In 2013, I was approached by Rebecca Sharp to run the NYC marathon for the DMRF. I was going to be part of a team of runners, Distance for Dystonia. I had no idea what dystonia was or even how it is treated. After reading more about it and talking with Rebecca, I learned a lot. I learned that dystonia is a movement disorder in the Parkinson’s family. There is no known cure and it is very debilitating. How could I say no to that? I couldn’t. So, I ran my very first marathon and raised money for the DMRF.
Six years later, I am still running for the DMRF. I guess you could say that I am an advocate for dystonia. I run for those who can’t. Since starting this journey, I have met some amazing people, such as Len and Janice Nechbar and their daughter, Joanna who has dystonia. In fact, they are family to me. Joanna has dystonia, and I had the honor to meet her in 2015 at Mile 23 of the NYC marathon. That was the one and only time she was at the marathon. Talk about feeling very privileged. You bet I did. In 2016, I ran the Harrisburg Marathon which is not to far from my home and again, I had the honor to meet Tania and Fred Jenkins. Tania has dystonia and is one of my closet friends. I love both of these women. They are fighters and keep fighting every day.
My whole thing is this. If I can give just one person who has dystonia, hope, then I’ve done my job. I run to raise awareness and hopefully, raise a little funds too .I am running the Wineglass Marathon in Corning, NY on October 6, 2019. Any money you donate goes to research to hopefully, one day find a cure. Please help me to raise funds and give people hope that maybe one day we will have a cure.
On a side note, I am still completely humbled and honored to run for those who can’t all these years later.