DMRF Research Awards Advance Understanding of Dystonia

The Dystonia Medical Research Foundation (DMRF) has announced the latest research grant and fellowship awards to advance progress toward improved dystonia treatment options and ultimately a cure. Dystonia is the third most common movement disorder, affecting approximately 250,000 Americans and potentially millions worldwide. “The pace of dystonia research has been accelerating faster and faster, and […]

Tips on Finding a Doctor

This article was published in the Dystonia Dialogue. One of the most common inquiries the DMRF receives is from people seeking help locating a doctor who is qualified to diagnose and treat dystonia. They may have received a tentative diagnosis from a general neurologist and need a movement disorder specialist to confirm or rule out […]

New Consensus Guidelines for Botulinum Neurotoxin Therapy for Dystonia & Spasticity

This article was published in the Dystonia Dialogue. Botulinum neurotoxin (BNT) therapy is one of the most common treatments to reduce dystonia symptoms. BNT therapy involves injecting appropriate doses of BNT into the appropriate selection of muscles. Both the muscles to be treated and the specific doses determine the dosing regimen for an individual patient. […]

Take Action to Educate Elected Officials about Dystonia

Dystonia Advocacy Day on Capitol Hill

The Dystonia Advocacy Network (DAN) needs your help to raise awareness of dystonia with US elected officials and support the need for more dystonia research. Please consider becoming a dystonia advocate and joining with others across the country in making a difference. Sign up with DAN here. Being a dystonia advocate is easy, empowering, and […]

DMRF Announces New Board Slate & Union with Cure Dystonia Now

The Dystonia Medical Research Foundation (DMRF) announced at their annual meeting a new President of the Board of Directors and two new Directors as a result of joining with the non-profit organization Cure Dystonia Now. Each of these new appointments will enhance the DMRF’s work in service to the dystonia community. Mark Rudolph was appointed […]

Sydney Peterson Competes in Beijing Paralympic Winter Games

Nineteen-year-old St. Lawrence University student Sydney Peterson of Lake Elmo, Minnesota is one of 15 Nordic athletes representing Team USA at the Winter Paralympics in Beijing (March 4-13, 2022). Sydney is competing in three standing cross country skiing races: the 15Km Classic, the 10Km Skate, and the Skate sprint. This is her first Paralympic Games. […]

Family Healing in Living with Dystonia

Dystonia man in wheelchair

By Karen K. Ross, PhD, DMRF Vice President of Support This article was published in the Dystonia Dialogue. Our family felt like the rug was pulled out from under us when my son was first diagnosed with dystonia. Each family member was affected in profound ways, and we experienced the entire range of emotions. Shock, […]

Not Born Yesterday: Dystonia & Aging

Close up of a senior woman having a doctors appointment.

Born Yesterday: Dystonia & Aging Whether someone has lived with dystonia for months or decades, the disorder often requires adjustments across many areas of daily life. The advantages of experience and aging can help ease certain aspects of the dystonia journey, while evolving realities may create new challenges. Being aware of the natural aging process […]

$5Cure4Dystonia Raises $100K+ for Medical Research

Mike Delise and Jason Dunn are on a mission to find a cure for dystonia $5 at a time. They are also educating the world about this under-recognized brain disorder that affects more people than ALS, muscular dystrophy, and cystic fibrosis combined. Mike became passionate about increasing dystonia awareness after meeting Jason, a childhood friend […]

The Singing Chef Andy LoRusso Cooks to Support DMRF

The Singing Chef Andy LoRusso is returning for a second year of Cooking for a Cure, a virtual event to benefit DMRF on Friday, January 28, 2022 at 5pm Pacific/7pm Central/8pm Eastern. He recently shared details about the event and how he became involved with DMRF. DMRF: We’re so pleased Cooking for a Cure is […]