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Dystonia Medical Research Foundation
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  • HOME
  • WHAT IS DYSTONIA
    • What is Dystonia?
    • Newly Diagnosed
    • Dystonia Basics
    • Types of Dystonia
    • Symptoms & Classifications
    • Genetics
    • Common Misunderstandings
    • Frequently Asked Questions
    • Download Materials
  • LIVING WITH DYSTONIA
    • Living with Dystonia
    • Treatment
      • Non-Drug Therapies
      • Oral Medications
      • Botulinum Neurotoxin Injections
      • Deep Brain Stimulation
      • Other Surgical Procedures
      • Complementary Therapies
    • Taking Charge of Your Care
    • What is a Movement Disorder Specialist?
    • Find a Doctor
    • Dystonia Support
      • Find a Support Group
      • Online Support
      • Support Group Meetings
    • Emotional & Mental Health
    • Resources for Parents
  • GET INVOLVED
    • Become a Member
    • Email Sign Up
    • Events & Meetings
    • Promote Awareness
    • Become a Legislative Advocate
    • Join the Global Registry
    • Brain Donation
      • Register as a Brain Donor
  • RESEARCH
    • Untangling Complexity of Dystonia: Report
    • Research Overview
      • Accomplishments & Milestones in Research
    • Research Funding Programs
    • Current Projects
    • Clinical Fellowship Program
    • Dystonia Study Group
    • Global Dystonia Registry
    • Dystonia Coalition
    • Resources for Investigators
    • Conversations with Investigators
  • ABOUT US
    • Mission & History
    • How Will We Find a Cure?
    • People
    • News & Press Releases
    • Dystonia Newsletters
    • Financials
    • Privacy
    • Contact
  • DONATE
    • Donate Online
    • Membership
    • Find an Event
    • Shop
      • Shop Merchandise
      • Order Brochures
    • Other Ways to Give
    • Dystonia Pet Palooza
    • Friends
Chef Andy LoRusso's upcoming cooking-cabaret performance will include a demonstration for preparing Cacio E Pepe and Sicilian Ricotta Cheesecake.
January 8, 2021

The Singing Chef Andy LoRusso & DMRF are “Cooking for a Cure” for Dystonia

“The Singing Chef” Andy LoRusso is promoting public awareness of dystonia, the third most common movement disorder, estimated to affect 250,000 people in the United States. “Cooking for a Cure” on Friday, January 29, 2021 (6:00 PM Central Time) is an online interactive cooking event to benefit the Dystonia Medical Research Foundation (DMRF). With 100 […]

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Laboratory research in science and medical setting.
December 22, 2020

Call for Applications: Connie & Jim Brown Early Stage Investigator Award in Myoclonus-Dystonia

The Dystonia Medical Research Foundation (DMRF) is seeking applications for the Connie and Jim Brown Early Stage Investigator Award in Myoclonus-Dystonia (M-D). The purpose of the award is to support young investigators interested in developing careers in basic or clinical research in M-D. The goal of this Award is to facilitate career development for early […]

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FAQ 920w
December 8, 2020

Dystonia: Frequently Asked Questions

This article was originally published in the Dystonia Dialogue. What is dystonia? Dystonia is a brain disorder resulting in involuntary, abnormal postures or movements of the body due to excessive muscle contractions. Dystonia may be the only neurological disorder a person has, or the dystonia may be part of a medical condition or disease with […]

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legacy society collage reduced
November 25, 2020

Legacy Society Honors Visionary Donors

This article was originally published in the Dystonia Dialogue. The DMRF was only a few years old in the late 1970s when Susan Aguilera’s seven-year-old daughter Emma was diagnosed with dystonia by a special panel of neurologists in San Diego. Finally there was an explanation for why her little girl had lost the ability to […]

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corona for blog
November 18, 2020

Survey: How is Covid-19 Affecting the Dystonia Community?

The DMRF is inviting feedback about how the Covid-19 pandemic is affecting individuals and families affected by dystonia. The information collected will help DMRF in the development and planning of future activities. The survey should take less than 10 minutes to complete. Click here to access the survey. The Dystonia Medical Research Foundation is a 501(c)(3) non-profit […]

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DysCoalition_4cLogo_blogX
November 16, 2020

Dystonia Coalition Natural History Study Sheds Light on Dystonia Symptom Spread

This article was originally published in the Dystonia Dialogue. The Dystonia Coalition is a global research network funded by the National Institutes of Health that has engaged investigators and patients on an unprecedented scale to improve dystonia treatment. Since 2010, the Dystonia Coalition has included a Natural History of Isolated Dystonia study aimed at better […]

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biomarker blog
November 4, 2020

New AI Platform Diagnoses Focal Dystonia with High Accuracy in Less Than One Second

Researchers at Massachusetts Eye and Ear in Boston led by Kristina Simonyan, MD, PhD, Dr med have developed a unique diagnostic tool that detects dystonia from MRI scans, the first technology of its kind to provide an objective diagnosis of the disorder. Dr. Simonyan is a former member of the DMRF Medical & Scientific Advisory […]

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dna-helix-400w
November 4, 2020

Dystonia Genes Converge in Specific Neurons & Intersect Underlying Genetic Basis of Psychiatric Disorders

There are many types of dystonia, often presenting with very distinct symptoms. There is also a great deal of overlap in the physical manifestation of symptoms across the different types. Non-motor symptoms are common, including psychiatric disorders such as depression and anxiety. There have been numerous genes identified to cause dystonia, and it is not […]

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Fleisher
October 27, 2020

Musicians With Dystonia Renamed to Honor Leon Fleisher

The Musicians With Dystonia program of the DMRF has been renamed The Leon Fleisher Foundation for Musicians with Dystonia, in memory of the influential and beloved pianist and prominent public champion for dystonia. Mr. Fleisher sadly passed away earlier this year. The Leon Fleisher Foundation for Musicians with Dystonia was created in 2000 by French […]

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doctor giving neck injection
October 26, 2020

Quick Facts about Botulinum Neurotoxin Injections

Botulinum neurotoxin (BNT) injections are a common treatment for dystonia. This therapy is used to treat dystonia symptoms in a specific group of muscles, for example, the neck, face, or a limb. Despite the popularity of this treatment for dystonia, certain important aspects of the therapy may come as a surprise to new patients. BNT […]

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