Tips for Managing Holiday Stress With Dystonia

Tips for Managing Holiday Stress Living with dystonia is challenging year-round, but the holiday season can pile on additional stress that can affect your health and dampen the spirit of the season. DMRF spoke with Mary and Mark Letson of Melrose, Mass., to find out how they manage the holidays as a person with dystonia […]

4th Virtual Dystonia Zoo Day Unites the Community

In June, DMRF launched a series of dystonia awareness and community-building events, including the signature Dystonia Zoo Days. Dystonia Zoo Days were held in-person in 12 cities plus the 4th Virtual Dystonia Zoo Day which was livestreamed online on October 14 uniting the entire dystonia community across all 50 states. The DMRF is grateful to […]

Chicago Dystonia Zoo Day Recognizes Local Researcher

Chicago Dystonia Zoo Day was held at the Brookfield Zoo on Saturday, October 7. This family-friendly event was organized to promote awareness of dystonia, connect the dystonia community, and support the work of the DMRF. DMRF Board members Art Kessler and Treasurer John Downey presented the prestigious Changing Lives through Science award to Cynthia Comella, […]

Boston Dystonia Zoo Day Closes Out Awareness Month

Heartfelt gratitude goes out to all participants, volunteers, and generous sponsors of 2023 Boston Dystonia Zoo Day held on September 30, the final day of Dystonia Awareness Month. This year’s event, hosted by Paula Schneider, Vice President of Support for the Dystonia Medical Research Foundation and members of the Greater Boston Dystonia Support Group, including co-leaders […]

Dystonia Zoo Days Held in Ft. Wayne and Toledo

On September 23, Dystonia Zoo Day events were held in Toledo, OH, and Ft. Wayne, IN. Each event united the local dystonia community in support of the DMRF mission to find a dystonia cure. We congratulate host Community Leadership Council member Kristin Cinglie for her outstanding efforts in creating a successful event in Toledo that […]

Thanks to St. Louis for Dystonia Zoo Day

Thank you for your incredible support in uniting the dystonia community, along with their families and friends, to raise awareness and contribute to the mission of the Dystonia Medical Research Foundation (DMRF) to find a cure. We extend our deepest appreciation to June Tritley, whose dedicated efforts played a vital role in making this event […]

Thank You Connecticut

Thank you for your incredible support in uniting the dystonia community, along with their families and friends, to raise awareness and contribute to the mission of the Dystonia Medical Research Foundation (DMRF) to find a cure. We extend our deepest appreciation to Janice & Len Nachbar, Paula Schneider, and Ron Hersh, whose dedicated efforts played […]

Service Dogs Can Change Lives for Those with Dystonia

Maddie Paolero and Dee Linde share how their dogs, JJ and Murphy, bring independence and companionship to their lives. Learn if a service dog may be right for you and what it takes to find and care for one. At age 5, Maddie Paolero was diagnosed with early-onset generalized dystonia. “I started noticing when she […]

Dystonia Symposium in Dublin, Ireland, June 1-3, 2023

Groundbreaking Research to be Presented Dublin – May 30, 2023 — The Dystonia Medical Research Foundation (DMRF) and Dystonia Europe are pleased to announce the upcoming Samuel Belzberg 6th International Dystonia Symposium, set to take place in Dublin, Ireland, from June 1st to June 3rd, 2023. The Symposium is named in memory of Samuel Belzberg, […]

Bid It Up for Dystonia Auction Preview is Open!

The preview days for the DMRF’s first nationwide Bid it Up for Dystonia online auction are now open. We have some incredible one-of-a-kind opportunities including fabulous trips (with airfare, good for three years, no blackouts), autographed memorabilia from iconic sports figures, unique experiences with DMRF celebrities, tech gadgets for kids of all ages, and more. April 11-17 – […]