How to Promote Dystonia Awareness in September
During the month of September, the DMRF is asking YOU to help raise awareness of dystonia. As many as 70% of patients are misdiagnosed prior
News & Press Releases
Dystonia is a Movement Disorder
Get Your Movers & Shakers Shirt for Dystonia Awareness Month
Place your order today so you can wear this shirt during Dystonia Awareness Month in September and all year round to raise awareness of this
Visit the DMRF Events Page to Find a Dystonia Zoo Day Near You
Summertime is a time of community, support and awareness for those living with dystonia. By Janet Hieshetter, Executive Director, Dystonia Medical Research Foundation Memorial Day
Dystonia Dialogue Summer 2025 Edition Now Online
Inside this issue: Get the researchers’ perspectives on the 2025 DMRF Grant and Fellowship awards. Learn more about the Definition and Classification of Dystonia Update.
Ask Me About Dystonia Buttons Available Now
It’s the ultimate conversation starter—the “Ask Me About Dystonia” button. DMRF’s Chief Scientific Advisor Jan Teller, MA, PhD, proudly wore his “Ask Me” button during
Arkansas July Fundraiser in Support of DMRF
William’s dystonia journey did not become obvious until he was four years old, when he started having trouble walking. It appeared some days as a
2024 Annual Report Now Available on DMRF Website
The Dystonia Medical Research Foundation appreciates your ongoing support, and you can learn more about what you helped us accomplish last year in the 2024
DMRF Welcomes New MSAC Members
The Dystonia Medical Research Foundation is welcoming six new members to the Medical and Scientific Advisory Council this year. We look forward to working with
DMRF Hosts Workshop on Dystonia Penetrance
The DMRF organized a scientific workshop on the Mechanisms of Reduced Penetrance in Dystonia in Helsinki, Finland on June 19-21. Dystonia penetrance refers to the
Your Support is Needed More Than Ever
By Janet Hieshetter, Executive Director, Dystonia Medical Research Foundation Allow me to begin this blog by expressing my appreciation to all who participated in
Get Ready for the 2025 Dystonia Zoo Days
Get ready for these 2025 Dystonia Zoo Days events and be sure to sign up by the T-Shirt registration deadline so everyone can see that
Renew Your Membership to Receive Summer Dystonia Dialogue
Renew your DMRF membership by June 15 to receive a free gift–this portable custom jar opener is a handy tool to have around the house
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