The first time most people hear the word dystonia is when they or a loved one are diagnosed. What is Dystonia?’ often leads to many more questions. Some questions have simple answers, others are more complicated.
For 45 years, the Dystonia Medical Research Foundation (DMRF) has been the go to resource for every person facing dystonia – initially for those who are newly diagnosed, and continuing on for decades, as individuals negotiate their dystonia journey.
When you don’t know where to turn for answers, the DMRF can help you get the information you need.
Every day someone hears about dystonia for the first time. Every day individuals contact the DMRF for advice and support. We need to be there for all of them. We cannot do this alone. Please give as generously as you can.