Become a Dystonia Advocate

dystonia legislative advocacyYou can educate Members of Congress about dystonia and how it changes lives. Join us to support the Dystonia Advocacy Network’s virtual advocacy agenda, launching March 3, 2021. Register today.

Join dedicated volunteers from across the country to advocate for the dystonia community on important issues like funding for research, creating research funding opportunities through the Department of Defense Peer Review Medical Research Program, and patient treatment access protections. Your participation can make a big difference – we need you!

Below is an orientation webinar to help provide the preparation you need to advocate effectively.

Click here to register.


The Dystonia Medical Research Foundation is a 501(c)(3) non-profit organization dedicated to advancing research for improved dystonia treatments and ultimately a cure, promoting awareness, and supporting the well-being of affected individuals and families.