Thank you to all the awareness warriors who organized local events last month or participated in a Dystonia Zoo Day this year. Each September, National Dystonia Awareness Month brings us a unique opportunity to focus our efforts to help others understand what dystonia is and how it changes lives. DMRF would like to thank the […]
In June, DMRF launched a series of dystonia awareness and community-building events, including the signature Dystonia Zoo Days. Dystonia Zoo Days were held in-person in 12 cities plus the 4th Virtual Dystonia Zoo Day which was livestreamed online on October 14 uniting the entire dystonia community across all 50 states. The DMRF is grateful to […]
Chicago Dystonia Zoo Day was held at the Brookfield Zoo on Saturday, October 7. This family-friendly event was organized to promote awareness of dystonia, connect the dystonia community, and support the work of the DMRF. DMRF Board members Art Kessler and Treasurer John Downey presented the prestigious Changing Lives through Science award to Cynthia Comella, […]
Heartfelt gratitude goes out to all participants, volunteers, and generous sponsors of 2023 Boston Dystonia Zoo Day held on September 30, the final day of Dystonia Awareness Month. This year’s event, hosted by Paula Schneider, Vice President of Support for the Dystonia Medical Research Foundation and members of the Greater Boston Dystonia Support Group, including co-leaders […]
On September 23, Dystonia Zoo Day events were held in Toledo, OH, and Ft. Wayne, IN. Each event united the local dystonia community in support of the DMRF mission to find a dystonia cure. We congratulate host Community Leadership Council member Kristin Cinglie for her outstanding efforts in creating a successful event in Toledo that […]
Thank you for your incredible support in uniting the dystonia community, along with their families and friends, to raise awareness and contribute to the mission of the Dystonia Medical Research Foundation (DMRF) to find a cure. We extend our deepest appreciation to Janice & Len Nachbar, Paula Schneider, and Ron Hersh, whose dedicated efforts played […]
Raise Awareness and Make a Difference During the month of September, the DMRF is enlisting volunteers to raise awareness for dystonia. An estimated 250,000 people in the United States have dystonia, a chronic movement disorder affecting the brain and nervous system. It is the third most common movement disorder after essential tremor and Parkinson disease. Dystonia […]
Celebrate the strength and resilience of the dystonia community while increasing awareness with DMRF’s new line of “Dystonia Strong” merchandise. Available items include a Dystonia Strong baseball style shirt, yard flag, notecards, magnet, and banner. September may be Dystonia Awareness Month, but promoting awareness is essential all year. Shop now.
Dystonia Medical Research Foundation (DMRF) Board Member Pamela Sloate died from cancer on April 12, 2022. In her honor, the newly named Pamela Sloate Bronx Dystonia Zoo Day to benefit DMRF will take place Sunday, September 10, 2022 at The Bronx Zoo. The event is in its 6th year, after a two-year hiatus due to […]
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