By Janet Hieshetter, Executive Director, Dystonia Medical Research Foundation Allow me to begin this blog by expressing my appreciation to all who participated in the Dystonia Medical Research Foundation’s recent Auction for Action: Supporting Dystonia Research, the online auction. Your participation resulted in a successful event for the DMRF and will go to support […]
Renew your DMRF membership by June 15 to receive a free gift–this portable custom jar opener is a handy tool to have around the house or on-the-go. Annual DMRF membership is $40 and only registered members will be mailed a copy of the Summer edition of the Dystonia Dialogue. If you want to read the […]
Get ready for these 2025 Dystonia Zoo Days events and be sure to sign up by the T-Shirt registration deadline so everyone can see that you are a part of the “Zoo Crew” at your local Dystonia Zoo Day! Visit our events page to see a full listing of upcoming community events. June 14, 2025 […]
The Dystonia Medical Research Foundation has added a new brochure to our library of resources: Non-Motor Symptoms of Dystonia. Dystonia is a life-altering neurological disorder that affects the physical body, but the impact goes far deeper. The hallmark signs of dystonia are excessive, involuntary muscle contractions that cause abnormal postures and/or repetitive movements. Individuals diagnosed […]
What will you bid on? Get ready for the online DMRF Auction for Action to support dystonia research, May 12-22. Bid on travel packages, memorable experiences, tickets for concerts and sporting events, master classes and other one-of-a-kind items. Bidding opens online at 7:00 p.m. ET on Monday, May 12 and closes at 7:00 p.m. ET […]
We could all benefit from more laughter in our lives. “The Power of Laughter” webinar is now available on the DMRF YouTube channel so you can learn how laughter can improve our health. Certified Yoga and Laughter Yoga instructor Rachel Frank explores the power of a good laugh on our health, and you can enjoy […]
In this issue: Meet two gold medalist Paralympians with dystonia Get to know the DMRF’s new Chief Science Officer Find out what fuels dystonia research Focus on: Early onset childhood dystonia Learn how advocates nurture dystonia awareness READ NOW
The Dystonia Medical Research Foundation (DMRF), a leading non-profit organization dedicated to funding research to find a cure for dystonia, is proud to announce its 2025 grant and fellowship recipients. This year, the DMRF awarded six grants and fellowships for basic and clinical dystonia research projects. These grants and fellowships will support scientists investigating the […]
CONGRATULATE JACOB ON COMPLETING THE BOSTON MARATHON: Jacob Peterson is running for dystonia support, education and research—and you can help! Contribute to Jacob’s online fundraiser for the Dystonia Medical Research Foundation after running the Boston Marathon on April 21. Your support can help provide: Programs of support for families navigating the challenges of this condition. […]
In honor of International Women’s Day on March 8, this month the Dystonia Medical Research Foundation (DMRF) is recognizing women with cervical dystonia whose perseverance is nothing short of awe-inspiring. Their stories will be featured in a four-part series called Warrior Women Wednesdays. Cervical dystonia is a type of dystonia that affects the neck muscles, […]
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