Jon Davis – #Riding4Us
Help Me Ride Toward a Cure for Dystonia
Hi, I’m Jon Davis, and I’m asking for your help to raise $25,000 to support research into dystonia — a rare and debilitating neurological movement disorder that affects more than 250,000 people in North America.
What is #Riding4Us?
#Riding4Us is my personal campaign — riding thousands of miles annually to raise awareness and funds for the Dystonia Medical Research Foundation (DMRF). The “us” in #Riding4Us represents everyone living with dystonia — especially those who have lost their freedom of movement. I’m riding for them.
Why This Matters to Me
I was diagnosed with dystonia at age 13. One day I came home from school with a note from my teacher saying she could no longer read my handwriting. Overnight, I taught myself to write with my other hand.
As the disease progressed, it took more. By my 30s, I couldn’t ride a bike anymore — a lifelong passion. My walk became unsteady. By my early 40s, I could barely stand or walk for more than a few minutes at a time. Medications didn’t help. Physical therapy didn’t help. Dystonia is a cruel and relentless condition.
My last hope was a procedure called Deep Brain Stimulation (DBS) — a complex surgery where wires are implanted in the brain and connected to pacemakers in the chest. After the surgery in 2011, and months of fine-tuning, something amazing happened: In 2012, I got back on a bike for the first time in over a decade. I took my first “bionic” ride — and haven’t stopped since.
Most people who meet me now would never guess I have a movement disorder. That’s the power of research and innovation — and why I’m so passionate about funding more of it.
The #Riding4Us Journey So Far
- In 2018, I joined the Board of the DMRF, dedicating myself to expanding awareness and raising funds for dystonia research and support
- In 2023, I launched #Riding4Us, setting a goal to ride 4,000 miles and raise $20,000, surpassing both goals
- In 2024, I rode and raised another $25,000 for dystonia research
Let’s Do It Again in 2025!
This year, I’m riding 4,000 miles (I’m already close to 3,000!) — and aiming to raise another $25,000 to support the DMRF’s mission:
✅ Funding research to find a cure
✅ Supporting individuals and families affected by dystonia
✅ Raising awareness about this often-misunderstood disease
And here’s the best part: All donations up to $10,000 will be matched dollar-for-dollar by a generous donor. That means your gift will go twice as far!
Every donation, no matter the size, moves us closer to a cure — and with the matching funds, your gift has double the power.
Thank you for supporting me, supporting research, and most importantly — supporting the dystonia community.
Let’s ride toward a future with better treatments — and one day, a cure.
With gratitude,
Jon Davis
Choose your level of impact:
- Tour de Force – $500
→ Donors of $500 or more receive a complimentary #riding4us branded water bottle! - King/Queen of the Mountain – $100
- Road Warrior – $50
- Cruiser – $25
- Or choose your own amount
Thank you Donors!
Carol Davis
In honor of Jon Davis.
Judith Rodriguez
Barb & Dennis Kessler
We love that your riding benefits the DMRF!
Paul Shumsker
Good luck! Thanks
Stefanie Jackson
To know Jon is to know a true hero!
Andrea Goodman
Deborah Goodman
Laura Ryan
Warren Haber
Barbara Klett
Josh Huskins
Proud and honored to contribute to this cause!
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