Dystonia Community Mourns Sesame Street Icon Caroll Spinney

The dystonia community joins the world in mourning the loss of Caroll Spinney, whose iconic contributions to Sesame Street and popular culture as characters Bird Bird and Oscar the Grouch will endure indefinitely. Dystonia is a chronic neurological disorder that can dramatically impact quality of life. There are numerous types of dystonia, which can affect […]

DMRF Earns Top Rating from Charity Navigator

Non-profit evaluator Charity Navigator has once again awarded the Dystonia Medical Research Foundation (DMRF) with the top 4-star rating. Charity Navigator bases its rating on an organization’s financial health and commitment to accountability and transparency. Thank you for trusting the DMRF with your donations and support. Together, we will find a cure for dystonia. The […]

Non-Invasive Brain Stimulation Therapies Offer New Therapeutic Opportunities

This article originally appeared in the Dystonia Dialogue. “During my fellowship training at Duke, the faces of dystonia patients with painful postures and tremors stayed with me,” said Noreen Bukhari-Parlakturk, MD, PhD, a movement disorder neurologist and clinical investigator at Duke Neurological Disorders Clinic. “Their stories of resilience and optimism—despite daily hardship and social misunderstanding—inspired […]

One Wild Year: Phoenix & Los Angeles Host Final Dystonia Zoo Walks of 2019

Throughout the year, volunteers across the country have organized events to bring visibility to dystonia and raise funds for urgently needed medical research toward a cure. 13 Dystonia Zoo Walks have drawn 5,000+ participants nationally and are on track to raise $300,000 in support of the Dystonia Medical Research Foundation. National Sponsors are Allergan and […]

Basket Bash Marks 14 Years of Raising Dystonia Awareness & Research Funds

The 14th Chicago Basket Bash, which took place October 27 at Joe’s Live Rosemont, is a charity prize raffle to raise dystonia awareness and funds for research toward a cure. The Basket Bash was started by the late Harriett Farber and her husband Joel Farber, in honor of daughter Shari Farber Tritt, who was diagnosed […]

Cheri Tannenbaum’s Memoir Shares Philosophy for Living Well

Cheri Tannenbaum, daughter of DMRF Founders Sam & Fran Belzberg, has published a memoir, Woman of Few Words: My Creative Journey With Dystonia. Cheri is sharing her philosophy on how to be a functioning, fulfilled individual despite daunting challenges. DMRF is grateful to Cheri for sharing her profound story to increase awareness of dystonia and […]

1st Toledo Dystonia Zoo Walk Raises Awareness & Research Funds

Toledo is the latest of 13 cities across the USA to host a Dystonia Zoo Walk in 2019. The event on October 5 was the very first Dystonia Zoo Walk to take place in Toledo. The purpose of this community day at the zoo was to raise dystonia awareness and funds for medical research. Dystonia Zoo Walks […]

Hunt for a Dystonia Cure is On in Indianapolis

The 3rd Annual Indy Hunt for a Cure for Dystonia took place September 29. The event was a scavenger hunt to promote awareness and raise funds for dystonia research. Participants competed for points by answering trivia questions, completing tasks, and collecting items throughout Garfield Park in Indianapolis. The event was organized by Sunshine Fox and […]

Double Dystonia Zoo Walk Weekend Raises Awareness & Funds for Medical Research

Dystonia Awareness Month is marked by events throughout the country to bring visibility to dystonia and raise funds for medical research toward a cure. This double-header weekend included the 7th Annual Cincinnati Dystonia Zoo Walk on September 21 and the 3rd Annual Philadelphia Dystonia Zoo Walk on September 22. Thirteen Dystonia Zoo Walks are expected […]