Thank You Indianapolis Zoo Day

Indy Dystonia Zoo Day

We want to say a big thank you to everyone who joined us for Dystonia Zoo Day Indianapolis. It was amazing to see the dystonia community come together for such an important cause. We are grateful for your support in helping to raise awareness and funds for dystonia research. Let’s keep working together to make […]

Thank You Lansing Zoo Day

Dystonia Zoo day

We want to say a big thank you to everyone who joined us for Lansing’s Dystonia Zoo Day. It was amazing to see the dystonia community come together for such an important cause. We are grateful for your support in helping to raise awareness and funds for dystonia research. Let’s keep working together to make […]

Thanks to St. Louis for Dystonia Zoo Day

Dystonia Zoo Day

Thank you for your incredible support in uniting the dystonia community, along with their families and friends, to raise awareness and contribute to the mission of the Dystonia Medical Research Foundation (DMRF) to find a cure. We extend our deepest appreciation to June Tritley, whose dedicated efforts played a vital role in making this event […]

Thank You Connecticut

Dystonia Zoo Day

Thank you for your incredible support in uniting the dystonia community, along with their families and friends, to raise awareness and contribute to the mission of the Dystonia Medical Research Foundation (DMRF) to find a cure. We extend our deepest appreciation to Janice & Len Nachbar, Paula Schneider, and Ron Hersh, whose dedicated efforts played […]

Service Dogs Can Change Lives for Those with Dystonia

service dog for dystonia

Maddie Paolero and Dee Linde share how their dogs, JJ and Murphy, bring independence and companionship to their lives. Learn if a service dog may be right for you and what it takes to find and care for one. At age 5, Maddie Paolero was diagnosed with early-onset generalized dystonia. “I started noticing when she […]

Thank You Long Island!

We extend our deepest appreciation to Linda Davis of Medford, NY, whose dedicated efforts played a vital role in making Long Island’s Dystonia Zoo Day a resounding success! Heartfelt gratitude goes out to all participants, volunteers, local politicians, and our generous event sponsors. A special thank you to our national sponsors, Abbvie, Merz Therapeutics, and […]

Check out the 2023 Summer Dystonia Dialogue

Discover the latest breakthroughs in dystonia research and treatment with the new edition of DMRF’s Summer Dystonia Dialogue. Stay informed with expert insights, patient stories, and updates on innovative therapies. Uncover essential dystonia news and resources today. Inside this issue: DMRF Awards New Grants and Fellowship Service Dogs Can Change Lives for Those With Dystonia […]

September is Dystonia Awareness Month

Raise Awareness and Make a Difference During the month of September, the DMRF is enlisting volunteers to raise awareness for dystonia.  An estimated 250,000 people in the United States have dystonia, a chronic movement disorder affecting the brain and nervous system. It is the third most common movement disorder after essential tremor and Parkinson disease. Dystonia […]

Thank You Portland!

We extend our deepest appreciation to Dee Linde, Judith Mason and Erinn Stimson, whose dedicated efforts played a vital role in making Portland’s Dystonia Zoo Day a resounding success! Heartfelt gratitude goes out to all participants, volunteers, and our generous event sponsors. A special thank you to our national sponsors, Abbvie, Merz Therapeutics, and Ipsen […]

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