Prior to joining the DMRF Board of Directors, Robin and Marc Miller founded the non-profit Cure Dystonia Now.

The 9th Annual “Rockin’ for a Cure” organized by Robin and Marc Miller of New York on July 14 raised $147,000 for urgently-needed dystonia research. The event supported the Cure Dystonia Now Fund of the Dystonia Medical Research Foundation (DMRF). Sponsors included Allergan, an AbbVie Company; Reliance First Capital; and Command Direct.

Over the past 10 years, the Millers have raised more than $1 million for medical research toward a dystonia cure.

“It was a great night, and we are grateful to everyone who attended and supported the event. This incredibly important cause is near and dear to our hearts,” said Robin. “Donations from the event will fund new medical discoveries focused on improving the lives of the people and families affected by dystonia.”

“Living with dystonia firsthand between my daughter and myself as well as having had the honor of speaking to so many people—young and old, from all walks of life—whose lives are impacted by this movement disorder every day, drives us to do our part to help raise money to fund research, advocacy, and support. We look forward to the day that we all put the DMRF out of business by finding a cure,” said Marc.

The Millers joined the DMRF Board of Directors in 2022. The DMRF extends deep thanks to the Millers for their dedication to advancing dystonia research and tireless support of the mission to find a cure.

Dystonia is a chronic, often disabling, neurological disorder marked by excessive muscle contractions that cause involuntary body motions and postures. Estimates suggest dystonia affects 250,000 Americans and millions worldwide. Up to 70% of individuals are misdiagnosed due to a lack of awareness, even among medical professionals. Common signs include abnormal movements or positions of the head, neck pain, excessive blinking, a breathy or strangled-sounding voice, hand cramps, or a twisted foot. Although there is not yet a cure, treatment options include oral medications, botulinum neurotoxin injections, and deep brain stimulation.

The Dystonia Medical Research Foundation is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families.