I was misdiagnosed for many years. Going without a Dystonia diagnosis means going without proper treatment. Dystonia can put a hold on a person’s life at any age. I want more doctors to understand Dystonia so that patients can be diagnosed sooner and receive proper treatment for better quality of life. 6 years after diagnosis, I am starting to repair the damage that could have been prevented with a diagnosis and earlier intervention. I want better treatments for patients who aren’t having as much success with the current treatments available as I am. I appreciate everything DMRF does for Dystonia patients and want them to have all the financial support possible.
Throughout February support Mishka and the other pets registered for DMRF’s Dystonia Pet Palooza by making a donation today.
Donation Goal
Donors
BubbleTea Sis
Lizzi Frausto
Anonymous
Anonymous
Anonymous
Anonymous
Mikko Paakkola
David Dunn
Anonymous
Team Mishka! Team Wolfpuppi! Team Chicagoland For Wolfi and Mishka!
Please Contribute:
Pet Palooza – Mishka
Virtual Dystonia Zoo Day 🐨 Participate from the comfort of your own home!
Join families across the country on this important day to promote dystonia awareness, raise funds to support the DMRF, and connect the community so that no one has to face dystonia alone. This is a wonderful opportunity for you to help those who are living in isolation and to bring awareness to a cause that is often overlooked.
Sign-up is free and you can show your support by purchasing a shirt, starting a team, or making a donation. The team t-shirt deadline is September 25.
Register Today! https://bit.ly/3ZqhHMq
#Letszoothis #dystoniazooday #DMRF
🌟 Introducing the Dystonia Warrior Canvas Bag 🌟 This bag is not just a fashion statement; it’s a symbol of resilience, strength, and the unyielding spirit of those who battle against the challenges of dystonia. This bag can serve as a conversation starter, allowing you to share your story and educate others about dystonia.
Details:
Size: 14″ x 3.5″ x 14″.
Adjustable strap. Can be a shoulder bag, crossbody bag, or a tote bag.
Made of soft canvas.
Light and durable for daily use.
Large inside with two open small pockets for small things.
Don`t wait too long — get your hands on this new bag before it`s gone. Limited quantities are available! Visit, https://bit.ly/3Lx4bkF
#DMRF #dystonia #merch
Thank You for your Participation at the Pittsburgh Dystonia Zoo Day! 🐨 🐯
We want to extend a sincere thank you to our hosts Ed Cwalinski, MaryRae Nee, Chris, and Tara Sorley for their outstanding support and effort. We appreciate your visit and the thoughtful remarks, Dr. Timothy Leichliter. Thank you to all participants, volunteers, and sponsors for making Pittsburgh Zoo Day a success. Your generosity and enthusiasm made this event a memorable experience. Your participation not only helped us make a difference in the lives of those affected by dystonia but also created a sense of unity within our community. Together, we can make a significant impact on the lives of those affected by dystonia.
If you have photos or videos from the event, please post them with #DystoniaZooDay and #LetsZooThis!
We invite you to join us for the Virtual Dystonia Zoo Day on Saturday, October 14, where we can continue to raise awareness and support those affected by dystonia.
#letszoothis #dystoniazooday #DMRF
Thank you, Revance for bringing awareness to dystonia by wearing blue and illuminating your building in blue during Dystonia Awareness Month! 💙
Wearing blue or participating in Shine a light on Dystonia campaign to support dystonia is a powerful gesture that can help raise awareness and show solidarity with individuals and families affected. Demonstrate your support by wearing blue for #dystoniaawareness and contribute to the larger mission of educating others about the challenges faced by those with dystonia and the need for research and improved treatments.
Together, we can make a meaningful difference in the lives of those affected by dystonia and work towards a brighter future. 💙 @revance
Raise Awareness and Make a Difference,
https://bit.ly/3R1IpJa
#DystoniaAwareness #DMRF #DystoniaBlue #Dystonia
Thank you, Merz Therapeutics for bringing Awareness to Dystonia by wearing blue! 💙
Wearing blue to support dystonia is a powerful gesture that can help raise awareness and show solidarity with individuals and families affected. Demonstrate your support by wearing blue for #DystoniaAwareness and contribute to the larger mission of educating others about the challenges faced by those with dystonia and the need for research and improved treatments.
Together, we can make a meaningful difference in the lives of those affected by dystonia and work towards a brighter future. 💙
Raise Awareness and Make a Difference, https://bit.ly/3R1IpJa
#dystoniaawareness #DMRF #DystoniaBlue #Dystonia #merztherapeutics
Thank You for Your Support at the Indianapolis Dystonia Zoo Day! 🐨 🐯
We would like to express our heartfelt gratitude to our hosts Sunshine and Darrick Fox, Sally and Sarah Ernstberger for their incredible dedication and support. To all participants, volunteers, and sponsors thank YOU for making Indianapolis Zoo Day an unforgettable day. Your generosity and enthusiasm made this event a memorable experience.
We were able to raise awareness and funds for dystonia research and support programs. Your participation not only helped us make a difference in the lives of those affected by dystonia but also created a sense of unity within our community.
Together, we can make a significant impact on the lives of those affected by dystonia.
If you have photos or videos from the event, please post them with #DystoniaZooDay and #LetsZooThis! Team donations can still be matched! 🦁
We invite you to join us for the Virtual Dystonia Zoo Day on Saturday, October 14, where we can continue to raise awareness and support those affected by dystonia.
#letszoothis #dystoniazooday #DMRF
❇️ Thank You, Lansing for coming together to support Dystonia Zoo Day! 🐨 🐯
We extend our deepest appreciation to our host Lisa Breedveld for all her efforts in making this event a success. To all participants, volunteers, and sponsors thank YOU for making Lansing Zoo Day an unforgettable day.
Your generosity, enthusiasm, and support have played a vital role in creating a memorable experience for all. Thank you for your dedication and commitment to making a positive impact in our community.
If you have photos or videos from the event, please post them with #DystoniaZooDay and #LetsZooThis! Team donations can still be matched! 🦁
We invite you to join us for the Virtual Dystonia Zoo Day on Saturday, October 14, where we can continue to raise awareness and support those affected by dystonia. https://bit.ly/4589Fdn
#letszoothis #dystoniazooday #DMRF
Dystonia Tip: Build a strong support network. Surround yourself with understanding family members, friends, and healthcare professionals who can provide physical and emotional support and assist you on your dystonia journey.
Join support groups. Connecting with others who share your experiences can provide valuable insights, tips, and emotional support. Online communities and local support groups can be excellent resources. Visit, https://bit.ly/45LTZfE
#TuesdayTips #DystoniaTips #LivingWellWithDystonia #DMRF
We`re thrilled to announce that Dystonia Zoo Days are taking place today in both Indianapolis and Lansing, MI! A huge shoutout to our incredible volunteers and all the participants who are contributing to dystonia research funding and spreading #dystoniaawareness.
Curious if there`s a Zoo Day coming to your area? Visit our website for upcoming events. Don`t forget, everyone can join us for the Virtual Zoo Day on October 14th. Let`s unite for a fantastic cause! 🦓🦒🦁 #LetsZooThis #Dystonia #DMRF
For more details, click here: https://bit.ly/4589Fdn
Dystonia Awareness Month continues with two Zoo Days and more blue lights!
September 8 - Shining a Light on Dystonia participants:
-Baltimore City Hall Dome
-Massachusetts Bridges: Zakim Bridge, Longfellow Bridge, Fore River Bridge, Burns Bridge
September 9 -Dystonia Zoo Day
-Lansing, MI
-Indianapolis, IN
Visit our website for more info on awareness activities: https://dystonia-foundation.org/
#DystoniaAwareness #Dystonia #DMRF
Calling all our friends in the Minneapolis area! Tonight, September 3rd, I-35 W St. Anthony Falls Bridge in Downtown Minneapolis will be turning blue in support of dystonia awareness! 💙Help spread the word and post your photos with the hashtags: #DystoniaAwareness #Dystonia #DMRF
We are grateful to the Minnesota Department of Transportation for participating in our Shine a Light campaign for dystonia awareness.
Also, the beautiful Chicago skyline continues to be bathed in blue lights for dystonia. We would like to thank all of the participants from BOMA/Chicago.
The sun has gone down in Chicago and the blue lights are being turned on for #DystoniaAwareness. This is a pic of the beautiful Tribune Tower. #Dystonia #DMRF @tribunetowerresidences @chicagotribune
Here are more buildings and landmarks turning blue tonight:
Sep 1 - Niagara Falls Live Cam
Sep 1- CN Tower in Toronto Canada (New to list!)
Sep 1 & 2 - Willis Tower, Chicago
Sep 1 – 7 - Chicago`s skyline, Tribune Tower, John Hancock, and many more.
Sep 1 - Peace Bridge, Buffalo & Fort Erie
Sep 1 - Spires at Market Square, Rapid City, SD