnostic Accuracy Study of Depression and Anxiety Davide Martino, MD, PhD, University of Calgary Depression and anxiety frequently […]

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Miller Family 600w
July 18, 2022

9th Annual Rockin’ for a Cure Raises $147K for Dystonia Research

The 9th Annual “Rockin’ for a Cure” organized by Robin and Marc Miller of New York on July 14 raised $147,000 for urgently-needed dystonia research. The event supported the Cure Dystonia Now Fund of the Dystonia Medical Research Foundation (DMRF). Sponsors included Allergan, an AbbVie Company; Reliance First Capital; and Command Direct. Over the past […]

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Logo that reads "Dystonia Zoo Day 2022" with illustrations of animals.
July 5, 2022

Everybody’s Zoo-ing It: Dystonia Zoo Days Start August 18

The DMRF is pleased to return to in-person events in select cities to re-unite the dystonia community, promote awareness, and support the mission to find a cure. We’re especially excited to announce this year’s Dystonia Zoo Day season, with both in-person events and virtual opportunities to participate. A Virtual Kick-Off Celebration on August 18, 2022 will mark […]

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dystonia strong ecard
June 8, 2022

New Dystonia Strong Awareness Merchandise

Celebrate the strength and resilience of the dystonia community while increasing awareness with DMRF’s new line of “Dystonia Strong” merchandise. Available items include a Dystonia Strong baseball style shirt, yard flag, notecards, magnet, and banner. September may be Dystonia Awareness Month, but promoting awareness is essential all year. Shop now.

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Five adults and two children, one in a stroller, posing for a photo. A young brunette woman in the front row is sitting in a wheelchair. All are wearing matching Dystonia Zoo Day t-shirts.
June 8, 2022

Upcoming Dystonia Events – Join Us!

The Dystonia Medical Research Foundation (DMRF) is pleased to begin returning to in-person events in select cities to re-unite the dystonia community, promote awareness, and support the mission to find a cure. We’re especially excited to announce this year’s Dystonia Zoo Day season, with both in-person events and virtual opportunities to participate regardless of geography. […]

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Three people facing camera and smiling.
June 2, 2022

DMRF’s Pamela Sloate Bronx Dystonia Zoo Day Named for Late Dystonia Advocate

Dystonia Medical Research Foundation (DMRF) Board Member Pamela Sloate died from cancer on April 12, 2022. In her honor, the newly named Pamela Sloate Bronx Dystonia Zoo Day to benefit DMRF will take place Sunday, September 10, 2022 at The Bronx Zoo. The event is in its 6th year, after a two-year hiatus due to […]

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neuron banner
June 1, 2022

Making the Connection: Untangling Complex Neural Networks is Key to Solving Dystonia

This article was published in the Dystonia Dialogue. Excessive muscle contractions are a hallmark sign of dystonia, but the muscles are not the source of the problem. The muscles are responding to abnormal signals from the brain, which cause them to flex, and this results in dystonic movements and postures. Research shows that the origins […]

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Semi-transparent profile of human head and neck with jaw area illuminated against dark background..
June 1, 2022

Deep Dive into Oromandibular Dystonia

This article was published in the Dystonia Dialogue. In a study partially supported by DMRF, an international team of investigators embarked on the most comprehensive examination of the clinical features of oromandibular dystonia with the purpose of reducing misdiagnosis. The symptoms of OMD include varying combinations of abnormal jaw, tongue, or lower face movements. OMD […]

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Profile view of a glowing human brain against a dark, cloud-like background.
June 1, 2022

Investigating Dystonia Remission

This article was published in the Dystonia Dialogue. There are occasional reports of dystonia symptoms going into remission. Given the research and prognosis implications of this, investigators did a systematic review of reports of remission in the medical literature. They reviewed data from 2,551 cases with reports predominantly from individuals with cervical dystonia  or blepharospasm/Meige […]

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Amanda Sleeper and friend 2022
May 18, 2022

Nashua Dystance4Dystonia 5K Returns

The Nashua Dystance4Dystonia 5K Walk/Run organized by Amanda Lockhead took place Sunday, May 15, 2022 to raise dystonia awareness and funds for urgently-needed research toward a cure. More than 100 people attended to share their support, after the event had been paused in recent years due to the pandemic. Donations continue to be calculated, but […]

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