The Dystonia Advocacy Network (DAN) needs your help to raise awareness of dystonia with US elected officials and support the need for more dystonia research. Please consider becoming a dystonia advocate and joining with others across the country in making a difference. Sign up with DAN here. Being a dystonia advocate is easy, empowering, and […]
The Dystonia Medical Research Foundation (DMRF) announced at their annual meeting a new President of the Board of Directors and two new Directors as a result of joining with the non-profit organization Cure Dystonia Now. Each of these new appointments will enhance the DMRF’s work in service to the dystonia community. Mark Rudolph was appointed […]
Nineteen-year-old St. Lawrence University student Sydney Peterson of Lake Elmo, Minnesota is one of 15 Nordic athletes representing Team USA at the Winter Paralympics in Beijing (March 4-13, 2022). Sydney is competing in three standing cross country skiing races: the 15Km Classic, the 10Km Skate, and the Skate sprint. This is her first Paralympic Games. […]
By Karen K. Ross, PhD, DMRF Vice President of Support This article was published in the Dystonia Dialogue. Our family felt like the rug was pulled out from under us when my son was first diagnosed with dystonia. Each family member was affected in profound ways, and we experienced the entire range of emotions. Shock, […]
This article was published in the Dystonia Dialogue. Whether someone has lived with dystonia for months or decades, the disorder often requires adjustments across many areas of daily life. The advantages of experience and aging can help ease certain aspects of the dystonia journey, while evolving realities may create new challenges. Being aware of the […]
Mike Delise and Jason Dunn are on a mission to find a cure for dystonia $5 at a time. They are also educating the world about this under-recognized brain disorder that affects more people than ALS, muscular dystrophy, and cystic fibrosis combined. Mike became passionate about increasing dystonia awareness after meeting Jason, a childhood friend […]
The Singing Chef Andy LoRusso is returning for a second year of Cooking for a Cure, a virtual event to benefit DMRF on Friday, January 28, 2022 at 5pm Pacific/7pm Central/8pm Eastern. He recently shared details about the event and how he became involved with DMRF. DMRF: We’re so pleased Cooking for a Cure is […]
The Dystonia Medical Research Foundation (DMRF) was founded on the promise two parents made to their child. 45 years ago, Sam and Fran Belzberg vowed to do whatever it took to find answers for their newly diagnosed daughter and for people everywhere living with dystonia. They imagined a future without dystonia and the DMRF’s commitment […]
The Center for Neurosciences at The Feinstein Institute for Medical Research conducts one of the nation’s leading brain imaging programs directed by neuroscientist, David Eidelberg, MD. The program is internationally recognized for developing new techniques to identify and measure patterns and circuits of brain function in people with disorders such as Parkinson’s disease, Huntington’s disease, […]
DMRF extends congratulations to Kristina Simonyan, MD, PhD, Dr med, Director of laryngology research at Mass Eye and Ear, for being awarded an $11.9 million P50 Clinical Research Center Grant from the National Institute on Deafness and Other Communicable Disorders (NIDCD) of the National Institute of Health (NIH) to form a new multidisciplinary center across […]
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